I have lymphoedema in my left arm following sentinel lymph node removal. I wear a compression sleeve and glove in the daytime but overnight my hand swells. It’s so bad I can hardly move it. What should I do?
Hello longmuir1949
Thank you for your question.
Lymphoedema is swelling caused by a build-up of lymph fluid in the surface tissues of the body. You mention you wear the sleeve and glove during the day but that your hand swells overnight.
Managing lymphoedema will sometimes involve adjusting treatments and techniques. You may want to speak with your lymphoedema specialist how best to manage your symptoms. The compression garment is most useful when your muscles are working actively. It is least useful during rest. However, your lymphoedema specialist will tell you if it’s suitable to wear it at night if you find it comfortable to do so to reduce the swelling.
You may also find it helpful to watch our YouTube videos on lymphoedema and breast cancer and managing lymphoedema and reducing your risk.
Our Managing lymphoedema after breast cancer booklet explains more about what can be done to help. You may also find it helpful read about top tips for managing lymphoedema from someone who has lymphoedema.
Jen Mckenzie is a breast cancer physio who specialises in lymphoedema management and has produced some videos which you may find helpful.
We offer a range of free supportive services for anyone who has had a diagnosis of breast cancer which you may be interested in. They include face to face and online courses and events.
Talking to someone who has had a similar experience with lymphoedema can often be helpful. Our Someone Like Me service can match you with a trained volunteer who’s had a similar experience to you. You can be in touch with your volunteer by phone or email and they can share their personal experiences to answer your questions, offer support or simply listen to how you are feeling.
Do call our helpline if you would like to talk this through or have any further questions. The helpline team have time to listen, talk things through and signpost you to additional support and information if necessary. Your call will be confidential, and the number is free from UK landlines and all mobile networks.
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Best wishes
Grete
Breast Care Nurse
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