Taking my first steps on this journey

I’m glad to have found this forum as I was diagnosed yesterday with a 30mm invasive ductal breast cancer, grade 3 and HER2 triple positive so I’m still processing the news and where this is all going to take me.

I’ve joined hoping to connect with others who understand what this journey is like and that we can learn from our experiences. Thank you for having me here :victory_hand:

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Welcome. Sorry you’re here, but you are in really solid hands on this forum. It is going to take a while to sink in but we are all here with you and all have masses of empathy and first hand experience of our cancer journey. I emphasise ‘our journey’ because all of us have had a unique experience. If you read more posts on here, try not to get too freaked out. Just because someone has X reaction to Y treatment, doesn’t mean you will.

We are an absolutely lovely community and I would not have been able to do the last 8 months without it. You probably feel like you have Everest to climb right now, but you WILL get to the summit. We’re all here for you. We really do understand. xxx

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Hi there and welcome. I was diagnosed on May 27th and so just ahead of you in the journey. It wasn’t till my first meeting with the breast surgeon to day that I got the full picture. My tumour is 25mm and is ER/PR positive and HER2 negative. So I have to start medication prior to surgery.

My surgery is likely to be mid August after a MRI scan (first available date).The surgeon was so nice, explained everything. I was given loads of booklets to read, introduced to the Breast nurses. I felt so reassured after this appointment. I hope everything goes smoothly for you.

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Hey @anyakuro

Sorry you need to be here but welcome!

One of the first things I did when I was diagnosed was to go in search of people like me and I can’t tell you the world of difference it made. I felt extremely supported by my medical team but really needed the understanding of those who have or who are going through it and I found it here.

As well as the forum, Breast Cancer Now have tons of other resources that I’ve found extremely useful so have browse through the website for these if you haven’t already.

All the best for what lies ahead and remember you’ll never have to do any of it alone. x

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So happy to hear this @burstcouch. x

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@anyakuro, welcome to the forum we are all here for you with lots of love and support.
You will find some lovely and caring people here, each one with a different story and treatment, however once you have your treatment plan in place things will fall into line.

Take one day at a time at the moment, have a note book and pen around to scribble down anything that’s worrying you. Eat good food, plenty to drink and take good care of yourself.

I always found a cup of tea and a chat with that special friend always helps along the way.

Wishing you health and happiness going forward, fingers crossed for a good outcome.

With the biggest hugs, please keep us posted, remember we are always here for you.

Love Tili :folded_hands::rainbow::folded_hands::rainbow:

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Yes, I echo the words of @mssteel ‘Someone Like Me’ is a fantastic service which I found to be really supportive. x

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Thank you :blush: From what I understand so far, I’ll probably have some more tests before I see oncology, then chemotherapy, surgery and anti-oestrogen therapy, but I’ve no real idea of the timescale yet.

I’ve started browsing the website and am gradually finding my way around. There’s a lot to take in, and I seem to be learning a whole new vocabulary with lots of familiar letters rearranged into words I’ve never come across before!

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Hello. Yes it’s a whole new vocabulary but remember that you probably won’t need it all. My treatment hasn’t included chemotherapy for instance.

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Yes they will probably have to send the biopsies for further investigation to see exactly what they’re dealing with. I had a CT scan to check that it wasn’t anywhere else in the body, and some people have an MRI or PET scan. I didn’t have those. Once they’ve gathered up the data they can then devise a unique treatment plan for you. The waiting is tough but as soon as you have clarity I’m sure you will get your head around it.

I would personally advise not googling at this stage. Google has the capacity to scare people unnecessarily. xx

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Hi there

I was diagnosed with triple negative breast cancer on 11th May and like you are in the early stages of my journey. I have found it so helpful to have a platform where I can chat with people who are on this journey. We are all different and everyones journey is different but the support on here is second to none and I am so pleased to have found it. I am finding this journey is a steep learning curve with a language all of its own but people are very kind and helpful so just ask. I find it useful to write down my questions and concerns so that I don’t forget. You will have so much going around your head at the moment. Thinking about you and sending my very best wishes.

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Thanks all
Since my first post I’ve had a CESM and MRI with contrast - and discovered the hard way that I’m allergic to Transpore surgical tape! :woman_facepalming:

The official diagnosis arrived by post on Saturday, and I saw the oncologist on Monday. Now I’m just waiting for an echocardiogram (booked for tomorrow) before I get the green light to start chemo…

The plan is Carboplatin and Docetaxel with Phesgo for the anti-HER2+VE treatment, so I’ve joined the thread for that combination to learn from others’ experiences.

It’s my birthday today, and I celebrated by having my hair cut short - with an agreement that I can text anytime and they’ll fit me in for the full Ellen Ripley job if needed :roll_eyes:

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Happy birthday. Shit way to have to spend it, but you are granted a second birthday on a date of your choosing at a time when you feel like having it. That’s what we have done with Christmas. We’re probably going to have it later this month.

You’re in the right place. I won’t say to you it’s not a bumpy ride, but you will find there are good weeks and bad weeks, and with luck the good weeks will outnumber the bad. We’re here for you though and will sit by you, stroke your back and listen to your thoughts. We know what it’s like and we care. God do we care.

Looking forward to getting to know you more. If only it weren’t with cancer as a backdrop. xxx

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@anyakuro , if your allergic to one tape there is a good chance that chemo will make your skin super sensitive to contact adhesives. chemo has left me beyond sensitive to any latex, elasticine without being inside a pure cotton cover and most of the standard dressing tapes.
Please let the medical staff and nurses know from the blood test folk, to chemo nurses to any other tests or surgery you may need. This way they have time to locate altrnative dressings, tabs sensitive skin type plasters etc to use before they are needed. almost all NHS cannula dressings are designed for sensitive/reactive/fragile skin. the dressings used in PICC lines tend to not to be so chat about this with your oncologist as it may be possible to arrange a skin patch test if you need a PICC.

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