I wondered if anyone here was diagnosed in their 30s and did not take an AI, but took Tamoxifen instead?
I was diagnosed with ER+ Her2- BC in 2016 when I was 33. I had surgery, chemo, radiotherapy, and then when my period returned six months later, i had zoladex for 3 years until my GP stopped offering it due to covid. I was prescribed tamoxifen during this whole time, apart from a month where I took exemestane but it made me feel weird so I went back to Tamoxifen.
I’m now in my 9th year of taking Tamoxifen and I’m now 42. I haven’t had a period for nearly 9 weeks, which is very unusual for me. They have always been pretty regular. (Husband has had a vasectomy and have taken a test to double check I’m not pregnant!) Is it Tamoxifen causing this irregularity? Is it perimenopause?
I’m also experiencing some heaviness in my lower abdomen, some back ache, some fatigue… all things that can probably be explained away.
I just don’t know if this is anything to be concerned about.
Incidentally, my mother has a blood cancer, and one of her first symptoms was fatigue and back ache. I should probably go to my GP - would I ask for a blood test? Will they think I’m making a fuss about nothing? My mum’s cancer is an MPN, which was mentioned in a study as being more of a risk for those who have previously had breast cancer. That’s separate to my Tamoxifen worries, I guess, but it’s on my mind.
There seems to be so little info on young women taking Tamoxifen long term. I know most young women are prescribed an AI.
Thanks for reading if you got this far!