so sorry your here daysie, i was so hopeing you had left us … sending you big but gentle hugs, were all here for you xxx angie
Hi Daysie
Just to say sorry you have to join the club but as the other ladies say this site is a godsend to anyone with bc at whatever stage, it has been my lifeline and you will recieve lots of support and good information.
As Harriet says the support is fantastic.
Good luck to you and massive hugs. M
So sorry Daysie. I had a 6cm tumour which wasn’t picked up on mammos, I found it myself. I had mx and total node clearance, then 6xchemos every 3 weeks. I dont need rads. I want to have reconstruction next year. It isnt pleasant by any means, but it is doable … and the support on here is amazing. You will get a lot of love and support from your family and friends, but us ladies on here have more understanding of what you’re going thru. You can do this. Have faith. xxx
Hi Daysie
Just read your news & sending you all the hugs I can. I didn’t face chemo or mx so can’t give much advice on it; but loads of ladies on here can & will. The support is fantastic.
Love
Lynne
Hi
Bum. Not the news you wanted BUT now they and you know what it is they can start fixing it.
I was dx last November with 3 lumps. I have had the same regime as you are facing and have just 3 weeks of radiotherapy left to go. I played a great part in making decisions about my treatment: I asked if I could have chemo first rather than surgery first, I asked if I could have an immediate reconstruction, I questioned and pestered about my lymph nodes and was one of the first to have an SNB post chemo. I got second opinions and asked for reasons behind the thinking. The result being that everything that happened I was happy with meaning no regrets and limited worries.
Chemo is a scary thing to face and it’s not pleasant but you’ll get through it. Surgery is an upsetting thought and I’m sure you’ll have a period of mourning but you WILL get through it. It will pass. You’ll come out the other side and look back in amazement at what you’ve been through. There are many on here who can offer you support - you’re not facing this on your own, we’re all with you.
Xxx
Daysie you haven’t received the news you’d been hoping for but you ARE over one of the worst parts of this situation - waiting and wondering whether or not you have cancer.
I was dx with a 6cm lobular tumour in June 2009. Clearly it had been growing there for some time but lobular can present subtly so I wasn’t aware of it until my nipple began to retract slightly. I had 6 months chemo (FEC-T)which shrunk it considerably. Then I had a mx and full lymph node removal. 16/18 nodes affected which was a further shock.
However so far I have NED. Of course that may change but for now I’m fit, healthy and ENJOYING my life. I try not to dwell on what’s happened except when my appointments come up. I play tennis, go swimming, do pilates, long walks, cycling etc. Chemo was horrid but doable (hate that word but can’t find a better one). Yes, losing my hair was s*** but on the plus side I had very few other serious side effects apart from fatigue and occasional aching bones. I dumped my wig about 5 months post chemo when my hair was very short but growing fast and thick. I’m now 17 months beyond that point and my hair is a very decent length, and full and healthy.
Very best of luck and there are lots of us here ready to support you.
Forgot to add I also had a reconstruction (expandable implant which was replaced by silicone after 15x rads). I had the rads because of the heavy lymph node invollvement.
Hello Daysie!
Oh love, I was really hoping you were going to be giving us good news, so sorry you’ve had to join our club - but the others are right, we’re all really caring on here. Post whenever you want to - nothing is too little to ask as a question, and no matter how embarrassed you may feel or feel something is too small to write about - do so please!
Your waiting is over - honestly, it’s horrible is the waiting room, and although you haven’t had the news you wanted, at least you know what’s what now, and you can be the biggest and most important part of your treatment plan.
Take good care of yourself, and please keep posting whenever you feel like it. I’ll be thinking of you, as so many others on here will be too!
With much love,
Shelley xxx
Hi Daysie
I am sorry that you are in our club - the only words of wisdom I can offer is that today you will find out exactly where you are - the fear of the unknown is the most worrying part of life. Today you will know.
Wishing you all the best and BE STRONG!
J
DaysieI have been watching this thred hoping for a good result, I did post a long reply a few days ago but I don’t see it. I have problems with my ipad and poor internet connections in our village. So sorry it is not what everybody has been hoping for. But now it is a case of getting you sorted. We have all had similar probles.
So if in doubt ring the BCN, or Helpline. Post on the Forums and if you need a complex or private answer use Ask The Nurse.
All my thoughts are with you
Big hug cackles xxc
Daysie - I presented with a 10cm tumour that "appeared " within 6 weeks. Like you i didn’t really believe it and was in shock. My treatment plan mirrors yours . I am now threw the chemo and MX is Thorsday…u will cope with this . Is it lobular ??
Its s*** and you will experience every emotion, keep talking , ranting , crying on here as u will get support .xxx
Love Lorna xx
Hi Daysie
So sorry it’s not the news you wanted - we’re all here to support.
My cancer also seemed to appear from nothing to a big lump within a 6 week period. It was 8cm x 6cm at time of diagnosis and was lobular and had spread to 9 out of 17 lymph nodes. My breast was very painful and swollen and in fact the GP and Consultant first thought it was mastitis.
That was back in Feb 2009 and I went on to have surgery, chemo and rads and I’m now taking tamoxifen.
As Lorna says, you will probably go through a roller coaster of emotions because it is such a shock to get the diagnosis and hard to take everything in.
This threads can be a fantastic form of support as too can the helpline. Take care and a big hug, Elinda xx
Hi Daysie
I just wanted to send you a big hug.
As the girls have said the waiting is horrible.
Mind you when I first went to GP I was told that I had nothing to worry about although she did send me to breast clinic.
Two days before appointment a massive lump appeared.
Everything was done very quickly at the hosp so within 2 hours I knew that it didnt look positive.
I then had to wait a week , and they said that it was a 4cm DCIS, I was thrilled (mad I know!) But I only needed an op.
Anyway after mastectomy and recon I was told that they had also discovered a bit of invasive.
The ups and downs are awful , noone but us truly understands.
BUT we have to remember that thousands of woman are successfully treated every year.
My mums cousin had breast cancer 40 years ago, mastectomy and chemo and is now nearly 80 and WE Will be the same.
Sending lots of love to all of you lovely ladies.
xxxxx
Hi Daisie
Just wanted to say sorry you have joined but you will get loads of support here. Everyone understands how you feel and the ladies are all lovely.
I was sent to the breast clinic by the doc when my grandson caught my boob with his foot when we were playing, they told me on the day it was bc and my feet have never touched the ground since.
I am having op on thurs this week with snb thing on wed, don’t know anymore until results.
Sending you a big hug M
Hi
I’m so sorry that you’re going through this. It’s a dreadful time. When I was first DX I looked at the garden thinking ‘I won’t see this next year’. Chemo wasn’t easy but necessary.
I’m still here over 3 years out and am really enjoying life.
It will get easier once you know exactly what you’re fighting and how you are going to fight it.
There are plenty of people who don’t come on these boards anymore, because they’re getting on with their lives. You will be the same soon.