Have been taking tamoxifen for five months now have had lots of se’s but they have only lasted a couple of days apart from the hot flushes which seem to be calming down fingers crossed.
I have been feeling nauseous for about 6 weeks now, I wake up with it, it lasts all day/night, doesn’t go away. It’s draining me. Been to docs had blood and urine tests all clear apart from slightly raised sugar levels. I am on my second batch of anti sickness tablets, first lot for 10 days after around 5 days I did feel better, finished tablets ok for around 5 days and now it’s back again full force. The docs do not think it’s tamoxifen does anyone have the same symptoms???
I don’t feel like eating (the thought) but when I do eat I don’t feel any different (still have the nausea) I am eating normally well as normal as I can. I have not been sick just feel it, can anyone advise me please? xx
yes me2!my oncol says it isnt a side effect of tamoxifen…so what is it then?lol as it started a month after i started taking them!i started taking them in april,he said maybe it will wear off,well it hasnt and im really fed up of it!another side effect he said would wear off is tiredness,feeling drained and hot flushes…maybe he means in 4 and a half years when i stop taking them!lol i havent posted on hear for a long time but im back…sarah x
Thank goodness, not that you’re suffering but you feel the same. I feel tired because I’m feeling sick all the time. I had been taking tamoxifen for 3 months prior to this happening, so that’s why they are saying it’s not a side effect. Today I am feeling real bad, taking the anti nausea tabs but not kicked in yet. When do you take the tamoxifen, mine is morning wondering if that’s anything to do with it or am I grasping at straws?? Had another round of blood tests yesterday and if nothing shows up in them it must be the tamoxifen. Are docs etc helping you? xx
i havent been to docs,i just waited until i saw oncol,he didnt offer any help just said it may wear off,and said but it isnt a side effect of tamoxifen,i said i feel like stopping it for a while just to see?he said i wouldnt advise you do that!iwas taking it in the morning,now changed to bed time but still the same…i have read lots on hear about people changing the brand of the tamox,lots have said it helped alot with certain side effects,but i was worried i might get some worse side effect?but what really could be worse…iv been taking wockhardt but i am going to search around and try a diff brand my chemist only stocks the 1 brand…x
I am so pleased I am not alone in this. I have been taking Tam for about 6 months, never changed brands and apart from hot flushes not too bad. However last few weeks I have been nauseous from morning till night, am still eating but doesn’t change this feeling and now take my tablet in evening instead of morning but again no difference. Have mentioned it to my BC Nurse but she was very non-commital. Don’t know what to do next.
Take care everybody.
haughtaj, I was beginning to think it was only me!!! I’m not going to be seen until 24th Oct but was told at docs that this can’t go on, tell me about it. I have just changed brand have been on Wockhardt am now taking Generics, first day today. It is very difficult making plans etc had to cancel a few things recently so feeling fed up now how do you keep you’re spirits up when you constantly feel yuk??? A few well meaning folk have recently told me I look awful, cheers for that,are you the same?? xx
I brought my guts up within a few days of starting it, but settled down really well after that. However, the muscular pain has driven me to tears, it’s a bit like the pain from chemo but not as intensive. My back and legs throb, but i’m going to see how long I can put up with it before having a grump about it.
I’m not being sick just feel sick, oh eltticks, there’s always something, I waited over two weeks before going to docs about nausea, don’t leave it too long, have you been taking tamox for a while?? xx
yes i also have aching joints,i feel 80 with my knee’s,cramp and the very bottem of my back…i have my next appointment nov 8th when i will moan away! x
Well we all seem to be in the same boat so it must be the Tamoxifen. I also seem to have a very sore back - has been like this for nearly 2 weeks. Have others the same problems? You can’t help but worry it is something more sinister however. My nausea has been helped only a little by now taking tablets at night but is still pretty constant.
yes im the same worrying over every ache and pain…then the nxt thing it wears off and then something else somewhere else.lol…this week its my back last week a stiff neck my OH
i must add i havent been on here for a while as my other half said i was para from reading to much…well im still para so i think im aloud back on as it clearly wasnt this site making me like it…x
I agree you do feel as though you are paranoid, being really honest regarding the nausea I don’t feel its anything to do with bc but the tamox by having all the blood tests etc, everything else is being ruled out. Just went for a walk to see if fresh air would do me any good it hasn’t haha. Hope the pain stops soon for you all xx
So sorry to hear of all you BC Club members suffering Tamox SE’s. Reading similar posts back in July,just when my Onc had asked me to decide between Tamox & Femara made me refuse to take either.Having researched both I reached the conclusion that 5(or more?)years of ghastly SE’s weren’t worth the extra 2%-3% possible reduction in my chances of the cancer coming back.
A difficult choice jen3, I did expect to have some side effects and seem to have been luckier than most, until this nausea started. After all the treatment, I did feel I was getting back on track, I now feel as though I’m falling into a big hole, I feel like ***p and look like ***p!!! What I need to know is does the nausea stop??? I can put up with it if I know there will be an ending to it soon not in 4 1/2 years!! xx
hi ladies , another case of nausea on tamoxifen , i have just recently started 2nd lot of anti - sickness tabs to try and ease it , so fed up with the se of this drug and am really thinking of coming off it - my onc said it gives me an extra 2-3 % protection and i have to weigh up all the options, hot sweats drive me mad , joint pain and weight gain , fed up ? yep i really am , been on it for 5 months now and its effects pretty much kicked in straight away, i am on the wockhart brand and tried generics, they affected me terribly so back on wockhart now