Good morning all
Feenix - so pleased you are home and all went according to plan. Be kind to yourself - box sets here they come.
Fairy Dust - big girl pants on day, as Gill always says - be careful you don’t squash us - we’re with you all the way. 1.2 litres - wow that’s impressive!!
Sally - well done with hair cut. When is your pre chemo appt- take your questions with you.
Gill ?happy birthday for yesterday
I went for my scan yesterday - the lady had breast cancer 5 years ago almost same journey as me, including this. it was great chatting to her. The results are I have DVT in my arm - 3 clots around my PICC line. So now have to have injections every day into my stomach?trying to be positive that they can do something about it. Arm still very swollen and red but this should go in a week or so. Hubbie is stepping up to do the injections. No bikini for me this year as my poor stomach will be black and blue. Today focus on celebrating eldest 12th birthday. I’ve clocked up too many hospital hours this week- we are counting hospital hours, and like air miles, I get rewards- planning what these will be- thinking 100 hours = spa day. Any suggestions for rewards???
Jem xx
Well done Helena for posting for Fairy Dust.
If you don’t mind I’m still in need of mine at the mo- will return freshly laundered!!
Xx
Morning all,
Hope your birthday was good Gill.
Feenix, hope you are feeling good and recovering well.
Fingers crossed for a good result today Fairydust.
Jem, sounds like you are having a nightmare with the PICC line. Hope it improves. It’s because of potential problems like this I don’t want one. I still have enough aggravation with the left one following the lymph node removal without screwing up the right one too. I already have to inject insulin 3 times a day without adding too many more into the mix. I’ll have nowhere left to inject.
Everyone loves the new hair cut. Got up, ran my fingers thru it and am good to go!
I have my pre chemo appointment Tuesday afternoon. I’ve not really got a clue as to what questions I’d be asking?
Sorry if I’ve forgotten anyone. Having to pack to go home and back to reality today 
On the upside I’m looking to go back to work on Monday as between my second operation, not healing and holiday, I’ve been off since the start of April.
Have a good day all.
Sally
Hi all. So good we can all laugh at each other and with each other as it does help.
Feenix good luck today with results. Nope wrong fairy dust hope all goes well and feenix recovery going well. Crikey there is only 4/5 of us and still forget where we are all at and what stage.
Sally hope all goes ok next week and you stay strong. I am sure you will. The big knickers are going to betting some use next week but enough room for all of us.
Jem. Rewards has to be a spa day total chill. Go for triple point then we can all come also. Do you have a champneys near you? My fave spa. Had a lovely day yesterday topped with gift from daughters trip to London to see mamma Mia and overnight stay. Once treatment all done with and feeling fit enough. I will be!!! Have a great weekend all and take care. We will all get through this and in how ever many weeks time 20 + with our lovely Sally and Jem going through their treatment we hopefully will still have the April surgery thread live alongside dec/jan and maybe feb. Let’s do it.
Well the big knickers did their job really well again today. As I walked into the consultants office I (honestly) metaphorically adjusted them and checked you were all tucked safely in the pockets. I took a deep breath and stepped inside to the best news I could have had and have had in the last 6 months. I hope you didn’t all get too sick or dizzy as they came off and I swung them around my head in joy. Large area of DCIS (as I knew) removed. 2.5 cm IDC grade 1 (as I knew) removed. 1.8 cm grade 2 (as I knew) disappeared!! DISAPPEARED! Told my weight loss etc had helped with this. No more nodes involved so no more needing to be cleared. Low scores on Oncotype test so no chemo. Prescribed Anastrozole.
I’ve taken a while to post. I’ve gone from feeling elated to feeling guilty. I wanted share my good news with you all. We all need the good news. Then I struggled because after a false start, Feenix is still waiting for results - fingers crossed for knicker twirling ones, Sally and Jem are about to start/have started chemo and Gill’s started rads- can’t wait for all your knicker twirling moments when you’re through it. I suddenly feel I’ve got off “lightly”. Still trying to believe it really. I’ve restarted this post 3 times because of it.
Think I’ll printout a picture of Helena’s pants to remind me about all this, who I’m sharing it with and who has helped me get this far. Have just read my 1st posts on here (and they were my first on anything and I’ve not posted anywhere else ever). The wonderful ladies on here have carried me through all the rants and meltdowns. How can you feel so much gratitude and love for people you’ve never met? I’ll keep checking on here waiting for each of your knicker twirling moments, but be careful I’ll be in the pockets with you and I do get sea sick!! Xxxxxx
Fairy Dust swinging my big knickers here for you- amazing news. I am truly thrilled for you. Please don’t feel guilty sharing good news.
I agree we have been on a journey together. I also have never posted anywhere before this thread. Somehow the bond we have built is special, thrown together through odd circumstances that we never wanted.
I hope you are going to celebrate this news.
Thank you for wanting to keep popping back - means a lot.
We’ve had a good day celebrating eldest sons birthday, friends have been staying which has been great. I’m exhausted now, tomorrow to relax and then get ready for family birthday celebrations on Sunday- they all expect me to carry on as normal and run around after them all.
So so pleased you don’t need to go through any more active treatment.?
Really please for your Fairydust. Don’t feel guilty, just lucky! 
Yeahhhhh so pleased for you fairy dust. Don’t feel guilty but know what you mean, it’s great news and worth sharing and celebrating as it shows as many of us have said so many times and still say “we will get through this”. This was my first time posting also and agree on it has helped so much both through good and not so good times. And we have laughed. Have you got to have rads fairy?
