The dreaded wait

Hi there, I’m 48 and sitting in the dreaded waiting period with the wait of the unknown hanging over me! Background is, I went abroad for a boob job in Jan and pre tests found a lump, surgeon said it was nice and smooth and therefore described it as benign and went ahead with surgery. I came home and my GP referred me on the 2ww for an appointment which I had. However as I was newly healing they didn’t look or test me and discharged me and said to go back in 6 months. Fast forward 11 months and seeing the GP about possible HRT, she suggested I get checked for any nasty things inc my lady bits and I raised about the lump. Again referred and was seen in the breast unit, yes there is a lump, had a mammogram and US and biopsy but not on the initial lump but on a second lump. Care letter received Tuesday to say the finding were a lump with irregular margins and that they were waiting on results. Todays letter is an appointment to discuss my results on the 27th. Now I am not being negative but I have a gut feeling that this will be breast cancer, especially as I was told at my appointment to bring someone with me if I get another appointment. I’m not terrified just a control freak who wants to know right now! Also a little bit angry that if this is something, I have almost been left, surely they could have done something back in jan even if I was post op! Anyway how do you all cope in this waiting period??

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Dear Noodles,

So sorry to read your post. You are very anxious at the moment and the waiting game doesn’t help. Your appointment is quite soon which obviously not soon enough when you are feeling so worried.
I was wondering if you called your Breast Cancer nurse, maybe they could bring your appointment forward as you’re feeling so stressed , or maybe even a chat with your nurses could put your mind at rest.

Notepad is a good option, making notes before your next appointment asking lots of questions, the waiting time is endless, anxiety takes a big toll on us.

Thinking of you, fingers crossed for a good outcome, keep posting letting us know how you are getting on.

Big hugs Tili :rainbow::pray::rainbow::pray:

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Hi noodles,

I can completely empathise with you. I have recently been in your position and the 2 week wait feels like forever , your mind is in overdrive and you can think of nothing else. Like you, I really struggled with the uncertainty, not knowing is horrendous. I trawled through websites and forums looking for clues to what my outcome would be and of course there are no clues there. Unfortunately I was diagnosed with BC this Wednesday but I feel calmer now, strangely. That 2 weeks was awful. What I did notice is that everyone in my waiting room had someone with them and they did not all get bad news, one woman gave me the thumbs up as she left. The problem with going online is that most of the people who get good news don’t come back here to tell their story and update people after the wait, they just get on with their lives. So most stories you read result in diagnosis but that doesn’t reflect the stats. I know this might only give your head peace for 10 minutes and you will be sucked back into the thought process…

All I can advise is do things that make you happy, distraction, try to read a book or listen to a podcast, go to the gym or for walks. I actually listened to one podcast called “more than a lump” it is about breast cancer but I was then well informed going into my appointment and understood everything the doctor said to me.

I hope that your visit here is temporary and that the next 2 weeks go by in a flash for you. As the lovely people on here say, you don’t have cancer until someone tells you that you do. Certainly ring the BC nurse for a chat, I know they helped to calm my mind during the wait.

Take care and best of luck.
Clare.
Xxx

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Hi @noodles111,

Welcome the forum, I hope you find it a helpful and supportive place.

I’m sorry to hear you are going through such a worrying time. Please know that our nurses are here for you any time, here on the forum on the Ask our Nurses your questions or over the phone 0808 800 6000 if you fancy a chat.

Sending love and best wishes,

Alice :heart:

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Hi, thank you all for responding. It’s funny how people respond, almost in the oh it will be fine group of people and the oh I don’t know what to say group! Think I will be fine and will cope well with whatever is thrown at me but time is just going to drag so long…. I am going to keep busy, doing things I enjoy although cancelled plans for a night out out tomorrow, me and alcohol may not be a good emotional mix right now, so opted for a night in with a take away instead.
I think Google should be deleted from my phone, if someone were to read my history they would think I am going nuts!!!
I will definitely be hanging around, this forum is full of so much information and you’re all more knowledgeable than google!!!
In fact, You’re all wonderful :smiling_face_with_three_hearts:

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I agree noodles111, so true, my Google search was insane during those two weeks, crazy questions :dizzy_face: since my diagnosis it has calmed down, I’m relying on the forums and the info the doc gave me. Hopefully it won’t come to that for you and you will just get back to normal life. Good idea for the take away instead of the night out :grinning:. Hopefully u can have the night out in 2 weeks to celebrate :clinking_glasses:

Clare x

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Hi Noodles,
I endorse all that has been said, I was in a similar situation in 2021, but I felt that when I was told yes, (the surgeon didn’t think I was surprised-I was-I was speechless!) well, at least it’s been found now, and can be treated-your’s may still be benign, but if it’s not, you will be well looked after,-they have all had lots of practice in that field!! I am now out the ‘other side’ post surgery, healed well, no lymph node involvement, and on exemestane, which, to my mind is the best one so far for minimal side effects. Good luck and come back and tell us either way!

