Taste buds haywire

Hi ladies, long day today as saw Oncologist who seemed happy enough and then had Chemo 2 which went smooth enough and yes I did talk nicely to the drugs again! So as I didn’t sleep well last night I’ve been very tired today so been chillaxing.
Had fish for dinner again and very thirsty so lots of fluid and wees?
I hope all had a ‘good’ day and will keep you posted tomorrow. Lots of love.xxx

Evening ck hope you manage a better nights sleep tonight glad appointment went well with oncology and 2nd chemo x

Glad your chemo went well CK. This dry mouth thing is strange! 4am and sucking pear drops. Hope you are getting a good sleep xx

Ali hope you managed to get back to sleep x how you feeling today? X

Day 2 and i have been ok! Up, showered and dressed by 9. Took my tablets and had breakfast. Made dinner for tonight and tomorrow. Sat and nattered with my auntie and went to M and S for a few bits and treated my daughters head for nits - the joys of going to an all girls school!! I’ve Just had tea and sitting down. I have sucked lots of sweets, had jelly, did my mouthwash and drank lots. So a bit jittery, a dry mouth and a bit tired but otherwise ok. THANK YOU GOD xx

Hello you delicious puddings! Manchester Tart checking in on chemo 2 day 2!

I went to sleep about 12 last night but woke up panicking! Not sure why but chemo does do some strange things to you. So I got up and did some breathing exercises and felt better. Then had some cake and a drink and went back to sleep agin until 8am!
Brekkie and then been on the phone all day for business and gossip and didnt get breathless at all.
Had a texting argument with my last date which has finished us off but not to worry, I will concentrate on ME for now!!!
Me and mum had a roast chicken dinner in between…had fish yesterday!
Rosy cheeks today and feeling hot but no temperature! Sucking on sweets now because dry mouth. Water tastes strange so squeezed some lemon juice into it and tastes better!

Had first GCSF injection but took paracetamol first from past experience!
So lets see what tonight and tomorrow bring!
I found that night times were worst on nights 3/4 last cycle but then Im thinking my body should be used to the drugs now and might give me less grief this time round. I know the more cycles the more tired we get so we need to rest up whenever we can and not overdo things from the beginning.
Especially us who have already had lumpectomy before chemo!

How has everyone been?xxx

Hi all
A while ago I bought one of the water bottle infusers you can put fruit in the middle I fill it and put frozen berries in the tube bit then put in the fridge as the fruit defrosts puts a lovely but not overpowering fruit taste in the water might be worth you trying one if water is tasting funny xx

I got it from the range but have seen them in Sainsbury’s and Home bargains too they are about s fiver x

I got a fridge that’s plumbed in with a water filter so drink loads of ‘council pop’ too lol xx
Jen most of the time I am ok but then every so often I get an how am I going to do this moment then think of the outcome if I don’t and know I have Hobson’s choice.

Jencat and SueW i know exactly how you are both feeling. I have really wuestioned my chemo and have said several times i am not doing this! My BCN put me in touch with someone who felt exactly like me but is now nearly at the end of her treatment. It helped me immensely to chat to her. Yesterday at my first one i was strangely calm. Ee just have to keep going. Sending you both a hug xxx

Thanks ali and Jen I think what is tough is at the moment I feel so well admittedly a little tired but generally ok but I also know the risk of it coming back makes the prevention treatment a must x
However ali when I read the posts from you and ck snd thenother lovely ladies I know I can do this you are all inspirational x

Hi Jencat and Sue
Remember to ask for extra anti sickness pils and back up ones you will be fine! If have GCSF injections take paracetamol half an hour before. Remember to take temperature. Bare head you are prepared and the least of our worries. Lots of sweets! Gone on to midget gems this time but will no doubt change.
My main concern was sleepless nights through the steroids but then you sleep in and if no need to worry about work and no young kids
…nap during tbe day!
I panicked b4 anyway so nothing new with me. It doesnt harm me just need to take deep breaths!
You may experience tight chest pains that will go.
We all react differently at different stages but if prepared for any side effects it will be so much easier to control!
You will do it ladies and remember to take one day at a time so you dont worry roo much.xx

Ali
Well done, it looks like you are doing well day 2, make sure plenty of rest.xx

My start dst

Sorry pressed post to soon
Start date Friday 13th October good job I not superstitious lol
I am fortunate got grown up kids and not allowed to go into work so can take the time to just rest and recover
Glad you lovely ladies are doing so well
xx

Hello my gorgeous sweets!! Manchester Tart here!
Hope you are all coping with treatment and to the ones starting soon you spending time preparing yourself which always helps.

Ive now had 2 manageable cycles of EC and it was mostly fatigue and funny taste buds I experienced. I had 2 ulcers first cycle but non yet this one!
This cycles appetite has been wanting tomato pasta, mince and tatties, cheese on toast, whereas last one was fish, croissants, milk and shepherds pie. Its really strange how the tast buds change.

Merlot had his jabs today and my friends took him as I couldnt deal with the stress of getting him in his cage and then being at the vets!
He can smell the chicken in the oven at the moment so hanging around!

Got another wig today as a gift from my hairdresser and I feel so comortable in it!
Tomorrow I’m going to Maggies Centre for Look Good Feel Good Course and look forward to meeting aome other lovely ladies.xxx

Well done CK you are doing great. Hope the course goes well - i am definitely going to phone up tomorrow and book on one xx

Love to read when you lovely ladies are doing well x makes me feel so positive x

Ill let you nnow how it goes Ali! SueW how are the tests for adrenal glands going? Im having my Coloscopy on Thursday.x

Blood tests today got to take steroids tonight at 11pm then follow up blood test at 9 am tomorrow then mri on Thursday 5th and then got to save my wee for 3 full days on Saturday Sunday Monday then drop to path lab Tuesday 10th when I meet chemo nurses then see kidney consultant Thursday 12th then chemo starts 13th so a busy few weeks with hospital stuff xx they said in 75 per cent of patients no treatment is needed so fingers crossed I in that bracket xx

Good luck with the blood tests today and lets hope no treatment needed and you can have a smooth chemo.xxx