Morning,
Yep still no SEs here thanks. It’s a bit cooler here but still dry with a nice breeze. The washing machine didn’t know what had hit it yesterday!
I’m still using the biotin and collagen shampoo I got for half price in Super drug and the hair is thickening up up where it went a bit thin so that’s good.
Feenix - Lush bar sounds good- I’ll pick one up when next near a Lush,
Sally - so pleased you’ve completed all physio- guessing you’re still doing exercises daily, you and se- fab.
The relief of finishing chemo long gone as suffering the worst se yet??. I’ve not been admitted to hospital which is great, as is the effect of pain relief forbone pain. But feeling really rubbish this weekend?- cumulative effect on my poor body - fatigue, feeling low, temp erratic but ok, aches, mouth sores and absolutely no taste at all? all I’ve done for past 2 days is sleep day and night. It
At least this is the last cycle and in a few days should be through it all.
Last clexane injection this evening - 100 done- Hubbie has been amazing at stabbing me each night. Do you self inject Sally?
Sorry not a more positive post. My friends and family are all so happy I’ve finished, I’m sure I will be in a couple of days.
Jem xx
Hi Jem,
I’ve done all my own clexane , and other injections. I’m on it till at least New Year which is a pain.
Your body is probably just heaving a sigh of relief the chemo is over and wanting a well earned rest. I’m sure you’ll bounce back in a day or two.
Hi feenix how you doing. Biking good also been walking as hubby is back up to speed and less pain. Now on the list for the other hip so all good he will be running this time next year. Everything just about settled down now at last emotions still a bit anyhow but certainly improving. Never ending journey it seems but getting there.
Hi Sally, Feenix and Gill
Sorry I’ve not been on for a while. Hope you are all good.
Sally you’ve nearly finished chemo- keep going not long now and you’ll be ringing the bell ???. My children organised (well started and I finished!) a party for family to celebrate the end of chemo - was good fun, the piñata took the brunt of our hate of cancer, chemo and se. Did you ever get a response from the hospital re your complaint? How’s your arm?
Feenix how are your recovery going? Are your scars healing well? Hope you are keeping up the walking - I’m only managing 3km now- the mysclws in my legs are struggling post chemo, but each day improving.
Gill are you still on the bike?
I’m now day 3 of rads- the team are lovely & I see the same ones each day. Emotion of the last 7 months starting to catch up on me ?. Moving on course starts on My bday - really hoping this will be helpful.
Love to you all xx
Opos- course starts on Monday!!
Hi Feenix.
Nah arm and shoulders pretty screwed. I have good movement but if I don’t do the exercises at least 2/3 times a day it gets very very tight and I’ve been told that probably won’t change and nor will the numbness.
In other news I’ve noticed loads of long thick hair regrowth.
It’s on my chin mind but you can’t have everything. 
The Veet is on it as I type.
Hi Jem, Feenix,
Yep still commuting on a daily basis. It’s fine cos I always work it so I get a seat. Last one next week…woo. Just hope I’ve not undone all my work by not cold capping this week after doing it for the previous 14 cycles. Just couldn’t face it when I already hand a banging headache. Typical though, today the cold is on its way out. Once this is over got to start on the tablets, I assume letrozole for me but not been confirmed yet then sort out my starting the drug trial of the new drug that prevent reoccurrence.
Sally ???I’m hopeful that your last chemo was as planned today- you’ve done it- what a marathon you’ve had and se have been kind to you?. Are you planning on celebrating?
What is next for you? If I remember you had radiotherapy before. Is it hormone tablets??
Today is the first day that I’m beginning to feel ‘normal’ - whatever that is! I’m very red from rads and still fatigued but ok.
Feenix where are you off to in January? Somewhere lovely I hope.
Take care Jem xx
Hi Jem
Yep done and dusted with chemo. No rads for me but hormone tablets plus new tablets as part of a drug trial. Not sure what they are yet but I’ll find out at my oncologist meeting on 7/11. They’re giving me a couple of weeks off before I start. I have a week off and we were going to go away but decided against it and are just going to have a couple of days of and about.
HI,
I’m ok thanks, just on train home from work. Since I finished the chemo though my feet are worse than ever. I’m stiff as a board and still numb as anything on my left side. It’s peeing me off that although I have movement the numbness hasn’t improved one iota since my surgeries in February and April. I still can only sleep on my right side and if I lie on my left it hurts my arm and I get constant cramp in my ribs. And I’ve not heard anything back from my BCN about the prosthesis fitting. No sign of any regrowth of eyebrows and eyelashes either, or the hair that I did lose.
I do like to moan don’t I.
Nope, not heard a dickie bird on my complaint since the last time I emailed a snotty reply to something they sent me. 9 moths and counting…
Hi,
My feet get better as the day goes on, so they’re rubish in the morning but pretty much ok by the evening. Wearing slippers at work helps. I finally have a date for my prosthesis fitting which is 6/12. Saw my ONC today, got my letrozole and adcall and he’s doing the referral to Guys for the MonarchE trial and they can do my Zometa as well. Got him to check my scar and shoulders as I’m still in quite a lot of discomfort and can’t sleep on the side I had the node clearance which appears to be getting stiffer despite my continuing the exercises. I also keep getting cramp in the ribs that side. He said that I have got much more movement than most peple manage to get back, but unfortunately I have a wider area of numbness than they’d normally expect and that won’t get any better. The scar will get tighter as it get older so it’s important to do the exercises, which I do at least 2/3 times a day. So basically I have to put up with it, feeling like I’m carrying something under my arm and the feeling of water running down my back that I get.
Hi Jem,
The trial is for a drug the doubles the length of outcome for advanced breast cancer so they are filtering it down to test what sort of results it gives for less advanced cancer, to prevent the cancer recurring. It gets taken alongside the letrozole or tamoxifen.