I will be there on Friday and hope to meet others another time. Hope all goes well on Friday for you Nicky. xx
Fingers crossed for you Nicky. I am in the same situation actually. I wait to hear for my PeT/MRI on thursday eve. I really really hope I won’t be wreck by awful news so I can make it. I was so much looking forward to it but once again test/treatments etc stop mefroma “normal” life… Quite in a difficult place at the moment but try to stay positive (as much as I can)
Love
Valia
x x x
Hello Ladies,
Well it looks like some will make it - look for a middle-aged ladie in a purple coat lottering outside the coffee shop. First other to arrive can zoom in and drape themselves decoratively across a table for us - it can get busy:)
Have a wonderful time in Cornwall Alize so pleased to hear that things are going better than expected - always a nice surprise.
Nicky and Valia I really hope that your scan results are OK. You know can come even if you do feel in a state we will understand, but fully understand that you may need time alone to digest. Do let us know how they go.
Love Jacquixxx
Hi All
Thank you for the invite, I will be coming on friday from bournemouth for my first meet-up. If anyone needs picking up along my route I’m happy to oblige. See you there.
Good luck with your results Nicky and Valia.
Love Anne
Sorry it went on twice.
Thanks Jacqui.
You know how much I was looking forward to this meet up. I really hope for some good results and then meet all the other ladies. I will post anyway to update you if I am still coming. The same I wish for Nicky!
Valia
x x
Hello girls,
Just a quick message to say I will join you tomorrow too! Brain scan clear!!! Thank God for this. Not as good the rest of the tests. I will need to change treatment and to leave behine Capecitebine which was so kind to me since August… Oh well. I am delighted that brain scan was clear so I focus on the positives.
Looking forward to meet you tomorrow.
Valia
x
That is fantastic news Valia, bet that was the biggest sigh of relief ever Hope I have one as well later today. Thanks for all the good luck wishes and hopefully joining you all later.
Nicky x
I will keep everything crossed for you Nicky. Take care for now and really hope to see you later on with the other girls
Valia
x
Hi
After a stressful but short wait this morning I now have news. Luckily the current treatment is working and everything is stable, with improvements to the bones already. However my recent liver biopsy has shown me to now be HER+ which means a change in treatment from now on so that I get Herceptin and also the new drug Perjeta, which needs funding. So a big relief that the Xeloda has been working but I will need to now go onto IV chemo for the HER/Perjeta combo to be funded. However, I’m glad I had the biopsy done as I can now get the best treatment for my BC. I will be there at 2.30, maybe only for a short while as OH and I are going out later. Looking forward to meeting you all.
Nicky x
Lovely to meet you all this afternoon - great bunch of ladies. Thoroughly enjoyed it. Look forward to our next meet up.
Liz x
p.s good luck Anne with your scan and thanks for my eggs from your hens Jacqui.
So sorry to have missed you all this afternoon. Not sure if I misunderstood the meeting place, but I tried and couldn’t find you all (despite approaching a woman in a purple coat, asking if she was Jacqui!).
I went to the cafe by the top of the escalator on the 1st floor of the big M&S at the retail park in Hedge End, just off the motorway. It was 5 or 10 mins after 2.30. Did I pass you all by - or just run out of confidence before you all settled down?! I was wearing a purple t-shirt. Hope to have better luck next time.
Great news from scans Valia and Nicky. I’m on herceptin too any my onc is trying to add perjeta. Good luck Anne, I’m glad you were able to join the group and perhaps we’ll talk again on the Tues eve chat.
Sarah.x
Hi SP, so sorry you missed us, I did the same as you at first, you were in the food hall, we were in the Cafe which is downstairs. We are planning to meet again in a month or so’s time, no date as yet, so hopefully we can meet you then xx
PI would like to say what a lovley bunch of ladies, the conversation was very easy and I am looking forward to our next meet up. Good luck Nicky and Anne, and to everyone else have a fab weekend xxx
Sorry you missed us, what a shame. It was lovely to put faces to names and as Kirsti says I was very easy talking to everyone. Hope I can make the next one but will see when my chemo will be.
have a good weekend everyone
Nicky x
Thanks guys, nice to have my mystery solved! Look forward to meeting you another time. It’s good to hear you sounding so pleased with the vibe in the group.
Sarah.x
Sorry we missed you SP. it was a lovely catch up with the other ladies but certainly we will repeat it soon then hopefully you will be with us:-)
Meeting up was great. Many thanks to Jacqui who organised. Also thank you Jacqui for the lift
Was looking forward to the meeting but still I was a bit anxious and apprehensive as one group I joined before didn’t really work for me (Nanniespikie you know what I mean;-) This catch up though was great. Conversation was so easy, there were not any silent pauses- great afternoon. So good to be with people who share same problems, frustrations and fears but still managing to have a laugh and support each other.
Thank you girls. Looking forward to see you all again at Ann’s place. ( or anywhere else if that is easier for Ann)
Have a great weekend.
Valia
x
Just to say thank you for all your support - it was a great meet up.
Sarah so sorry you did not find us we where in the the coffee shop - I did loiter outside until about 14.45 but sadly I just wasn’t purple enough. I think you where pretty brave accosting a stranger. Please don’t be put off and give us another go.
Ann we are keen to follow up on your offer of a venue - just set the when you are ready. I can bring scones .
Thanks again for a lovely afternoon - Jacquixxx
i enjoyed Friday. It was good to meet you all and even better to know we will see each other again.
thank you to Jacqui for kicking it off.
Hi to all those who came to the meet-up on friday (and Sarah who sadly couldn’t find us). It was a real pleasure to meet you all and I am sorry that I had to leave early. You are all such strong and beautiful people and I would never have known you were all ill. I will be having a meet-up at my house in bournemouth asap after all my tests and scans this week. Meet-up hopefully the end of the week after. date to follow. my husband says that if you pm me (what ever that is) I can give you my address and directions. Any other ‘secondaries’ welcome.
lots of love and good wishes to you all
stay strong
Anne xx
Thanks Anne - I have been thinking of you today - if my holey brain is working you had your scans. Keeping everything crossed for you.
Looking forward to seeing you again - fix a date and I will PM you for your address.
Love Jacquixxx