Hi Debs!
Little blip this week when I went to see the onc - path reports x3 said different things, and it appears that I do have nodes involved so I’m having TAC starting in about 2 weeks…
My prognosis was 50% raising to 68% survival over 10 years. I’m having a bit of trouble with that… 1 in 3 don’t make it… I’m not a betting girl, but I wouldn’t bet on those odds if i were!! Still, I aim to be in that 2 out of 3…
have booked my wig appt, and bouth scarves from H&M - chose long not square as going to go more turbany than chemo-head… And ditto 13 year old daughter…!
Love Td x
HI Td
sorry to hear about your little blip I am not sure what TAC is but I am assuming some sort of chemo.
I must admit I don’t do the whole prognosis thing, I just don’t feel it is relevant as I am going to get over this in fact I told my oncologist that I consider that I have it no more as they have removed all the tumour and the two affected lymph nodes I am just going through the motions of having a ‘clean up’ just in case. Its all just numbers!!
I am taking my sister with me for wig fitting, should be a bit of a laugh with her.
Have a good weekend
Debs x
Hi Claire sorry to jump in on this thread but I had a similar experience with my wound. I took a wound infection that caused my wound to open up. It poured pus out for days after that. Really not nice. The it started to fill with seroma. As a result it took weeks for my wound to heal and drain but I’m finally there and startting chemo next Wednesday.
Sorry if this is a bit doom and gloom but it’s really important that your fully healed before you start further treatment. I though I was well enough to start weeks ago but it’s only now I’m feeling better that I realise that I wasn’t and they have done the right thing delaying it. Hard at the time but right as I now feel strong enough to cope.
Good luck
Jackie B
Hi Jackie
Sorry to hear that you too had a rough time with your wound. Its the pits isnt it. I saw the BCN yesterday again and she doesnt think its infected but its still dripping. I feel like a milking cow at the moment and cant take off my bra without leaking everywhere! Im already 4 weeks post-op and am keen to getting going again but am trying to tell myself to be patient. At least the sun is out today and I am going to go out with one big pad on and try and forget things for a bit.
Hope everything goes well for you with the chemo on Wednesday. Ill think of you.
Claire
Hello Ladies
Sorry to butt in but…
I had surgery last sat, lumpectomy, re-shape and full node clearance. All is going well - i think except for a v sore arm.
Anyhow its a gorgeous day here in Glasgow and I want to go out for a wee while with my neices. Do I still have to wear those horrible blue socks? Or should I just live life on the edge and take them off for the day?
All comments welcome
Cheers
Ali x
Hi Ali
I’m 7 weeks post op and my arm still feels a bit weird not sore just odd! I stopped wearing my socks after a week as I felt OK and my feet weren’t swelling up. I’m from Glasgow originally and my family still live there but I moved to Dumfries 20 years ago. Still up regularly visiting. In fact I’m going to have my Rads in the Beatson when the time comes.
We are going out for lunch with some friends and I’m really looking forward to it.
Enjoy your day.
Jackie B
Hi
Just had a bit of giggle as I must the rebel here. I had my op 4 weeks ago and I only stayed in hospital for 1 night and when my hubbie picked me up to go home I got dressed and took off my gorgeous socks. Well nobody told me to keep them on! Ooh dear well I’m still feeling ok, promise. Best not follow my example though.
Really enjoying this sunshine.
Claire x
Hi Claire
Hows your leaky boob? Is it any better ? I hope so.
We are going out for tea as it’s my eldest sons birthday tomorrow. Didn’t think I would feel up to it tomorrow as I’m geting my Hickman Line in at about 1.30. Met an old friend today who was DX 5 years ago. Shes doing great so it was really good to speak to her. She aslo had a line put in and was very reassuring about it so I’m feeling much more at ease about it now.
Jackie B
Hi Jackie
Hope your son had a great birthday today, Jackie. Ive been out all day today in the sunshine so havent logged on. How did the Hickman Line go? Hope it went ok.
Im still leaking but the wound is looking alot better. Im seeing the breast nurse again tomorrow for a checkup. Today I had a call from hospital with my chemo appt for the 19th June but obviously my wound has got to be better by then. Are you starting your chemo on Weds? Ill be thinking of you. Let me know how things go.
Take care.
Claire x
Hi Claire
We had his birthday celebrations yesterday just in case I wasn’t feeling up to it today and we had a lovely time. Right decision. The procedure was a bit scary and uncomfortable but not sore. I’m feeling quite tender in my neck tonight but not where the line actually is in my chest. I’m sure this will improve quite quickly and I’ll be glad I had it done. Think I will sleep sitting up tonight!
Chemo due to start through my lovely line on Wednesday.
I am alittle worried tonight as I think my breast is a bit swollen. I am terrified that the infection is back and my chemo won’t happen- again. On the other hand it might be a build up of seroma which I have had a couple of times and had drained with a needle. If it’s still the same in the morning I will contact my BCN.
Glad your wound is looking better. Lets hope it continues to improve and you start your treatment as planned. What is your treatment plan?
Jackie B X
Hi Jackie
I was pleased to hear that your son had a nice birthday and that your Hickman Line insertion went well. I think you are extremely brave. Has the swelling in your breast eased off? I hope it has. I totally understand where you are coming from as it is such a pain especially when youve waited and are ready for the chemo.
I have just been to see my BCN and although my wound looks a lot better and I am dealing with it every time I take off my pad it just leaks. I had a swab taken just in case today and have another appt on Fri to see how its going. Ive taken a decision not to worry and keep myself busy. At least the weather is good and I can get out. I am really enjoying going out for lots of walks. It keeps me fit and occupies my mind.
I have invasive ductal carcinoma, grade 3 and my treatment plan is 6 cycles FEC, 4 weeks rads and then hormone therapy. I havent had the results of my Her2 yet. Are you having FEC?
Hope things are ok with you. Let me know.
Claire x
Hi Claire
Line feels much better today, I think I’m getting used to it.
As for my breast!!! When I phoned my BCN this morning and described my breast to her she told me to come up as she wanted to see it. Thankfully I only stay 5 minutes from the hospital. I was right, it is swollen and red and a bit hard in places so at least I’m not imagining things. She took bloods (from my new line - dead easy) and decided to ultrasound my breast. It’s all ok though - huge sigh of relief- no infection or seroma. Probably just a bit of fluid and the wound finally heailng so nothing to worry about.
The ‘good’ news is then that my chemo is starting tomorrow! I can’t believe how pleased I am at that statement. Never thought I’d be saying that. So fingers crossed that all goes well. At least I know my line is working fine.
I’m having 4FEC followed by 4TAX then 5 weeks of Rads but no hormone therapy as I’m triple negative.
Take care
Jackie B
Hi Jackie
So pleased for you, Jackie, that things are ok and that chemo can start tomorrow!! I can understand how you feel that you are finally there ready to start. Let me know how you are when you feel up to it. I’ll be thinking of you tomorrow.
Are you having your chemo at your local hospital too? I live 5 mins from my hospital but when I have chemo and rads I will have to travel to a larger city hospital.
Take care. Speak soon.
Claire x