Lovely you saying you will pop back here I know I will till the last posting is done.
Feenix glad you feeling good and on the road to recovery but on that carousel again. I am fine with Wednesday a tad anxious but not all the time just keeping busy which keeps it off my mind hmmm well maybe not but you know what I mean. It’s when your stomach does the flip as it just jumps into your head at the least unexpected time. I will be fine this is doable and I know I will get through it.
Jem enjoy the rest of your weekend then rest as I am sure you will be Needing it but with a nice feeling.
Sally has your wound healed fully now? Do you plan on working through treatment? I intend to all being well may just take a bit of time off at the end to recover. Who knows will take each day as it happens.
20 days seems forever so hoping it goes as quick as the last 2 month.
Have a good weekend and hope the sunshine’s with you all.
Hi all,
back from Cornwall after a nightmare 8 hour drive home instead of the normal 5/6 and back to reality (and washing). Back to work and starting chemo this week. Gill, I intend to work all thru, side effects allowing, but work are pretty good about me doing what I can, when I can. It probably helps that I work in occupational health.
Have a good weekend everyone and enjoy the sunshine.
Sally
Fairydust,
Only went from near St Ives to South East London. And the fish aren’t that strong! After telling tales of seeing another fisherman’s rod being taken years ago and how to prevent it by tieing it to the chair when dozing or eating, he didn’t take his own advice! He dozed for a couple of seconds (so he says) and woke with a start to see it going into the water!
Sally
Fairy Dust your post a few days ago was really helpful. This is a roller coaster but we all need to take one step at a time (our next for us few is hormone tabs, rads, chemo or results) but each step we take is one we take together, each one further away from the start of this and a step closer to moving on. A friend, who has unfortunately been through this, widely said that after I taken a step, take a breath look to the next step, no regrets and no looking back. I’m just going to add after each step swirl those big knickers.?
Gill - with you all the way this week.
Sally - you can do this. Take one day at a time. When is your appt?
Fairy Dust - you’ll be our expert on hormone therapy- we’ll be joining you soon.
Feenix - big girl knickers at the ready for results- I’m ready for another whirling!!
Jem xx
Jem,
I have blood test, oncologist and pre chemo with nurses Tuesday afternoon and then physiotherapy at 8 am Friday followed by chemo at 10.00.
Morning ladies
I hope you all had a good weekend
I hope your return to work goes well this week Sally… steady away. And of course you’ve got a couple of busy appointment days, Tuesday and Friday and all they entail… I’ll be thinking of you.
Jem … you’ll have had a busy weekend with Birthday celebrations yesterday. Hope your arm has improved.
Gill… hope all goes well this week.
Fairy Dust … :smileylol: hope you had a good celebratory weekend.
I’ve pottered over the weekend, got back to walking, building up exercises again and that’s about it. Got a dressing clinic appt Wednesday and results appt for the week after but I won’t hold my breath considering the long delay I had before… I could have been on a world cruise the time it took :smileysurprised:
Good morning ladies.
Thought I’d pass on this link from a song that was banned by the BBC in 1971. This is from Noel Edmonds’ Show in 1985 when they still edited 2 verses out! Just thought we may need it for all our various reasons and appointments for this week (and next week Feenix). Another lady on another thread here remembered it when I mentioned swinging my knickers! Unfortunately, both Helena and I are old enough to have remembered it, don’t know about the rest of you. Enjoy!
m.youtube.com/watch?v=fnb0Fn1_iDc
Xxx???
Fairy Dust thank you for the posting the clip - hilarous??
After busy weekend celebrating eldest birthday, I am happy to say arm so much improved. Feeling like I have so much energy today, trying to pace myself. I am Off to Waitrose shopping today - sounds bizarre but I have had deliveries since February so quite excited really!!!
Busy week for you all, just planning on 1/2 hour hospital visit this week (Picc line flush). Planning on lots of ‘normal’ things this week eg school run.
Take care xx
DCB - yes busy week- hopefully not for me after last week! Sorry the tamoxifen has made you very emotional- just one day at a time . I can understand how you would almost look forward to rads- at the start of our journey never thought I would hear that- how things have changed. Which day is day 1 for you?
Gill- huge hugs your way for tomorrow- with you all the way - just make sure they don’t zap any of us- yuk us out f the way.
Sally - good luck tomorrow- just ask away. I felt strangely calm after my appointment as knew what was going to happen.
Take care all xx?
Morning
Thinking of you today Sally… xhugx
Dcb … rads underway next week is good. Glad you seem to be doing ‘ok’ on Tamoxifen
Everything crossed for a quiet week for you Jem … How was your Waitrose trip?.. hopefully you didn’t go too mad round the aisles … although on the other hand …:smileylol:
Gill… xhugx
I hope all went well today for all.
Feenix - went a little mad shopping -2 trolley loads- we have food?. I have a little too much energy so cooking today to freeze meals for next week. next chemo planned for Tuesday . Energy levels feel a little weird as not had this much since diagnosed in Feb. Xx
Hi ladies,
I’m all good to go for Friday. Got measured for the cold cap and due to my unfeasibly large brain needed the biggest size and best of all they were happy for me to not have a Picc line as I have good veins in my hand and what I’m having initially (first 4) is fairly quickly administered so that’s good!
Sally
Oncologist meeting was just to check I had no more questions which I don’t. asked about my wound and we’re happy to take my advice that’s it’s now fully healed so cancelled breast clinic wound check appointment for tomorrow.
Oops, that went a bit wrong!