The London School of Economics (LSE) is leading an EU-funded research project, Advance-HTA, looking at aspects of health technology assessment (a method used to determine where and how new treatments should be introduced into a national healthcare system)

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The London School of Economics (LSE) is leading an EU-funded research project, Advance-HTA, looking at aspects of health technology assessment (a method used to determine where and how new treatments should be introduced into a national healthcare system). The goal is to work with a range of stakeholders to explore how the methods used in HTA can be improved to better meet the needs of both patients and modern healthcare systems.  There are 13 institutions involved in the research from a number of EU countries and North America.

One area of particular interest is the way in which patients’ experience in quality of life is measured.  Currently, a tool called EQ-5D-5L is used but there is considerable discussion about how well this reflects the aspects of health-related quality of life that matter to people living with an illness.

We are asking patients with a range of illnesses, from a number of countries, to complete a short questionnaire aimed at finding out ‘Does EQ-5D-5L accurately and reliably reflect the aspects of their health that matter most to patients?’.  This is important because it will help ensure that the things that matter to patients are at the heart of future decisions about access to medicines.

The questionnaire will take approximately 5mintues to complete and can be found at the following link: lse.qualtrics.com/SE/?SID=SV_abftZRBx9Sj4N<wbr>1P</wbr>  

Another version of the questionnaire has been developed to capture the responses of the caregivers who are providing support and care for patients. If you know any family members and friends who are caring for a patient, please provide them with the following link to complete the questionnaire: lse.qualtrics.com/SE/?SID=SV_9sM3VwpFLDT1x<wbr>VH</wbr>

Each questionnaire must be completed in one sitting and all responses are anonymous. The more completed questionnaires we receive, the more reliable the results will be.

Thank you very much for taking the time to complete the questionnaire and support this important piece of research.  More information about the project and the institutions involved can be found at advance-hta.eu.

Many thanks to everyone taking the time to participate.

Anna

Digital Community Officer

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One of your questions asks something like

 

"Does   EQ-5D-5L reflect aspects of your health that matter most to you most. "

 

You don’t explain at all what you mean by EQ-5D-5L, so the question is completely useless and the vast majority of the responses you get will be completely random and meaningless. 

 

If you’d like to have responses that mean something and remotely answer the question that you’re trying to ask, you would need to change the question to something that ‘people’ on the street can clearly understand, rather than LSE jargon.  

 

It’d also be useful to make the text boxes requiring a sentence response more than five characters long, as it’s not possible to see what you are typing when the ‘text insert box’ is the size of just one short word. 

 

Good luck with your research. 

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Thanks for your feedback Peta, I will pass this on to Anna who is back in next week

Best wishes
Lucy BCC

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Dear Peta

Thank you for your feedback.  As you will have read in the research request below, Breast Cancer Care are not conducting the survey, but have given permission for the researcher to ask our forum users to participate.  If you could provide your feedback directly to the researcher that would be incredibly helpful for them.  The contact email address is p.g.kanavos@lse.ac.uk .

Best wishes
Anna
Digital Community Officer