Hi everyone,
Thank you so much for thinking of me coming from the Isle of Wight but unfortunately it is difficult to get time off work to come over this week. I am disappointed as I would like to meet you all. Also feeling pretty tired at the moment. However, I will keep looking on the forum & hopefully be able to make it another time.
Hope you are all doing ok with your treatments.
Love Helen (from the Island) xx
Sorry you can’t make it Helen; and sorry I am so rubbish at remembering names!
Vicki xxx
1.30pm, Winchester Cathedral Refectory, Friday 28 March 2014 - in my diary as we speak.
Glad to hear you are feeling a bit better Jacquie. It is just good to see everyone, no matter their mood. <3
Vicki xxx
Thinking of Liz and hoping that Hospital/Hospice can sort things out for her and keep her comfortable 
Got home later than expected from checking on my aunt. Got caught in the Oxford rush-hour on the ring road from Cowley to the A34 and then heard that the southbound side was shut because of a van fire. That was after my junction, but it was still slow for a while before the Sutton Scotney turn off, although by then they had one side open. Nice to be home though.
Vicki xxx
I had my MRI done today and will get the results next week.
I have just changed GP surgery and hope I can make a new start with a completely new crew. After just one visit they seem far more supportive. I had to go to the new surgery last week because I have a bit of a chest infection and so I am nearing the end of a week on penicillin. Still can’t breath completely normally, which made the MRI a bit difficult because I had to do quite a lot of breath holds, but the lady doing the scan was very good and tried to make them as short as possible, and let me know the second I could start to breath normally again. I got through everything without having to do a second take, though I have to admit that I nearly lost it a couple of times! I did remember to smile for the magnets, so hopefully the pictures will be good and show up everything that it needs to show.
I have the date in my diary and on my computer callendar, and I will also put a sign out somewhere to remind me, and I should make it this time … fingers crossed.
Vicki xxx
Welcome back Mara. Not sure that some of the roads in Devon are too quiet today, it sounds chaotic out there today!
Looking forward to seeing you on 25 April, a week today! Hope the weather will be as good as it is today.
Vicki xxx
Mara, I have just changed surgery, though only across Lymington, but even that seemed to be a bit traumatic because my notes still had to go via Winchester rather than about 200m through the churchyard!
Make it if you can, but there is always next month … though at the moment everything is going very pear-shaped on me with a chest infection, passing kidney stones, liver function still going downwards, enlarged heart and a confirmation that I now have liver mets. Had another CT scan today and have to get another blood test on Monday and back to clinic at Southampton General next Tuesday. Looks like I may need to go on to chemo because the liver function is getting worse and there may not be time to allow the Aromasin to kick it after a change from Letrozole.
Energy is low, but still hoping to make it tomorrow on the grounds that I need some new slippers anyway and M&S will probably have a good selection being the extra motivation other than meeting other metsters.
Vicki xxx
Good Evening ladies,
Just to say I will not be joining you tomorrow at M&S. A previous engagement with my great nephew at the Polka Theatre, Wimbledon somehow takes preference !!!
I am living the life down in Poole at present and the off to Palma in two weeks so I guess I’ll see you all in May unless anyone fancies a meet up in the interim if the are over Pompey way ?
Hope you are all as well as can be expected and that you enjoy your time together tomorrow putting the world to rights. Take Care
Michele
Sorry I didn’t make it in the end. Was taken to hospital by ambulance at 5am with pains in my left arm. Everything has turned out to be ok, but I do have an enlarged heart at the moment and having just started steriods and had a CT scan yesterday morning, as well as starting on Aromasin I though it best to get it checked out so I wasn’t having a bad interaction going on. Or something worse.
I was eventually released about 2.30 when my sister-in-law picked me up and it was all a bit late by then, and all I wasn’t to do was go to bed and sleep.
Back to the oncologist on Tuesday and possibly they will have a plan Stan.
