So delighted to read your positive news Catherine. Just thrilled for you. I hope you had a good night’s sleep after all the horrid anxiety of the last few weeks.
I am a bundle of nervousness and worry this morning, but that is to be expected I guess. 3 p.m. seems a long way off and also horribly close . . .I will be drawing on the courage, support and strength in this thread today. Thank you all for being there and understanding. xx
Lots of fingers crossed for you today Anna will be thinking of you later, big hug. Anyone else who is also getting results good luck.
Hi Kitkat, I will have a reconstruction and my plan is a DIEP ( the tummy tuck bit sounds ‘good’ )don’t want LD as want to keep my back and shoulder strength…but time wise depends on radiotherapy.
If not needed I will try and get the recon done asap, if rads needed then need to wait 12 months - will find out Monday.
Hi all you lovely ladies, I am so sorry for the delay but i went back to work yesterday (yes i know i’m mad) Got the most amazing news Monday results day. The tumour was 11mm (9mm at biopsy) still grade 1 and 2 lympth nodes taken all clear. Also, it seems i was diagnosed with invasive DC but since found out it is Tubulor which is a sub category of IDC rare but good rare. ER+ HER 2 - so radiotherapy and hormone to be discussed at oncologist follow up in a couple of weeks. I am not so sure about HT as it only increased my odds by 0.5 what’s the point? We are so over the moon with the news. Could anyone advise if i can now use deodrant and wear a bra? Or do i have to wear non wired?
Thank you Catherine and great news on your results and becoming a Grandma xx
Sally that is fab news on your scans x
Fingers crossed and hugs for you today Anna xx
Feenix hope your wound is ok nowxx
Hello to everyone else or anyone i have missed. Lets keep the positive news going.Thank you for all your support xx
Fantiastic news Trishy, hope you have celebrated.
I’m rather anxious today but had friends pop in and ring all day. Now thinking I just want to know results now so I don’t have to go through all the ‘what ifs’ racing through my head. Xx
Just home from a positive appointment. They removed all the cancer (grade 2 ER+), significant shrinkage from chemo I had before surgery and analysis showed only around 5% of the cancer cells had survived chemo. They took 12 lymph nodes of which 6 were affected and they are confident they have got rid of it all with some clear ones to spare! No need for any more chemo (phew) and onwards to radiotherapy/hormone therapy. Scars healing well and dressings off which feels strange but good. Huge thanks for all your support and kindness everyone. To all those anticipating surgery and results, sending strength and thoughts - do use this thread as much as you want/need. It has been so helpful to me. xx
Hi all. Thanks for the message kitkat and so pleased for you. You will know when you are ready to go back to work. I am still working but from home which is great and work is my way of coping with this dam thing. For me st the moment emotions are all Over the place. One day fine next day or by the end of the day the anxiety is there eating away at me. I am waiting on oncotype test coming back and appointment is not till 9th may which seems a lifetime away. The thought of maybe having to have chemo frightens me so much and the worse thing is I have convinced myself that’s what it will be which in someways is good so will be semi prepared but in other ways it’s not so good for me. I just wished it was straight onto rads then at least I would be on that final stint. Had a good day today and hopefully by just putting this on here will continue into a reasonable evening and no melt downs. The waiting game is not good. So pleased for all you lovely ladies on your results this week. Have a good evening all. Xx.
Annakarenina- great news95% - was that a record. You’ve had a long road to this point - agree with Ladybowler the light at the end of your tunnel is getting brighter. Hope you will celebrate this evening. Do you have a date for radiotherapy?
Catherine - thank you for your kind words and thoughts for tomorrow.
Xx
Good on you Trishy getting back to work. I went back within a couple of weeks of my mastectomy and it was nice to have normality back, at least until the second op. I’d have gone back again now but with the wound not sorted I’m going to take it easy until my holiday then see what’s what after. I have chemo, radiotherapy (been there done that so I know for me that’s not a biggie) endocrine therapy and zometa to look forward to so and hopefully I’ll be able to work at least some of the time. The radiotherapy when it comes will be at St Thomas hospital which is about 2 minutes from my work so hopefully I can just pop out for that then go back.
It was much simpler first time round with just surgery and radiotherapy.
And more positive news for AnnaKarenina :).
It seems like everyone is getting good results lately
I’m “Ok” Catherine. Not been on line as I start googling stuff at the moment because of the weird area on my breast and it’s not helping. I’ve managed to speak to BCN and they’ve spoken with my surgeon. She doesn’t seem concerned and op going ahead on Sunday. They suggested I go to see my GP and they’ve given me antibiotics in case it’s an infection. I’m not as bad as I was with it the other night, but I just feel exhausted this week. Never understood anxiety until I got this diagnosis. I’m so glad I stopped work last week, as I couldn’t have coped this week. I’ll be ready for my sleep during the op on Sunday!
