Hi sunny.d
Thanks for posting. It sounds as if you have been having a difficult time over the last year and it’s understandable, you’re feeling scared about your appointment tomorrow.
Tamoxifen can affect the lining of the womb causing it to become thickened and this can cause vaginal bleeding. If people experience unexpected or heavy bleeding while they are taking tamoxifen, they would normally be referred to a gynaecologist for further investigations as you have been. You say that you have an appointment to see the gynaecologist tomorrow and it might be helpful if you are able to explain your worries and fears to them.
You say the gynaecologist has mentioned the coil.The intrauterine system (IUS), which is sometimes called a coil is a form of contraception. It is a small, T-shaped plastic device which releases a small amount of the hormone progesterone (levonorgestrel) that’s put into the womb (uterus) by a doctor or nurse.
There have been studies looking at the use of the IUS in women taking tamoxifen. Evidence suggests that the IUS may reduce the risk of changes to the womb which may occur as a side effect of tamoxifen (such as polyps and thickening of the womb lining). However, the risk of breast cancer recurrence is not known.
Currently the manufacturer says they shouldn’t be used in women who have (or are suspected of having) a hormone sensitive breast cancer. However, some oncologists may agree that some women on tamoxifen, or who have had breast cancer more than five years ago which hasn’t returned, can use an IUS. Further studies are needed to provide more conclusive evidence about the safety of IUS in women with a history of breast cancer.
If following your appointment, the gynaecologist thinks you might benefit from an IUS you can contact your breast care nurse and ask if it is possible to have an appointment with your oncologist to discuss this further.
We offer a range of free supportive services for anyone who has had a diagnosis of breast cancer which you may be interested in. They include face to face and online courses and events.
Do call our helpline if you would like to talk this through or have any further questions. The helpline team have time to listen, talk things through and signpost you to more support and information if necessary. Your call will be confidential, and the number is free from UK landlines and all mobile networks. The number is 0808 800 6000, (Relay UK -prefix 18001).
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Best wishes
Val
Breast Care Nurse
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