Vicki xxx
Hi it is with sad heart and deep sorrow I have to tell you that the love of my life nanniespiky/Liz passed away peacefully on Monday morn I would like to personally thank you for your support and friendship to her over the years I know she loved the meet ups take care all of you god bless nick
From all of us at BCC we are very sorry to read this news about nanniespiky and may I pass on our sincere condolences to all her family and friends at this sad time, she will be missed on these forums
Lucy BCC
Hello Nicky. The plan of action is to get things started asap. Over the last 6 weeks or so my platelet count and liver function have been dropping, and continuing to do so. Need an Echo CG to check my heart is ok for Herceptin, and that will be given in conjunction with Paclitaxel. Should be starting next week and they two drugs will have to be given over maximum time at Southampton General to start with. That means 2 hours for the Paclitaxel and 6 hours for the Herceptin. After that, and if all goes will, I should be able to have the combo in reduced time doses at Oakhaven Hospice, here in Lymington.
Brain CT showed I have nothing in my brain, that shouldn’t be there, but there is an area of bony involvement in the top of the left orbital lobe of the eye, which probably accounts for the droopy eye. This is responding to the Dexamethasone however. My breathlessness may be because the cancer is getting in my bone marrow, but time will tell.
Not the best news, but at least I know what I am dealing with now and can just get on with it. My preference was to let the Aromasin kick in, but as that can take some time they are moving ahead with the big guns. Anyway as compensation I just bought myself a top of the range iPad Air to make it easier to keep up with life. Hope you are doing well and that I will get to see you all soon. Vicki xxx
Hello sorry I haven’t replied until now but have been rather busy the funeral for Liz will be at the Wessex vale crem bubb lane eastleigh hants SO30 2HH at 1pm on Friday 16th may all welcome take care god bless nick
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Hi all, I hope everyone is well. There seems to be a quiet lull at the moment and was just writing to enquire if the get together is still on on Friday ? I do hope so as I haven’t seen you guys for a couple of months and it would be great to have a catch up. I don’t feel confident enough to get to Alton myself so my sister has offered to be my taxi for the day, would it be OK for her to join us ? Look forward to seeing as many of you as possible on Friday. Take care. Michele x
Hello to all,
I don’t log in very often at the moment, but think of you often and am desperately sorry to hear we’ve lost Anne and Vicky, since Liz passed away.
For me, last scan in April brought good news and a little uncertainty… There’s no regrowth in the original sites, so herceptin seems to be holding for now. However, I have a small, unidentifiable mark in the other lung, could be nothing, or maybe er+/her2- mets from the 2nd primary tumour, hiding under the original one (removed by lumpectomy). Waiting for re-scans soon, then possible RFA treatment, or chemo if more appear. Meanwhile, started Zoladex, to help bolster the Tamoxifen, as by some miracle my body’s managing to make quite a lot of oestrogen still!
Meanwhile, I’m working hard, holidaying lots and generally enjoying a short period of pretending that I’m ‘normal’. I recognise that I’m very lucky to have relatively minor metastaces at the moment, but it’s only 18 months since my original diagnosis, so early days.
Valia, I’m frustrated for you to have progression after the iv chemo I know you didn’t want. From what I can tell, it’s very random which chemo works for which person, so I hope your onc has found something else to try.
Enjoy meeting this Friday, I can’t join you, but you will be in my thoughts.
Sarah.x
Hi, will join you about 2 on Friday; not before. See as many of you as possible then xx beanbob
Hi all, I know it’s late as there is a meet up today. I did intend a trip to London with my son but that has been put back a week as he wants to take me to Lords to see England/India in the second test match…very exciting as it’s on my bucket list!! I will join you today, I am going to take the bull by the horns and drive
myself ! See you around 2pm, if any of you get to read this, otherwise I will surprise you. XXX
Hi to Jacqui, Nicky & Karen.
Thanks for making me welcome yesterday at the meet up. It was lovely to put faces to names and learn more about you all. The lemon cake was beautiful.
I wish you all the best with your treatments and hope to see you again soon.
Got home at 6.15! !
Love Helen xx
Hi guys, I too am on my steroid high, hence on the forum at 2.30am. I will be there on 7th, it’ll be so good to catch up after a bit of a break. See you next week. Have a good weekend. Much love Michele xx