Some good news on here, which is lovely. Let’s hope the April Op Club is a lucky one.
Thank you so much everyone. It has been a tough and long road to get to this point having had chemo before the bilateral Mx, so I am immensely grateful to be here. Who’d have thought the prospect of radiotherapy and ten years of hormone treatment would be so thrilling?!
Thinking of all those still waiting for results and anticipating surgery. Sending positive thoughts, but here to listen if the anxiety gremlins get too much. Don’t be on your own. xx
l’m going back on the 08th May as was signed off for 4weeks so decided to take them, although I have a work lap top and so doing admin stuff from home. Was even answering emails when in hospital as could access these online, I know sad but I had decided to ‘keep’ certain jobs and do from home to stay normal, well as normal as I can be…
Fortunatly my job is 50/50admin desk and site work so should be relatively easy, hopefully.
I would have gone back on Monday except now have an oncology appointment and also as I am moisturising my scar it seems uncomfortable under my bra, not painful not really tender can’t think of an appropriate word, so mostly go without around the house and garden.
Hopefully this will have settled down when I go back as don’t want to be fidgeting to much- glad it will be a 4 day week with the bank hols.
Hi All
Results all in. After a mix up with times I eventually went to see consultant - by this time I was so anxious and decided the news could only be terrible terrible.
The good news first- I’m now disease free and decision to have mx was the right one as there were multiple small idc tumours - grade 2-and medium grade DCIS, small margins but margins. ‘They’ are all gone and won’t be able to harm me anymore. The ontotype result was 5- this would be no chemo.
However due to my age and multiple tumours the MDT advise chemo and radiotherapy.the full treatment for me - WLE, SNB, mx, reconstruction, chemo and radio. Holding onto phrase ‘disease free’ and ‘we fully expect you to be fully well’.
So I’m off to see oncologist ASAP but no more surgery needed. I’m doing OK as had feared even worse. Plan now is to focus on recovery, will need at least another month. Really need to get some ‘normality’ back for short while before chemo.
Off to see plastic surgeon on Monday to check his handiwork and then probably week after oncologist- think we will use hubbies private insurance again.
However I don’t think we will be going on planned holiday to France with the children , thinking maybe seeing a bit more of England this year.
Thank you for your posts on here, really feel that I’m not alone- have amazing friends and family, but they sometimes don’t fully understand. You are all truly amazing.
Xx
Hi DCB really sorry you have to wait- when is your results day now? We will all be here with you. Do you have something positive to do each day- if not plan a little treat. Sending lots of hugs to you xx
Morning ladies hope your are all well and planning a good weekend after all the great results this week. I am really struggling at the moment, crying and feeling pretty miserable which is not me. From the beginning of this I have been very positive and took everything in my stride knowing I was and stil are in the hands of the experts. After my results which were all good clear margins not in nodes. If it was rads next I would still be fine I am sure. But had the oncotype test offered and waiting on results. It is the thought of chemo that is just eating away at me. I also no I am cancer free so to speak and all to follow is the preventative and the road to the end. Those ladies who had chemo, how did you cope with the thoughts of it please. I can normally give myself a good talking to and I am fine and get on with it but this is day 3 and it’s a bit draining. Any advice would be very much appreciated.
Morning Gill
Sorry you are struggling. My story is very similar to yours and have tried so hard to my normal positive self but anxiety has been hard and is back with vengeance today. Any advice from those who have faced and come through chemo would really help right now. I thought I would give myself today to try and come to terms with it and then start planning from tomorrow- but where do I start?
Gill did you look at the Oncotype web page? I found this helpful as I needed to know information. Sending hugs with this message, have you got anything planned for today to try and take your mind off it? Xx
Morning gem. So good to know I am not on my own and sorry you are feeling similar, it’s a right pain in the ass specially when I am a pretty strong person but feel I am crumbling. . Yes I have read up on the oncotype and just hoping it is low but my friggin mind keeps telling me different. Today all the family and grand children are out for a celebration meal for my results from surgery being good. Easy to cancel as feel all I want to do is stare into space which seems to be what us ladies do, but… can’t be done need a good shake and get through it and as always we do. Have you had the oncotype test? We will get through this and just having a blip. Bloody anxiety gremlin needs to bog off!!! Hope your gremlin goes and tomorrow will be better.