Support Forum - 24 April 2010 Central London

Public Archive
21

hi all!

Yes me too, I found it really useful, eye opening to what others think and blown away by the honesty - it was really quite refreshing!

Hope to see all soon and obviously keeping in touch here.

Thanks BCC staff for organising it - I think it shows there really is a need for this going forward.

Cheers
Jan

22

Hi Jan. It was great to meet you on Saturday. Hopefully see you again sometime.

Elaine xxx

23

I’d really like to go; have just found out I’m BRCA1.

Jo

24

jo

I still think there are spaces on the forum Family History Telephone Support Group - 22 Feb 2011ystal

25

just wondered if any the BCC staff could let us know if there is going to be another support forum this year for brca carriers?

26

Hi Lulu
I’ll see if I can find out any details for you.
Leah

27

Hi Lulu - me again

I’ve spoken to the team who are in charge of our support events, and they’re still finalising the programme of events for the next year (from April onwards). Once they’ve confirmed which events are going ahead and when, we’ll let you know.

We have also been talking about holding a live chat session for gene carriers as well, probably in May, so keep an eye out for info about that.

Hope that helps

Best wishes

Leah

28

thanks Leah… it would be great to meet everyone again. Lx

29

Hi Lulu (and others)

Here are some more details about the live chat session I mentioned in my last post:

We are running a pilot online chat session specially designed for people with a breast cancer gene who have an increased risk of developing breast cancer.

The session will be on 18 May, in the evening.

The session will be facilitated by one of our clinical nurse specialists who has a special interest in this topic, but one of the main aims will be for people to share their experiences in a safe and supportive environment.

This special session will be open to people who have been identified as carrying one of the known altered breast cancer genes (BRCA1, 2 or TP53), who have not had breast cancer.

If you are interested in joining the pilot Live Chat for gene carriers, please email us on <script type=“text/javascript”>eval(unescape(‘%64%6f%63%75%6d%65%6e%74%2e%77%72%69%74%65%28%27%3c%61%20%68%72%65%66%3d%22%6d%61%69%6c%74%6f%3a%66%61%6d%69%6c%79%68%69%73%74%6f%72%79%40%62%72%65%61%73%74%63%61%6e%63%65%72%63%61%72%65%2e%6f%72%67%2e%75%6b%22%3e%66%61%6d%69%6c%79%68%69%73%74%6f%72%79%40%62%72%65%61%73%74%63%61%6e%63%65%72%63%61%72%65%2e%6f%72%67%2e%75%6b%3c%2f%61%3e%27%29%3b’))</script>.