hi katherine and everyone , katherine since being on taxol has your stomach bloated or feel any different? or anyone?
i am wondering if its the enlarged liver ( if it is ) .
still not feelimg to grest and its time for another tuesday .
oops awful spelling .
thanks Tracy xx
Hi Tracy,
my stomach has been bloated since secs diagnosed in 2004 it was even bigger when on capecitabine but yes was and is still big and I have not been on tax since May. Saw my grand daughters last weekend first time for a few months and they said it was a BIT flatter.
My liver goes up and down I can always tell when chemo is working if I can see my feet I think I am o.k. Mine swells just under my busts and at the moment is a bit flatter than tummy.
Not painting a great picture of my figure, good job it is not a dating forum I would never cop off!
Love Debsxxx
Hi tracy, Debs
I feel my liver more as a pressure on my shoulder - dont have that feeling that the actual liver is swelling - I think we are all different, cos maybe its where the main tumors are that determine how you feel. Today I had a big lunch and I feel quite full and a pressure on my side…so like you I am wondering is this taxol doing any good. I don’t dare ask for my counts on tuesday,
To top it off my husband and my father really snapped at each other at lunch -(father is visiting) its like all the buried hostility can come out as everyone feels under pressure because of my illness. I am trying to feel that it is not my responsibility to make peace, but as usual it seems to be,
Debs - you do make me laugh, you really do!
love
cathy
ha yes debs sounds like my tum. i feel i have something in there moving sometimes . does the oncol not think it is too serious if it swells then ?
yes katherine i have had shoulder pain also this weekend esp in the evenings but wasnt as bad last night.
be back later xx
HI Tracy and Katherine,
if you had a flat tum and it went bloaty over a couple of weeks then maybe you should tell him next time you are in clinic. Mine has gone like a telly tubby over the past few years if I complained he may take me seriously but when we were in London and I got big blisters on my feet and I know it was the taxol he blamed my shoes! lol
I have never had shoulder pain though.
Love Debsxxx
Shoulder pain is caused when a certain area in your stomach is irritated by the liver swelling so that’s why some people get it and others don’t. My stomach seems to be getting bigger but then I am eating a lot more and now feel I am digesting food properly as can swallow and eat nearly normallly now after 5th weekly taxol but breathing only improving very slowly. It took till 4th weekly taxol to notice any difference in my swallowing and for my liver function tests to improve so maybe you need to give it more time to see if it is working but definitely tell your nc on tuesday about your concerns.
I find taxol is making all my skin very dry and feet sore like it was on capecetabine. Hair falling out now but still got quite a bit left so will leave it for now but nails breaking easily and losing eyebrows. Hope I don’t lose my eyelashes.
Thinking of you all
Love Kate
Hi Kate,
glad to hear you are feeling the benefit of taxol. My hands and feet were really dry, cured by Ian rubbing e45 on them, my hands are still very sensitive to heat I used to have asbestos hands. thought I would lose a few nails but managed to keep them they looked dreadful though. Eyelashes looked scary, solved this by putting a brush line of eyeshadow top and bottom, dont use black or you will look like a goth!
Love Debsxxx
Hi Kate
just a quicky as its so late, will catch up properly soon…are you having cold cap? I’ve had cold cap with all treatments and its allways worked but finding lots of my hair falling out this week - only on 1st cycle, it feels like its going on forever.
Love Amber xx
i just got back from seeing oncologist , well seems we are not sure onm the taxol yet as my markers moved a little down now they moved a little up again . the ezymes have not done to well so here we go again … i have only had 4 weekly taxols so maybe az little soon ??? he said we could leave it and see or add avastin if the insurance company agree either that or vinorolbene.
now i feel out of sorts , anyone been on avastin with taxol?
thanks Tracy xx
Hi Tracy,
I was on taxol with avastin 50% reduction after 6 tax 4 avastin 10% reduction after next 6 t/ 4 a. I now have avastin with pamidronate every 3 weeks but will go back on tax when new tumours in my liver give me problems. My onc does not do tumour markers he prefers scans plus I have always been able to tell him when I feel my liver is struggling. I am going away on hols so I wont be on here for 10 days so good luck.
Love Debsxxx
Tracy
I am on with avastin plus taxol much to my insurance company’s dismay - you need to get your onc to make the request for you…side effects are minimal so far. Whether it is doing any good i have no idea…will find out soon. Oh boy, its even harder if you are left in a little limbo here - maybe it is a bit early, maybe you could have alook at markers etc after number 5.
taxol number three for me tomorrow.
x
cathy
Hi Tracy, I had six cycles of tax with avastin every three weeks. My tumours (lymph nodes in armpits, chest and possibly pelvis) shrunk by half and are currently stable. I was pretty knocked out by the regime, but don’t know whether it was the tax or the combination. Now I am on avastin alone and I am reasonably OK - if you call walking like a ninety year old woman and going to bed before 10 every night OK.
Deirdre