Support group for secondary BC hampshire/Winchester?

Hi there folks - sounds like a lot of you are of on your holidays when we are due to meet again. If anyone feels they need to have a coffee and chat do post a date an I am sure some of us will be able to make it.
Anyway lets be reckless and count on dry weather and go for Hilliers. Suggest we meet in the cafe at the main entrance to the gardens - if you havn’t been before don’t get confused and go into the garden centre by mistake, easily done. Will 2.00ish be OK? We can have a coffee and then if you are up for it go for a wander - I find it a very therapeutic place. I will PM my mobile number to likely candidates so you can text me if you cannot find us.
Valia - would you like me to pick you up on route?
Hope life is improving Anne
Hope you are all enjoying the sunshine - love Jacquix

Hi Jacqui
Will be able to meet on 2nd but won’t be able to get there until 2.30 so will come and find you in the cafe.
Hope everyone is keeping well and look forward to the catch up.
Liz x

Hi girls,
Sorry but I won’t be able to make it this time. I have a CT scan booked Friday afternoon for some potential treatment in the liver.
I hope you have a good catch up! I will certainly miss you!
Valia
x

Hi there
It looks like sunshine on Friday - I am expecting Liz and possibly Nicky, you should have my mobile number for emergencys via a PM. If anyone else wants to turn up I still have a number of passes for the garden so do let me know or just turn up. 2.00 - 2.30ish meet in the cafe by the main entrance. It is very easy to spot.
Have fab hols Sarah and Kirsti - you both deserve it.
Hope the treatment is going smoothly Anne and you soon start to feel better.
Valia hope all goes well with the scans and you get some effective treatment for you r liver. If you would like to meet for coffee some other time PM me.
Onwards and upwards - Jacqui

Hi ladies
Looking forward to meeting up again, even if its only a few of us. I may be a bit late as I have my Denosumab injection scheduled for 12 but often have to wait around to find a nurse that’s free to administer it. I will text you, Jacqui, if I have left Basingstoke late and won’t be there by 2.
good luck Valia with the scan and hope it either helps with your treatment plan or at least gives some idea as to what’s happening.
Also good luck to anyone else having scans or results, and very envious of those who have managed to get away on holiday!
Nicky x

Hope you had a good catch up ladies! Done with scan and RFA planned for 6th of August. fingers crossed.
Jacqui, it would be lovely to meet if you have time for a cup of tea after I am done with the proccedure. Have you stop working now? Let me know when is good for you. (well, given that I will have no major complications after the proccedure…)
Valia
x

Hi Jacqui and Nicky.
Enjoyed our meet up on Friday. Lovely venue and it was nice to catch up with you both. Hope everything goes ok with your next lot of treatment Nicky-just tell them loads of sedative to knock you out!
Valia - good luck with the RFA, hope it isn’t too uncomfortable for you and you have a quick recovery. Hope to see you at our next session.
Hope everyone else is keeping ok and enjoying their holiday.
Liz x

Hi Liz and Jacqui, it was good to meet up and it was a good job there were no donkeys around, I think we would have talked the hind legs off them LOL. Thank you for organising, Jacqui, and look forward to being at the next one. Good luck with any appointments you have coming up.
Hi to all other Hampshire Ladies, hope you are enjoying your summer as much as you can with all the appointments and treatments we have to put up with. Valia, good luck with the RFA, have PM’d you.
Nicky x

Hi girls,
RFA is done now and I am back home recovering nicely. As far as I know it went well. Well, we shall see.
Hope everyone is OK.
Thanks for all your kind messages
Valia
x

Good afternoon ladies.

The trio at the last gathering thought that it woud be good to go back to the M&S coffee shop at Hedge End. It is easy to find and the parking is good. I hope that Friday the 6/9/13 at 14.30 will work for some of you. I think Kirsti and Valia will be away. Let me know if you can make it or if you cannot what dates you are around.
i hope you have a lovely brak with your family in th Greek sunshine Valia.
Have a good holiday kirsti and i hope you boss is backing off.
Good luck to everyone else

Jacquix

Hello all,
Can’t make the 6th I’m afraid Jacqui, I’ll be away for the weekend. Could do the Fri before, if you find lots of us can’t.
Happily I’ve had a lovely time doing various holidays and weekends away over the last month or two, although I get very tired in between. I’ve discussed a staggered return to work with my boss from Oct, in an easier role to start with, to give me a chance to build back up. I can’t believe how much fatigue I still have 4.5 months after my last chemo and have no way of telling how much better it’ll get!
Best wishes to all and happy holidays to Valia and Kirsti.
Sarah.x

Hi Jacqui and Liz

I hope to be there tomorrow but, having had a tummy bug earlier this week, I may have to call it off at the last minute if I’m not feeling good.  Hopefully will be OK and would like to catch up, even if it’s only the 3 of us again.  Will text you Jacqui, if I can’t make it, or my appointment at the hospital (for denosumab) delays me.  Sorry to hear your latest news Liz :frowning: That’s pants.

Nicky x

Hello all,

 

So sorry I missed the revised meeting date last Fri, and Jacqui, thanks for your message about it.   Unfortunately I’ve not been logging on during the change over & have only just  managed to figure out how to reset passwords etc to post on the new forum! 

 

Liz, best wishes with figuring out next options.  I hope you had a chance to talk it through with a couple of the others.

Hope to see you another time. 

 

Sarah.x

Hi everyone, is a meeting still set for 27/09? I would love to meet up xxxx

Hello all, hoping I’ll be able to join you next Fri, pending scan appointments.   Sarah.x

Hello everyone, so sorry I could not make it on Friday, I could not get away from work. I have been having lots of pain the past week, mainly my groin, leg and back. I will contacting my oncologist tomorrow because the night time pain is unbearable. I am taking soloadol but am now completely constipated. Any advice re pain meds and constipation will be great fully excepted. I’ve had pain but not at this level for a number of months. My last scan showed nothing there (left hip area) and I was told it was just wear and tear. However I am convinced it must be something more sinister now, it is so so painful. Anyway, that’s enough moaning for now. I hope you are all ok and I will post again soon xxxxx

I can make it to Winchester on 8 Nov 2013 for 2.30pm if it is ok that I join you.  I have put it in my PC calendar and diary.  Think I might make a day of it in Winchester.

 

Don’t know if you are aware that there is a Christmas market at the Cathedral between 21 Nov and 22 Dec 2013.  I went to the last day last year and got some great bargains and had a really good day in Winchester with some friends from work.  There is an ice rink there as well, but I think you need to book for that.

 

winchester-cathedral.org.uk/christmas/christmas-market/

Hi Hants ladies

Hoping that Jacqui and Vallia got to meet up on Weds, sorry I couldn’t be there but hope to be at the next one.  Nice to have a few extra members joining us as well.

Kirsti, that is Cr@p, as Jacqui has said.  Hope that the rads sort out the pain and the different hormonal will do its job as well.  Are you on denosumab? Or maybe a different bone strngthener?  I wonder if it’s worth asking to change if you’re not on denosumab yet, as it does seem to be the one that quite a few oncologists are switching people to.  Anyway, good luck with everything and I hope you get to the next meet up, it would be lovely to see you again.

Hi to everyone else, hope you are doing Ok with your various treatments.

Nicky x

Good luck Jacqui, hope everything goes smoothly xxx

Hi Liz
That’s great news that you are getting a treatment that you need, and I know the WBR wasn’t what you would have wanted. I’m sure it will all go well, if a little uncomfortable, but it will be worth it I’m sure.
Should be there on Friday, thanks for reminding me though as I seem to have thought it was much further off than it is, having not quite realised were already in November!
Nicky x