the waiting game

Hi there I’m new to this site …well I’m sure I joined the old 1 …any ways I was first diagnosed in Dec 2001 had a mastectomy left breast …had 6mnths of chemo …and done radiation therapy …I was on to tamoxifen for 5 years …I was good for another 7 years the I decided to go for reconstructive surgery …had my reconstructive surgery …in October 2007 …then in September 2008 …I was diagnosed again I had b/c in my right breast this time …I had to have an other mastectomy of my right breast …also reconstructive at the same time …good thing I did not have to have chemo …or radio …as they caught it in time …and a few months ago 2016 I had a swollen hand they said it was lymphedema …but the swelling went down …now I have found a lump in my reconstructive breast left side …just waiting on doc appointment …and breast nurses getting back to me. 

Breast care nurse got back to me …I am just waiting on an appointment at plastics clinic …had an appointment with my doctor yesterday ,…and she confirmed that I do have lump in my left breast …she told me if I don’t have an appointment by the end of April then she will contact the clinic …on my behalf l…so I am just doing the waiting game now …Ruby 

Hi angel152, 

I am sorry to hear that you have been experiencing the anxious waiting game and I am sure some of our users will be along soon to offer their support and advice.

In the meantime please do call our helpline at 0808 800 6000 who will be able to help answer some of your questions and offer a friendly ear. The opening times are below. 

Monday-Friday, 9am-5pm
Late opening Monday and Wednesday 5pm-7pm,
Saturday, 9am-1pm

Best wishes, 


Hi ruby are you a patient at ninewells? Sorry to read what you are going through x

Hey to you Ruby

That’s tough and rough for you girl. 

Hoping the lump in you recent recon boob isn’t anything serious again.

What type of recon did you go for? Implants or self tissue?? I’m a mastectomier of 2006 and 7. Had first implant recon op in March 2014, plus all the inflation appointments. Op appointment for silicon installation was Xclld a week before and I didn’t follow up due to a massive mental slump. So I still have expanders in which are well past their two year sell by date. 

Looking for another surgeon that doesn’t have trainees to do the work, as I suffered damage from expander op.

Keep us in touch lovey

Dellypoos xxx