Hello @noodles111
Firstly so sorry to hear of your situation, hopefully it will turn out to be something benign and not bc and this can all be put behind you.

There are a few things that I wish to share with you that may help you through this tough time. The mind can be very cruel to us and thoughts can spiral. These are some tips I have learnt to help me cope having wasted life in the whirlpool of worry and stress.

Concentrate on what I can control
Be in the present
Think happy thoughts - when my thoughts were dark, to get my mind back to a happy place I would say “I wish I was on Benidorm beach”. Sounds mad but it really did work, the thought brought happy feelings and a smile. Saying things out loud is more powerful too and brings a bigger feel good moment. I have my husband to thank for this, one day I was brave enough to tell him what was in my head and he came up with this. It was a game changer.

Also
Practice meditation, the mindful movement on you tube is very good - afterwards the mind is settled and more focused
Laughing - even if it starts off fake, laughter is infectious even when laughing at yourself on your own it turns real
Exercise Get rid of stress by kicking and punching the air
Keep your mind busy by starting a new hobby, I’m learning Spanish, it’s free on duolingo

Don’t know if this is a thing I heard or made up, I call it the “would I rather method”, it takes into account the options and outcomes, it’s about working out what is most important to decide what to do, for instance

Would I rather stress and worry and miss out on life and my results are good
Or
Would I rather spend my time doing my normal things and my results are bad

To help keep me on track I have some reminders pop up on my phone.
At times I have also pinned reminders around my home.

Hope this is of help to you and I wish you the best for the future :two_hearts:

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Dear Noodles

I was were you are a month ago. I had a feeling it was cancer and it was. However even though it has spread to my lymph nodes it is Grade 1 and treatable. Mark Steel the comedian is currently going through cancer treatment and he has done a brilliant podcast which I will post a link to. In it he discusses how cancer now is not doom and gloom, most people are treated and get on with their lives. It can be unpleasant and emotional taxing but ultimately the vast majority of cancer is treatable.

I send you so many positive vibes. This is an amazing community and you are not alone.

Take care

Zx

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Hi Noodles. Two weeks ago I was in your position - biopsies tick, scans tick, ten days to results. I received my results on Monday, yes that dreaded day does eventually arrive and you can now breathe but in fact now you are too scared to. A grade 1 6mm breast cancer. Small and early detection but we are all human and still imagine all sorts of scenarios. Over the next 3 days the nhs continued to run on extremely smooth wheels. Two hours after my diagnosis appointment I was phoned and given the name of my surgeon and my breast care nurse and an appointment with my surgeon three days later. I have been good and not googled breast cancer - that would scare the life out of me - but I did Google my surgeon. Come on a girl needs to know about the man who is going to have her breasts in his hands. Boy have I struck gold, he’s a top man and the reviews were so reassuring. At the appointment he was so approachable, I could ask him even the stupidest thing and he understood. His first words to me were that this was perfectly doable. First thing the next morning I received a phone call to arrange my surgery, with the surgeons permission I want to wait until after Christmas, and by lunchtime yesterday it was all booked for January 3rd. Confirmation letter arrived today. I now plan on spending the next few weeks looking forward to spending the holidays with my family and BC can take a running jump until December 27th.

I know how you feel right now, I understand how you feel right now but please remember it will all get sorted and that awful long time will pass. Also remember everybody here is with you. My grandkids always say if nanna says it will get sorted then it will and trust me it will get sorted, meanwhile sending you a big hug x

I have always had my mammos, even after 70 when one elects to continue having them, and it was the one when I was 76 which showed (white dots calcifications) so needed ‘further tests’ to check-this turned out to be a core biopsy, and two weeks later, sitting in the oncologists room, I was told “Your cancer”! I was speechless as up to that point, I’d been told-it’ll be nothing-very common(my sister has similar calcifications but her’s are ‘normal’) Just doing the biopsy to ‘make sure’ etc, so when it was confirmed I Was floored! It wasn’t even big enough to show on the mammo as a lump but in surgery turned out to be grade 1, 2-foci- one x 2mm and one x 12mm contained in the duct, and no spread to the lymph nodes-they took 4 to be sure, HR+7 and PR+8. As I asked for a second opinion, and it was over December/January, I missed the ‘window of opportunity’ for radiotherapy, so went straight on to hormone therapy, Letrozole, stuck that for 15 months, with a couple of breaks to recover from side effects and now take Aromasin which is a bit less harsh it seems-certainly less side effects, but I do only take it every other day. So I hadn’t even entertained the thought of cancer at the mammogram appointment! I do still check myself regularly, and had to come off the HRT which I had been on over 30 years by then! So even if it is the C word, it’s not the end of the world, and you are now a member if this club which while no-one wanted to join, is a supportive place to come! By now you will know and be in the throes of whatever the outcome was/is. Either way, good luck and a very Happy New Year!