Hi Feenix you are good painting fences! I hate that. I slept ok, hate being back onto sleeping on my back though.
CDC i also have never been given a stage either, come to that i never get copies of anything either. I did ask about my stage on Monday and bcn nurse said then dont really use them here and just go by grade. She said the Onc woukd know though if i was interested, j think id worry too .much. i havent had any predicted survival rates either nor have i looked that terrifies me although OH says nobody knows their survial rate BC or not! I spend long enough worrying ahout surviving at the moment, struggling to get it out of my head. Perhaps a biscuit will help.
Ive taken mh nAil varnish off now and my nails have so many ridges and are discoloured and look like i smoke 40 a day … Yuck .Might paint them again.
Hello all!
Your consultation sounds very confusing CDC! What a totally pointless thing to say regarding treatment in another country and then contradicting his/her own opinion by suggesting bi lateral mastectomy is the way to go!! I’m not surprised you were confused when you left. I hope your appointment on thursday proves more useful.
What a shame they didn’t have your foob size Jean, hope they can get it soon. Did you get to try some and did you find them comfortable? Painting fences is very impressive. I always used to be the one who did it in our old house but we are in the country now so have hedges. Lucky for me my OH cuts those!
I’ve never been given a stage either Kip. I was told it didn’t mean much as everyone is different, I did work out according to the BCC info I was 2B. But I think the fact it is (was) grade 3 is a bigger problem!
When I took my nail varnish off my nails looked nicotine stained too but that fades fairly quickly. The ridges do take a while, mine have just about gone now and are actually in pretty good shape.
A friend of mine came over this afternoon with guess what? A packet of choc digestives! We had a couple and she left the packet which I’ve finished off tonight! I actually feel sick I’ve eat so many!
On a plus side I need the energy as I’m going to walk up Pen y Fan tomorrow which is the highest peak in South Wales! It’s training for my trek in Feb, I’ll let you know how I get on.
Have a lovely evening, enjoy the biscuits and mini stollen! X
Feenix, ive been eating stolen too!! And biscuits… Also doing the exercises, arm up to shoulder height so far! Feeling pretty good at moment.
Cdc glad you are feeling SE free thats a relief and excellent idea to worry about surgery later. Get through chemo first. As for staging etc what is m0?
Michelle good to hear nails return to normal, my thumbs are flaky at the ends.
Looks like the biscuits are catching us all… yummm
Anyone know what to do re scarring from my SLNB that my surgeon saw inside? I used bio oil for 3 months. I will ask him next week what the implications are.
I do have 3 bras from Asda (though not that one which the lacy bits would stop me wearing)) two which are cotton which would normally be fine but they are cut too high under the arms so rub.
Hj Feenix, my mum knits mine on 2 needles, says its quite easy once you’ve done one. Well done with the Boudicc a bra. Im still sat in bed with the darn drain attached, ive done the exercises but would be easier without the drajn. My last one had a really long tube so i could sit in the bath and drape it over the side and stand it on the floor. This one is so short it doesnt reach so just makes everything hard! It was a chilly night here to but perfect for firing up the wood burner… lovely
Ladies have you read the blog Life after Lola… mai7 has written it and shes added a link on the October chemo starters page (latest post)… She has some links to sites for bras, i thjnk jn the surgery section… Might be worth a look?
Hello, sounds like everyone is doing ok but don’t blame you beings fed up with the drain Kip. Fingers crossed it’s out soon.
I also read mai’s blog in the early days. It gave me a bit of hope when I needed it.
I did get to the top of Pen y fan. I was breathless but so was a friend, so that made me feel less like it was because of treatment however on Friday I got the beginnings of a cough and cold and haven’t felt great since so probably over did it. I find it so frustrating, in my head I want to go on longer runs and walks but my body is letting me down. Hopefully when rads is over I will start to gain energy.
I’m impressed at you knitting your own knocker! Where else could you say that?!! I taught myself crochet last year but every pattern I’ve followed ends up looking not quite how it should!
My eldest has been home this weekend, it’s lovely to have her here but wish I’d been feeling better. Next time she’ll be back will be Christmas!
Beautiful day today but it has definitely turned into wood burner weather! Happy Sunday everyone x
Hi Ladies, well done Feenix with the KK… its coming along, once you have done one its apparently easier (according to my mum, who is currently knitting her own farm!!).
I’m feeling pretty well at the moment, still stiff and a bit sore and still attached to the dreaded drain, no sign of it coming out today either, still draining too much grrrr. Otherwise ok, just trying not to think of the results next week.
Sorry to hear you are feeling so fed up Clare, I’m sure the flamin’ steroids will be to blame, rest up and you’ll soon bounce back again. I feel I haven’t seen my daughter for days, she is too in Luurve with her boyfriend to hang around with her old mum, shes really become a teenager, out shopping, chatting with freinds, make up… eeek when did that all start. I guess its good she’s keeping herself occupied, but she did ask again last night “when will you be back to normal”… what a question to try to answer. She hates the drain and I think that keeps her at arms length too. Hope you little one is ok and your OH is feeling better, funnily enough my OH has been under the weather too, and thinks its a build up of stress and anxiety over me… It must be hard to watch someone you love go through this I guess. I’ll give him a break and allow him to wallow for a while :smileywink:
Regarding earlier the conversation about post operative bras I have asked a friend of mine who had MX 2 years ago and she buys hers from a catalogue called Nicola Jane (on line website). They aren’t always the cheapest but do offer all sorts of styles and fabrics. My friend is large busted and finds that when she bends forward (she is a nurse so has to lean over patients) sometimes she would flash a hint of lopsided cleavage and Nicola Jane do bras which have a built in panel to prevent this, worth looking at. She also buys from M&S and Debenhams but N Jane is her preferred outlet. They also do swimwear, clothing and have a range of bras not only for MX but for reconstruction and radiotherapy. I feel some online shopping coming on and I can’t blame the chemo brain now! Eeek. Just taken a look at the website and lots to offer. Now where’s my credit card…
This really is a rollercoaster we are on isn’t it CDC and I’m not a fan of any type of rollercoaster and especially not this emotionally and physically draining one. You really do have a lot of uncertainty with your treatment to contend with and I think that makes things harder. I know our OH’s are also going through a lot but I’m sure yours will be ok taking the reins briefly.
