Hi ladies!
just wondering if their are anyone on this support network who is currently on Kadcyla?
Been told it’s a new hormone therapy drug being used in my case instead of the standard herceptin. I had surgery (Lumpectomy) the beginning of the month and unfortunately I didn’t get clear margins so next step is mastectomy and as their was traces in my nodes I have been advised that this is the best hormone drug but only just been given the go ahead to be funded by the NHS.
As this treatment has a element of chemotherapy in the make up the symptoms list is extensive and didn’t know is anyone currently on it could let me know how you are coping??
Jem xxx
Hey!
I and at least one other are on Kadcyla for primary BC which is apparently a very recent use for it. Because of this I am a bit unclear as to what it classifies as - I didn’t think it is Hormone Therapy. Herceptin is deemed a Targeted Therapy but Kadcyla has a chemo element to it as well. *shrugs*
Anyway I digress. I just had my third cycle of Kadcyla yesterday and I think I’m doing okay on it. I do have some peripheral neuropathy in fingers and toes but that may be from previous chemo, surgery or radiotherapy. I bundle up against the UV rays on sunny days as I think they give me a bad reaction. As with all of these treatments - keep well hydrated.
Let us know how you go 
1 Like
Hi
I am new to the forum ,
I am due to start adjuvant Kadcyla infusions x 14 following primary HER2 + . During my chemo and radiotherapy I was able to work from home but now need to return to the work place . I just wondered how anyone was finding any side effects.
Thank you .
1 Like
Hi Minnie,
Wow you must be super strong to work during chemo and radiotherapy. I am also Her2+, ER+ early stage BC patient currently undergoing the adjuvant Kadcyla treatment. I have had the 10th dose yesterday so a bit queasy right now.
For me Compared to chemo and rads Anti Hormonal Treatment is relatively smoother but with slight nausea, stomach issues. I do have joints pain and muscular pain, back ache but I think that’s due to the combination of Radiation plus Anastrazole(a pill) I’m supposed to take up till 10years) and Zoladex( injections) I get every 4 weeks. Some days I’m totally exhausted and the fatigue simply is too much to cope up while other days it’s better. But I do push myself to keep going for the daily chores as I have 2 toddlers so I have my hands full. Hope this helps!
I’m sure it would be manageable for you but try talking to your boss about your situation and if you can work in a hybrid model few days remotely while other days onsite.
Take Care,
Regards,
Dimpled.
1 Like
Hi Dimpled
Thank-you for the info apologies for the late reply .
You have done amazing I can’t imagine having a young family and coping .
I have had 2 treatments now of adjuvant Kadcyla and other than fatigue , nose bleeds and general aches have been okay , unfortunately I contacted covid so have had a delay but was given an antiviral infusion so hopefully I can have my third treatment next week.
I hope you are doing okay , nearly through at number 10 very brave .
Very best wishes
Minnie
2 Likes