SURGERY APRIL 2018

I just bought a couple of the Peacocks ones and they are the most comfortable things ever
Far better than the Asda bras that I bought and wore once.

As yet I’ve not got any of the feeling back which is pretty annoying. After chemo I’m done apart from hormone tablets for 5 years. Can’t have radiotherapy cos I had it last time round in 2006 and you can’t have it twice.

Sizing seems ok to me. I got a 14/16 and it’s just right.

Hi Jem,

I still have most hair though there is a definite very sparse patch right on top of my head. There is regrowth starting there and I can brush my hair back to cover it. I bought Biotin shampoo and conditioner half price from Superdrug (3.49 instead of 7 quid a bottle) and it definitely makes the hair seem thicker. Mine also seems shinier too cos it coats it. Worthwhile investment. Glad you weren’t kept in hospital. Who needs that again!

Feenix ??ready on May thread your good news?delighted for you.
Your philosophical thoughts really helped me today - was up until 4 this morning crying and feeling utterly miserable (not me at all) but today was a much much better day?.
Enjoy, this journey is over and now time to enjoy each day ?
Jem xx

Great news feenix. Well done missy. Enjoy your time to your full recovery. Take care and speak again soon xx

Hi Feenix, today was fine but very long. Compensatory tomato soup and walnut bread for dinner will make up for it.

How did you find the Peacocks bras?

Hi ladies.
Jem glad your feeling better and almost there with just one more to go and can understand you not wanting it after how you have felt from this one. Just keep telling yourself last one - last one and fingers crossed for you it is kind to you. That light is there !
Feenix hope you are recovering well and getting back up to speed so to speak
Sally Wonder Woman your amazing. Have read a few of your threads in the chemo section and your amazing. How many left to go Sally?
Me. I’m getting there. Only thing I seem to be suffering from are the emotions which seem to be all over the place but thankfully not for long and then I’m ok again. Bit of discomfort in the boob area but it’s fine and doable. Have contacted bcn nurse just to double check it’s ok as had the pain for over a week now. Best be safe than sorry but I am sure it is all part of the healing process just need confirmation on it.
Ok I’m off for my exercise. Have bought a bike and go round the village at this time of the day as nobody about. Love it.

Morning all!

I dunno about wonder woman, I’m sure she doesn’t whinge as much as I do :slight_smile: For me the chemo is the easy bit. But I’m still suffering quite a lot of discomfort for the operation site, especially from the node clearance. Nearly 5 months on and half of my left arm is still numb and when I do feel anything there it’s pain. Although I now have a good range of movement back it’s painful. Every morning I get up and I’m as stiff as I was the day after my 2nd op.even with regular physio and doing exercises daily I still have tightness and cording under my arm.

Morning Jem, Feenix.

The scarring is improving but it’s more the tightness and loss of feeling . From my elbow up on the back of my arm and my shoulder is numb. And not improving .

I’m still waiting to hear more from them on my complaint. They wrote on 19th June and said they’d have a full answer within three months, not heard anything g else yet.

Hi Feenix,

Thankfully I’ve not put on any weight through this at all, not lost it either though. :frowning: Was chatting to one of the nurses at my work today about my scarring and numbness after the node clearance. She used to work in plastics and unfortunately nerves recover very very slowly and sometimes not at all. 5 bloody months I’ve been doing my exercises every single day and massaging the scars which are still not much better than just after the op. I must get the BCN to sort me out a prosthesis as I’ve still not had that done. It’s not going to be easy cos my surgery scarring is at an angle and still very lumpy and disappears under my arm with a bloody dog ear hanging down. To be honest I’m finding this much harder to deal with than chemo. I hate that I have such a huge area with no feeling on my arm and down my shoulder and back.

I’m with you on the sugar free jellies. They are one of my go to sweep treats. The yoghurt I have to avoid because it’s full of sugar. I had a hula hoop bug I just couldn’t do it any more. I just run up and down the stairs at work about 15 times a say.

Morning Jem, Feenix

Last chemo Jem, bet you can’t wait to get it over and done. I’m due to finish the week after you on 19/10. No rads for me due to having them before, and then it was 3 weeks worth which was easy with no side effects except what was like a touch of sunburn which was easily sorted with a ton of Acqueuos cream.

I’m also going to have hormones but no idea what yet as I’ve not been told or for how long.

