Struggling with anxiety after breast clinic referall

Have I got breast cancer? Appointments and waiting for test results
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Where you lobular also? What treatment did you have xx

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Hey @jools11

So sorry to hear this. I really had everything crossed for a better result for you!

I don’t have any experience of lobular breast cancer I’m afraid but I did have an MRI to check if my ductal carcinoma was more widespread than we thought as I have very dense breast tissue and sometimes smaller areas might not show on mammograms. After the MRI, it did turn out that we were just dealing with the tumours we knew about so that was a relief.

I imagine that because you don’t know exactly what you’re dealing with as yet and therefore don’t have a plan in place, everything feels a bit chaotic. I’ve found the best way to deal with this is to focus on exactly what you do know and what you can actually do.

My two biggest areas of focus for this are rallying up as much support as possible, which you’re already doing by posting here, and increasing knowledge by obtaining quality information from reputable sources such as Breast Cancer Now and Macmillan.

I would recommend giving the nurses a call at Breast Cancer Now to chat this through as it will give you the opportunity to offload to a real life human. They will also be able to signpost you to further support resources that might be useful to you.

Also check with your breast care nurse about being referred for counselling if you feel that might be something that might help you. There can be long wait times so it might be worth getting that referral in early. You don’t have to use it if you change your mind later.

And have a think about creating your own post on here specifically about being newly diagnosed with lobular breast cancer. You’ll be more likely to attract experiences from others who’ve already walked the path.

I hope this helps and sending you a massive hug. x

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Mine was invasive ductal carcinoma with DCIS. Hormone positive for oestrogen & progesterone and HER2 negative.

Treatment was Letrozole , surgery and 5 days radiotherapy. My Letrozole side effects were huge and benefits minimal so I’m no longer on that.