The waiting is so hard

I know I’ve posted on her before but the waiting for scan results is really making me depressed. I had a ct scan last Monday and now waiting for results. I’m petrified. The dr has said I have a v slow and not aggressive bc. But as I have two areas of bc they add up to 5cm and it’s in my lymph nodes. I’m scared I’m going to die and not see my children grow up. Please can anyone help try and reassure me.

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@stafford22 the waiting for results is so hard. I found a lump in April 2023 and found out it was invasive in May, then an MRI (more waiting) to size the tumour found something else in the other boob. I had another invasive tumour, smaller and lower grade. I was advised that even though I had two tumours it was curable. I had a bilateral lumpectomy with lymph node biopsy (more waiting but was clear) followed by chemo (12 weekly Paclitaxel) and Herceptin (1 year), radiotherapy. I’m now on Letrozole for 5 years and Zoledronic acid (6monthly for 3 years). I was told that in 10 years I would look back on this as a blip. I’ve had one annual mammogram which was clear, it put my mind at rest as I felt lumps from the surgery but now know it’s the scarring. I will be checked annually for another 4 years.

I would normally say to call the BCN nurses but they are not available until tomorrow after 9am .

  • Helpline: 0808 800 6000 (Mon-Fri 9am-4pm; Sat 9am-1pm). Speak to our trained helpline team. No questions are too big or too small.

MacMillan have a helpline available today until 8pm if you would like to talk to someone.

You can also call Samaritans on 116 123 for free 24/365 to talk.

I’m sure some other wonderful people will answer your thread.

Take care and thinking of you :smiling_face_with_three_hearts:

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Yes the waiting is hard. It will get better. Your dr Sounds very reassuring- follow that thought.
Try to keep busy and do some nice things. Just one day at the time.
Once they know the CT results and a plan is agreed things will get easier. Breast cancer treatment has improved so much over the past few years too, so you will benefit from that no doubt.
You can do this.

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Thank you for your replies. I’m going to phone the no panic helpline. Macmillan reccomended them.

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Hello Stratford,

I was where you are just over three years ago and I still look for positive stories now and every one helped. My cancer wss grade 3 and in 4 lymph nodes…so the wait for the ct scan results made me feel sick. I remember the fear so well. Anyway, it was clear. I then had a bone scan in 2023 due to pain, which was clear and have just had scans for everything again in October so I could start a trial with a clean bill of health - also clear.

The fear, sadly, never really goes. But there are a lot more treatments now. If you go onto the nhs predict version 3 and input your details, the survival stats are very heartening.

It is not likely to have spread if it is slow and non-aggressive.

I hope you get good results, and this is far more likely than not. X

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Hi @stafford22. I was diagnosed in 1999. I had 5 tumours in the same breast and 2 lymph nodes were infected. I had a quarter of my breast removed, chemo, radiotherapy, 5 years Tamoxifen and 5 years Letrazole. Like you, I worried that I wouldn’t see my children grow up. Although my cancer did return (diagnosed in 2023) I had 24 good years and have been able to see my children grow up and am now enjoying my grandchildren. I am not curable, but am being treated and am not terminal. I wish I had been told to continue with the Letrazole. Treatments are a lot better now and new ones coming along. Many people live long and normal lives after breast cancer. Everyone’s journey is different but I wish all the best for yours. Sending hugs to you xxx

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Thank you for your replies, the bcn is chasing my results every day now as she understands how much it’s affecting my mental health. Praying the results are clear x

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