Hi, im newly diagnosed with secondary breast cancer in the liver, spine and sternum, without even being diagnosed with primary. Im 37 with 2 young girls and my life has just been turned upside down. I am so scared and in need of support.
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Hi Siobhan. I was diagnosed in 2023 with secondary breast cancer in my chest wall and sternum. I have been on Palbociclib, Letrazole and Denosumab up until now with not many problems. Now it seems it has stopped working and my oncologist will be changing my treatment soon. I did read on the forum though of someone who had been on this treatment for 13 years and others who went into remission. There is always hope that it can be kept in control for a long time. It is scary. If you phone the Macmillan support line 0808 808 0000 you can speak to someone and they will be able to give you a lot of help and advice. I have spoken to them several times. Their website is https://www.macmillan.org.uk/ and there is a lot of information there and they also have coffee mornings in some centres. The breast cancer nurses on this site will also be able to advise you and there is also a Someone like me service on this site. The Someone Like Me service can match you with a trained volunteer who’s had a similar experience to you. You can be in touch with your volunteer by phone or email and they can share their personal experiences to answer your questions, offer support or simply listen to how you are feeling.
You can ring the Someone Like Me team on 0800 138 6551 or email them at someone.likeme@breastcancernow.org, so they can then match you to your volunteer.
Also there should be a breast cancer nurse assigned to you at your hospital who should be able to help you.
I hope some of this is helpful. Hugs and kisses in this difficult time.
Dianne
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Hi Siobhan. I was diagnosed straight to secondary (de novo) in June 2020. I’ve had no growth since then. It took me time to adjust and accept but I’m living well with cancer. I was 39 at diagnosis with 2 young children.
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