SURGERY SEPTEMBER 2018

Hi all,

I had surgery in September but I didn’t find this forum until a week ago.

Ive just found this page and read through most of the posts.

It is reassuring to know there are others ‘like me’ out there ??

I had a double mastectomy with skin and nipple saving reconstruction.

Histology came back as grade 1, 2 tumours, biggest 7.5mm

No radiotherapy nor chemotherapy.

I’m taking tamoxifen, healing well but did have a localised skin infection a few weeks ago and panicked that my body was rejecting my new boobs,

I find out tomorrow whether I need hysterectomy, tube & ovary removal (fibroids not cancer)

I’m mostly feeling positive, not emotional and trying to get my fitness levels up a bit.

 

Wishing all of my ‘September sisters’ well, Lorraine xxx

 

Just back from my gynaecology oncology appointment.

We discussed full hysterectomy inc tube and ovary removal - due to a large fibroid and ovary removal will mean I can switch from Tamoxifen to Anastrozole.

They will try to push for an appointment soon as I am still off work and have been advised that it is better to have one prolonged period of sickness than 2 shorter ones.

There may be a wait of up to 3 months! They are not as speedy as breast care.

Can any of you lovely ladies give me and tips and advice about the surgery?

Also Tamoxifen/ Anastrozole.

I have had great advice from my hospital but it is good to hear from people who have been through it, or are taking the medication.

Thanks, Lorraine

It’s not the fibroids that are the issue with the breast cancer, it’s the ovaries. Leaving the ovaries means oestrogen keeps getting produced. If you remove the ovaries you remove all possibility of future pregnancy anyway.

Thanks ladies, 

both gynae and breast care are recommending ovary removal. They may have just left my fibroids alone or monitored them if it wasn’t for the breast cancer.

I’m 51 and my husband has had a vasectomy so pregnancy is not on the cards!

I have 2 lovely children and think my ovaries and womb have served their purpose!

I hope you are well following your surgery and treatment xxxx

Hi Guys, so sorry i’m Catching up. My mum broke her hip and it was in front of me. It made everything I went through look like nothing. She’s 77 and I lost my dad 18mths ago so it hit her hard and me. It’s been such a crazy horrible 6 months. So that put me back a bit as I was dealing with everything well. I hope everything is going great with all the ladies. I’m catching up right now xxx

Hi ladies
Just wanted to pop in and see how you are all doing now
Time is going quickley even though it doesn’t feel like it
Cycle three of chemo for me tomorrow
Had my genetics test last week but that’s about an 8 week wait for results
I’m praying with all I have it’s negative , not because the prospect of more surgery but for my girls xx

Fingered crossed for you Kate that the genetics test comes back negative, and well done to you for progressing through chemo…all of you chemo ladies are my heros!!!
xxxxxx

I won’t lie , it is not great , I have had a reduced dose this time to see if it reduces the side effects , fingers crossed
Pretty much been asleep since 6 last night which isn’t a bad thing as when asleep well you don’t feel ill
Good to see you getting on ok
It will be feb before I get the gene results but time in some sense stands still but flys so will be here before I know it xx

Having had the original mastectomy in Sptember, they then found cancer in the other breast on MRI and biopsy. So ended up having another mastectomy with ANC of the original side in November. Go to see oncologist tomorrow to talk about chemo and radio. At least that’s the surgery finally finished with!

Kateday - so sorry its so horrible for you ?- how many more ‘sessions’ do you have to have? I agree about getting loads of sleep -will do you the world of good, and also I agree in lots of ways time seems to stand still yet flies by at the same time. I find myself wishing my life away some times waiting for the next appointment so I can move forward a little more.xxx

Pastasmissus - You’ve been through the mill for sure - glad all the surgery is done. Good luck for tomorrow ?- be sure to let us know how it goes. xxx

start chemo 20 December!!!

Glad to get started, but it’s a pain it’s before Christmas. But rather then than wait until 7 Jan. Saw the oncologist today, having a think about whether to do 3 FEC then 3 FEC-T or just to stick to FEC.

Appointment with hairdresser for Wednesday to get my long hair cut very short!

Hi
I have five more to go as have four EC then four T
Will have a pic line fitted before the next one
Pastamissus
You have come so far
I cut mine short then shaved when it started to fall out
Day six post chemo three and starting woth a cold
Keeping eye on temp every two hours
Paranoid as other half in x mas do and he deserves a good night out xx

Hi Everyone. Well it’s been a whirlwind. Mum really knocked me for six when she broke her hip. Then,
that’s when everything hit me. Was warned by the nurse that it would.

Feel v guilty as a lot of ladies have had to go through a lot more than me! Also a lady I had surgery with, has to have Rads and Chemo. But I think you get through everything on adrenaline and when everything settles down - Pow!

I suffer terribly from depressiob so it’s been a very tough road. I’m getting the help I need. But moving house tomorrow doesn’t help. So once I’m in, I can enjoy.

It’s been great reading up on your progressions. Alex xx

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