Succesful on Capecitabine

Ok thank you very much, you give me a big mental help, and I’m so happy is working well for you!
I’m using a cream with 30% urea, and although I don’t have hfs yet, it does make my hands and feet feel so soft! (I always had dry hands)

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Hi, how are you?
To me Xeloda seem working, but I have a scan only in laye January…blood test was ok. Some hfs and nausea, but not too bad.
Best wishes!

Hello! Doing well so far, my big lump under one arm has gone but more on my shoulder bone area but don’t seem to be getting bigger so good news, feeling ok, tired and sore hand and feet but still working ! Hope xeloda continues to work. So glad you think it’s working too, next scan mid January.merry Christmas ! XX

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Ok, so good news I say!
Merry Christmas!

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Hi Everyone on Capecitabine/Xeloda. I am starting treatment tomorrow and so good to hear positive stories as I am feeling very nervous about it. I have been on Ribociclib & Letrozole for 2 years with good response, also radiotherapy. They found new tumour so starting Xeloda. Thanks for sharing your experiences- gives me hope!

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I only took it about 1 year after ribociclib and letrozole, now i’m on eve+exe.
But i can tell you it did worked really well on my liver mets and saved me! Not to many SE either, i liked that.
Also i know a lady that is bee on it for 6 years and still working.
Best wishes!

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Hi Ruth and everyone else,
I have also just joined the Capecitabine gang. My primary BC was ER+ in 2019, had mastectomy, chemo, radiotherapy, then it was back as triple negative in 2022 in several places in the lymph and muscle around the collarbone and chest. More chemo, immunotherapy and radiotherapy later and I still have TNBC around the mediastinal area so onto Cape. I am 2 weeks into my first cycle, 3000mg a day, and have had a couple of bouts of severe diarrhoea, some mild nausea, sore eyes, fatigue and sore hands and feet, so I’m really hoping it’s not going to get any worse… It is still nowhere near as bad as previous chemos though. Hoping those of us on it long term can stay on it as long as possible :crossed_fingers:t2:
Lisa x

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