I’ve just had a few tears myself in my rads weekly review. She’s referred me for counselling but I think I’m just having a low day. I didn’t walk this morning because of my cold and it makes such a difference to how I feel. Having said that I also find you hear people saying rads is a walk in the park but it’s not. I feel like a patient again going to Velindre everyday, putting the gown on, sitting under a machine. I was feeling very positive before rads started and now I’ve started to think negatively. It doesn’t help that they are often running late so more time to dwell!
Kip it sounds like your daughter has a distraction for now! I hope the boyfriend meets your approval! The drain is a very visible sign that things aren’t ‘normal’ so hopefully she will feel a bit better when it’s out.
Jean your Kk is looking great, you must post a picture when it is finished!
Sorry for being on a bit of a downer but this is just hard sometimes isn’t it? X
Oh Michelle dont apologise, you are allowed down moments, we wouldn’t be human if we didn’t! All the treatments are tough in their own way. Lets face it what is normal about lopping of bits of your body .filling yourself with poison or frying yourself on a weekly basis in a machine?? Surprising we dont have more melt downs actually. I find it hard being back in patient mode at the hospital as it bringx the enormity of it all right back into reality. some counselling may be good, k think. I will ve gojng on the movjnt on course if i can once treatment is finished,
.dont be hard on yourself. Leg fhe tears come if uou need to, sometimes a good cry is what you
Thanks for your kind words Kip, you are so right being back on patient made brings the enormity of it all back to reality. That’s exactly how I feel. People outside of here just don’t get it so it’s so great to have you lovely ladies xx
Morning ladies, and thanks Charys for you lovely words. It is so encouraging when you find that everyone struggles along the way of this journey… I know I do, one minute up the next down again, there is nothign wrong with a good cry/rant I find!
Michelle - glad you are getting out for a walk, thats what I find helps me too, I go out regularly with some other ladies and I rant and moan and they are now experts in all things BC!
Feenix - Yes I bought my Mum a book called “knit your own farm” for her birthday as she loves knitting and goes stir crazy if she hasn’t got a project… hence I have a supply of KKs! There is every animal in the book plus their babies, so far she has almost completed the cow, its lovely, not sure what she will do with a knitted farm afterwards by hey! Excellent that you are going on the Moving On course, you will be able to tell us all about it. I’ve heard good things about it.
My Klingon is still klinging on… and wont’ be budging today either…still not down low enough to have the drain removed…1 week today and counting. The weird underarm feeling is so strange too, I remember reading somewhere that one lady said if felt like “somebody had wedged a book under there” and I thought “what?” but now I get that exactly… thats what it feels like. I feel like my arm is twice the size… but when I check it isnt at all just feels weird! Oh well I see the BC on Friday for dressing inspection so I can ask her to check everything then if needs be!
Pouring with rain here… so that put pay to my quick walk round the block before work… oh dear, maybe I’ll have a biscuit instead…:smileywink:
Well done Feenix with the salad and only a couple of squares of choc… i can never manage to only have a couple of squares… one just leads to another. I started off really well yesterday, normal breakfast (porridge and fruit), then made vegetable soup for lunch… then in the afternoon got the nibbles and ate biscuits and then by evening watchin the Bake Off… had to have a cake… grrrr… oh well will try again today.
Oh dear Kip your Klingon is really Klinging on. I really hope it slows down soon.
Well done on salads and home made soup. When I was growing up we used to have pease pudding, from a tin, it was the 80’s! What is it made from? Is it chick pea’s or lentils? I haven’t had it for years!
I’m like you Kip I’ll never stop at a square or two of chocolate, even dark choc! However my cold seems to have suppressed my appetite which is highly unusual for me! So I am making the most of it as I’m sure it won’t last for long and I’m trying to make sure the food I do eat is healthy. My one treat is a hot chocolate in the evening. I don’t buy the sugar laced one although it probably still has a few calories but it does help to take the edge off the sweet craving.
Kip when I first had my op done I described it as feeling like a bowling ball under my arm, then it went down to a tennis ball now it just feels a bit funny sometimes, so it is improving! Keep up the exercises you’ll need the flexibility if you are having rads.
I’m trying to summon the energy to do a list and go to the supermarket. That way I can prepare dinner this afternoon. My rads appts are mostly between 4.30/5pm, so with the traffic and the delays it’s an effort to cook when I get back.
The weather here is cold and fresh, it’s nice to have the sun shining. Enjoy your gardening Jean, hope you have less drainage Kip and CDC hope you are feeling better, have a good day x
I used to sing that rhyme at primary school! And that was in the south, although I don’t know many other people who have eaten it! My mum used to do it with gammon.
I didn’t even get as far as a shopping list this afternoon, I went to bed instead so it’s jacket potato tonight!
The weather has turned here now and is pouring, I wish my appts for rads weren’t all so flipping late! 5.15 tonight and then battle the traffic. X