Glad you had a good holiday. Just what is needed. I’ve booked a couple of weeks off work at the end of my chemo but we won’t be going anywhere. The breal will be nice though.

Right off to work. Too hot last night and kept getting cramp in my feet so little sleep had, thought I may as well get up and go in early.

I’ve done it ??I’m off the chemo roller coaster? ? now instead of waving as our cars pass Sally I’m stood on the ground cheering you on . It was a hard session today - cold cap was the hardest , I was violently sick after all over ? & I unlike me was really emotional after the chemo bag was finished ?. Chn rang bells at my parents house to celebrate ???. Now need to get through next 10 days and then need to let my hair down(well bit tricky with most gone)!?
Hubbie was so thoughtful today and has order last 2 bottles of champagne today - the champagne we had at our wedding 24 years ago- he’s not know for his romance! We now have 6 bottles -1 for each chemo cycle???. I’ve not drunk since diagnosis in Feb. Friends lining up to share?
Feenix I am so so pleased that you didn’t need chemo- 3 surgeries was hard.
Take care lovely ladies. ???

Morning!

Jem you must be so pleased that’s done, the rads is the easiest bit of the treatment. You can get right roaring drunk now :slight_smile:

Sleep last night was good. Had upset stomach yesterday. If my train hadn’t pulled into the platform at Waterloo east with toilets it might have been messy! I was asleep by 9pm. Woke at 4.20 to get son up for work the sleept till 5.50 when I got up. I have physio today so leaving work earlier than normal. Going to try and get my blood test done today too so I don’t have to get to hospital early Friday morning for it. They forgot to give me my green slip at last chemo so I’ll have to pop up to the unit to get one.

Have a good day ladies, weather not much cop for bike riding Feenix.

Hi Sally hope your stomach is much better today- yesterday didn’t sound great ?. Hope blood tests can be done today- much easier than going back . My bloods have remained fairly constant throughout chemo, well they are by pre assessment other times a bit bonkers, red blood cells are under 100 so might need some vitamins but not yet.
Good luck for Friday - I think your doing amazingly well, and to cold cap each week ? - I found cold capping really hard but kept going.
My little girl started Juniors today - was determined to take her and did ??but worn out now. She went in well and did middle surgery one- up and dressed by 715!! Long may that continue. Eldest back tomorrow- being spoilt by grandparents today.
Feenix - some of the ladies on the October 2017 thread recommended a Lush bar for hair- I’ll ask Shi which one.
Hoping to go for a walk today to sit by the sea.
Have a good day xx

Well done Jem and off that chemo roller coaster. Rads will be fine and will fly by. Celebrate ? well but don’t drink all 6 bottles in one go lol you will be a tad tipsy he he. Hope the next few days are good to you. But no more once all done. Look forward to seeing you in the rads thread and then into the first few weeks after rads which I started and has been great and really good for me and I am sure others that have joined us. Hope you rang the bell ? loud and clear and lovely your children did the same. Love the sound of their celebrations. Games and choccy the best. Sally hope you is better for you today and feenix your doing great. Hubby is doing well and now back on the waiting list for second hip. Love my bike and went ride down our lane with grandchildren on Sunday and was lovely albeit they thought it as hilarious nanna on a bike. Had both over the weekend and had lots of fun and little Harriet (3) Monday said to me “nanna is you boob better now”? Said yes it is a lot better followed by her reply well that is very good but I will still be very careful with you. Melts your heart. Take care all and speak soon. X

So I have been discharged by the physios cos I have regained a good range of movement and strength. I still need to do the exercises daily pretty much forever as the tightness and numbness is unlikely to improve at all and not doing the exercises will mean it slips backwards.

So for anyone wondering whether to have an ANC, I’d say if they don’t say it’s strictly necessary, don’t do it

Hi Sally was thinking earlier. What happened with you complaint? Was anything ever done?

Hi Gill, I got an interim reply in June which was just full of platitudes. I should get the full reply with 3 months which gives them another 2 weeks. I’m going to ask for a meeting for when I’ve finished chemo cos I want to rip them a new one face to face.

Morning ladies sun shining here☀️Beautiful down by the sea last evening.
Feenix you asked for recommendation re hair bars - Shi and some of Oct chemo starters recommend the Lush red dot- I’m going to give it a try too. Let me know if you like it.
Gave a good day all xx