Thought I’d start a thread for all of us having surgery in July. I’m also in the April thread, and the May thread… Ive had really great support… still do xx
Good luck with your op Feenix.
Jazza … how are you doing … you’re for surgery this coming week if I remember correctly
xhugsx
I am still waiting for a date for Mastectomy which should be very end July or even early august as final chemo is next week. No one has discussed anything at all with me whatsoever. Since the surgeon told me I would be having chemo the only contact I have had with anyone is two appointments with the oncologist
Coping is extremely difficult as I have no idea as to what is going on
Feenix,
You know we’re with you. We’ve already been through loads together, try to look on it as a blip on the way to recovery.
Sally x
Hi Feenix and cdc,
I am still here… Been keeping up to date with posts but, to be honest, I have really struggled with the thought of another op. I just want to move on to the next stage of treatment. I feel like I am stuck in a hole that I can’t get out of. Been here since March diagnosis and it is just so so frustrating ?.
Have fully thrown myself into work to try to take my mind off it all.
How are you both doing?? Your next op Feenix must be soon.
How are you cdc? Once I know exactly what stage 2 of treatment is for me I may well be on contact for some chemo advice.
Op 3 for me is Friday. I will be asking my surgeon to take a little bit more than they think in the hope they get it all this time.
Have a good day. I am seeing a nutritionalist today to discuss diet but as I am hormone receptor positive I want to understand which foods etc contain hormones. Eventually I will end up on tamoxifen… Don’t see the point in suppressing hormones to then put them back in my body through diet.
Have a good day xx
Jazza good luck on Friday I will be thinking about you and fingers crossed that they finally get the results you need
I am also hormone receptive and am now taking Letrozole. I am becoming paranoid about what I eat and worried that I am just putting back the hormones we are trying to suppress. I would be really interested in knowing how you get on with the nutritionist.
Sending you and all you other ladies big hugs. Chris x
Hi Jazza,
I can only echo Feenix. Hope you are home, comfortable, pain free and being waited on hand and foot.
Sally
Minnie, if I can just jump in here, I found telling people at the hospital in no uncertain terms that I felt like I was dealing with a bunch of effing idiots who didn’t seem to be able to organise a p up in a brewery seemed to help. We’ll it helped me anyway. I said that to more than one person and also told them that when they mess up and keep cancelling appointments I don’t want a sympathetic tilt of the head and a watery " very sorry, that shouldn’t have happened ". I want stuff done, I want departments to talk to each other. Don’t make me 2 appointments three hours apart in the same hospital that is nowhere near home and expect me to be happy.
You have to be really firm about the way you are being treaten. Mine improved when I told the consultant I didn’t have much confidence in how I was going to be treated if so much was going wrong. That seemed to do the trick.
Minnie, if you feel you can’t, can you take someone with you who will give them what for? Do it in the clinic, loudly in front of other patients.
Hi
I’m new to the forum (and forums in general so if I get things wrong I’m sorry) having been diagnosed a couple of weeks ago.
I’m scheduled for a mastectomy and SNB on Friday so thought I’d pop in and say hello. On the whole it’s not been as bad as I imagined in my nightmares (so far but then I’ve not really started treatment yet). I have had an occasional down day (usually Sunday for some reason) but I know from reading on here that’s normal. I won’t know until I get my results in a couple of weeks whether I’ll have to have chemo or radiotherapy or both but I do know I’ll be getting hormone treatment.
Hope everything is going as well as possible for everyone at the moment.
Welcome Claire, you are certainly not alone - lots of us out here in cyberspace who understand how you are feeling and have been there /are there !!! Lots of support and advice here .When you start chemo join the chemo therapy monthly threads you will get lots of support forum.breastcancercare.org.uk/t5/Chemotherapy-monthly-threads/bd-p/Chemotherapy_monthy_threads
@minniem Have you considered a Therapeutic Mammoplasty? I got a 2nd opinion privately and have now transferred my surgery but on the NHS.
Thanks Feenix. Surgery was completely uneventful as far as I’m aware. I didn’t see the consultant after (or if I did I don’t remember). It’s been a remarkably easy recovery so far but I know it’s early days. I’m hoping I’ll be allowed home tomorrow.
Hi Jazza … just thinking about you … sending a hug xx
Hi all, very new to forums and normally quite private so please bear with me. I was diagnosed in June and had a WLE with nipple duct and sentinel node removal on the 13th July. I’ve been very scared as my mum succumbed to bc 11 years ago, but have been assured that things have changed significantly since then. I had my results last Thursday and was told that I had the 30mm tumour removed and had clear margins, the surgeon also found a 2mm tumour in the nipple duct, but now all is clear and the three lymph nodes she removed were also all clear. Which was great news until she said I may still benefit from chemo. The oncologist is on holiday so it may be a couple of weeks before I know the outcome, all I do know is I was grade 3 and ER5 PR0. They didn’t have the HER2 results back then. I seem to have been recovering ok but did some travelling in a car this weekend and am now in a fair amount of pain with what I think is seroma. Is this normal? I’ve been faithfully doing my exercises but the past couple of days it’s all been feeling tight again. I also have another question as I can’t seem to get a definitive answer and waiting for the oncologist is driving me nuts! Are there different levels of chemo? Mine is I’m guessing just preventative, so am I likely to have a milder treatment or is it all the same? Sorry for first long post, just a bit scared and confused! Thanks for reading
Hello all, and thank you for all your good wishes! Had my surgery as planned (L side mastectomy and full lymph node clearance plus silicon reconstruction) on Monday.
Going in felt rather like being on a rollercoaster: that long slow climb to the top before hurtling down, just sit tight and hope for the best! But had excellent care both in the operating theatre and afterwards.
Feel pretty sore now but nothing that paracetamol can’t deal with, and was also lucky enough to share a ward at Guys with a lovely fellow traveller on the cancer journey - we laughed and joked about all the absurd indignities we’d had to agree to over recent months…
Hope you guys are also rallying well from your surgeries. Hugs to all, onwards and upwards!
BRx
Hi,
Just looking in from April thread. Feenix when is your surgery? You seem to have been on that particular treadmill for ever!
Hope everyone else is doing well. My sugeries were February and April and seem like a lifetime ago. Rosie, glad your experience of Guys was better than mine. I got shoved on a urology ward and sent home with the wrong sized drain bottles. For anyone moving on to chemo soon , although it’s an individual thing, try not to stress about it too much. I’m a third of the way through and it’s been fairly easy so far. With the cold cap (which has been most welcome on the really hot days) I’ve managed to keep the majority of my hair too.
Sally
Hi all just waned to say comments re cold cap in chemo are really helpful, I have had some people who had cancer years ago telling me horror stories, and not to bother with cold cap but I want to give it a try so thanks! Kerp it coming in! Helen