Ok thank you very much, you give me a big mental help, and I’m so happy is working well for you!
I’m using a cream with 30% urea, and although I don’t have hfs yet, it does make my hands and feet feel so soft! (I always had dry hands)
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Hi, how are you?
To me Xeloda seem working, but I have a scan only in laye January…blood test was ok. Some hfs and nausea, but not too bad.
Best wishes!
Hello! Doing well so far, my big lump under one arm has gone but more on my shoulder bone area but don’t seem to be getting bigger so good news, feeling ok, tired and sore hand and feet but still working ! Hope xeloda continues to work. So glad you think it’s working too, next scan mid January.merry Christmas ! XX
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Ok, so good news I say!
Merry Christmas!
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Hi Everyone on Capecitabine/Xeloda. I am starting treatment tomorrow and so good to hear positive stories as I am feeling very nervous about it. I have been on Ribociclib & Letrozole for 2 years with good response, also radiotherapy. They found new tumour so starting Xeloda. Thanks for sharing your experiences- gives me hope!
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I only took it about 1 year after ribociclib and letrozole, now i’m on eve+exe.
But i can tell you it did worked really well on my liver mets and saved me! Not to many SE either, i liked that.
Also i know a lady that is bee on it for 6 years and still working.
Best wishes!
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Hi Ruth and everyone else,
I have also just joined the Capecitabine gang. My primary BC was ER+ in 2019, had mastectomy, chemo, radiotherapy, then it was back as triple negative in 2022 in several places in the lymph and muscle around the collarbone and chest. More chemo, immunotherapy and radiotherapy later and I still have TNBC around the mediastinal area so onto Cape. I am 2 weeks into my first cycle, 3000mg a day, and have had a couple of bouts of severe diarrhoea, some mild nausea, sore eyes, fatigue and sore hands and feet, so I’m really hoping it’s not going to get any worse… It is still nowhere near as bad as previous chemos though. Hoping those of us on it long term can stay on it as long as possible 
Lisa x
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I’m hoping it works for me but it’s the uncertainty I find so difficult. Just been taking it for 5 days and still early to say but so far so good, just some feet soreness. I am using lots of moisturiser, as suggested, so hope this helps. Anyway, just have to wait and see how things go. X
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Ive been on cape since febuary stable cancer so it obvs works good luck always have hope
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Hope those of you who’ve just started taking Xeloda are adapting well. As explained in recent post, I started taking it in July 4500 each day. In my week off I got viral infection, then pleurisy, due to low immunity. I’m still recovering so 3 weeks off. It’s not a good start but, hopefully, I’ll be OK for Cycle 2 at end of this week. They’ve said they’ll reduce to 4000 but still seems quite high. Has anyone else had a difficult start similar to this?
Hi ladies .
Im new to capecitabine , into 3rd week of 3rd cycle. I have fatigue and hair is thinning otherwise not too bad.
Briefly my story …diagnosed September 2012 and treated with left mastectomy chemotherapy radiotherapy and 10 years adjuvant tamoxifen and anastrozole. Then January 2024 diagnosed with widespread bone metastases in spine ribs and sacrum. Had radiotherapy then palbociclib. Unfortunately pal didnt work and CT scan in May 2024 showed further spread in spine snd ribs so switched to oral chemotherapy.
Im very much a glass half full lady and feeling positive and loving life 
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Hi Nancy, I know you wrote this ages ago, but I’ve been looking for info on how people are doing on Capecitabine as I’m due to start and your situation sounds similar to mine. How did you get on with it, and vain question - did you manage to keep your hair? I’m getting a bit of fuzz back now (6 weeks after my last AC) and am hoping to keep it and get a bit more 
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Hi everyone
I’m on my fourth cycle of capecitabine. I was on Ribociclib and Letrozole March-Oct but my mets were growing. I take 2500g morning and night.
On my first cycle it was only on my week off that I realised how rubbish I felt. Now I take an anti sickness tablet before the capecitabine and 2 paracetamol after regardless of whether I need it. I have no nausea/diarrhea or headaches.
I am tired but I also worked 30 hours a week and have 2 primary school children. (Cut my hours now to 22.5). I do try and rest when I can and am lucky to have my mum and partner who help out lots. From cycle 2 I have suffered with dry and cracked fingers/hands but use creams to help. Also my feet are sore from about day 12 sometimes blistering if I walk a lot. Eases when I’m on the 7 day break. I’m not overly careful as to what I do and things to avoid. I’ve been to farms and crowded places whilst on these tablets and haven’t picked up any infections. I know this isn’t the case for everyone. I will not let cancer stop me making memories with my children. We have a family holiday to Disney in 10 weeks and I’m determined we enjoy every minute.
I’m due my first scan on capecitabine soon to see if it is working for me. Fingers crossed it is. My consultant also told me he’s known people who have been on this drug for many years. Hope this post sends some positive vibes out.
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Hi everyone,
I’m just coming to the end of my first two weeks on Capecitabine.
I thought I had beeing doing well on Ribociclib but was told after my last scan that the mets in my liver were progressing so needed to change. I also have bone mets.
Sore feet has been my biggest side effect the last two weeks, especially at night. I’m just trying to keep them moisturised and as cool as possible when they are burning up. I’ve got a few bits of sore skin on nose too which is unusual for me as usually skin is fine, and my hands have been looking more red than usual the last couple of days but not to sore yet (fingers crossed they don’t get worse!).
I’ll see what happens on my week off.
Due to go away on a work trip (in the UK) and don’t feel so unwell I can’t go so will take the trip. Trying to balance being sensible but not letting cancer stop me enjoying the life I have left, and since the change in meds I have been struggling a bit the last few weeks to get my head round it so hoping a little trip away will give me a mental boost.
Be great to keep hearing on here how people are getting on!
Take care
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