Hello, ladies 
… just messaging because I was supposed to be seeing my consultant on Thursday with the results from the biopsy on my left axillary nodes (TNBC in my left breast), but the results are not in for todays MDT meeting hence delaying by one week … I had a private diagnosis on January 22nd, then transferred to NHS ULTH (Lincoln), saw my consultant the week after who wanted to do another biopsy on my lymph nodes plus a CT scan … CT scan is tomorrow, so no doubt I’ll be waiting another week or so for those results! I genuinely thought that with being diagnosed with an aggressive breast cancer, that the process to treatment would move quickly but this just seems slow … I was referred on 5th January, so I would expect to start treatment before the 7th March if NHS Guidelines are followed, but I am aware that ULHT is one of the lowest ranked in the country for hitting cancer deadlines … may I ask you ladies with experience of TNBC, what is the ‘normal’ waiting time before diagnosis and treatment starting? All I can think is that this cancer (measuring at 22mm a month ago) is spreading rapidly whilst I wait … and wait … and wait 
- thanks so much 
I was diagnosed tnbc June 2017 had operation August 2017, 6 rounds chemo October 2017 - January 2018 - 3 x fec, 2 x docetaxol and 1x fec then 15 rads and 5 booster rads. I’m sure other tnbc’s will pop on and share their experience too 
i know there have been tnbc’s have chemo first before operation too your treatment plan will be tailored specifically to you and treatments have moved on a lot since I had mine I always held onto the fact my team had seen it all before and knew what they were doing 
Shi xx
Hi /although I didnt have TNBC i did have a lump in my breast measuring 5 cm that grew from 1cm when first discovered. due to the odd system in the northwest i chose to transfer from Bolton to Oldham and north manchester for treatment, which delayed surgery first, to remove the lump, then 2nd a omnth later to clear the lymph nodes on the same side under my arm; then chemo with cold cap, 6 sessions and radiotherapy after.
To avoid repeated surgeries the MDT team need to be sure of parameters, hence you wait a little longer for the true facts. believe me once they have them your treatment will begin to move again.[ i know there is a teaching hospital at Norwich, but not sure how far you are from there, or if you wish to transfer, because you need to factor in all the future treatment continuing there, and discuss with your team first]. your team are fighting for you and their support/ or my support was outstanding as i’ve heard it is from others, but yes patience is difficult at times. Love and light Moonsox xxx
Hi, I had TNBC in 2022. I was referred on 12 January, had first out patient appointment late February which included a biopsy of my left breast. I had a mastectomy on 1 April. Covid was still around so I had to self-isolate for two weeks before surgery otherwise it might have happened sooner. I have not had chemotherapy, just radiotherapy and am absolutely fine. As has been said, trust your team they know what they are doing. Waiting is hard for everyone, but I hope you get treatment soon because once it is all underway it is much easier to cope. Best wishes.
Hi there
I was diagnosed with stage 1, grade 3 TNBC on 19th November 2025 and had a lumpectomy and lymph node biopsy 4 weeks later on 18th December. I got the results from this on 14th January this year, which were clear margins and nodes, however they are recommending chemo and radiotherapy as precautionary measures with an 8-12 week wait for the oncologist appointment.
The lump was estimated at 10mm at my initial GP appointment on 16th October 2025, measured at 11mm by ultrasound on 4th November, 12mm by mammogram on 21st November and ultimately was found to actually measure 10.5mm after removal on 18th December.
Treatment for breast cancer is very individualised nowadays and can depend on a number of factors. I’m sure your team will be following the best course of action for your situation.
I know it’s a very worrying time. I was convinced mine had grown between first finding it in October and having it removed in December, but, as you can see, it really hadn’t.
I wish you all the best with your treatment x
Hi @big
i had Tnbc in 2021. Mammogram and biopsy 5 Feb, results 19 Feb. Chemo started 3 March. 4 rounds of EC (3weekly) then 12 rounds of paclitaxol weekly. Mastectomies and nodes 19 August 4 weeks after chemo finished. Was positive for BRCA2 so 1 boob for cancer and one for prevention. Cancer had gone completely when tissues tested. I’m in North East of England.
Hope this is of help to you.
Wishing you well xxx
Hi. Ur v similar to me. I was diagnosed Dec 15 th 25 with stage 1 grade 3 TNBC lumpotomy Dec 19 th. All clear margins Pathology results Jan 12 th I start chemo this min 16 th 8 rounds every two weeks till May 25 th. One month break and 15 x 1 radium lasting 3 weeks. So I think it’s being v fast. ??
Wow the timeline really is very similar. And yes, I’d definitely say four days from diagnosis to surgery, then one month from results to chemo is excellent service!
THANK YOU so much, ladies, for all responding 
… TNBC feels quite a lonely experience (and I’m only 4-weeks since diagnosis) because of the nature of it and the fact that you go down a different treatment path, ‘spread’ anxiety and reoccurrence anxiety … my second axillary node biopsy came back negative so that’s a positive, and I had a PET CT scan on Monday so I am waiting for those results … I’m just desperate for treatment to start … I know that this is a totally normal feeling, but with TNBC, the urgency is magnified, isn’t it!
Anyway, Happy Saturday ladies - and - thank you … I may call on you all for advice and/or reassurance further down the line if that’s ok 
Hi. I too was diagnosed with TNBC in my Right breast on 8th Jan. having had scans and biopsies done on 30th Dec. I am due to start my weekly Chemo on Thursday 19th having had another Vacuum biopsy on my left side for atypical cells today and a second CT last week. I’m having a PICC line inserted on Wednesday prior to the chemo. The waiting has been horrific and the worst part of it so I fully sympathise with you. the Oncology nurse I eventually spoke to today was very unhelpful and not compassionate at all so am thinking of asking for another nurse. Sending you lots of positive vibes.
Thank you @madwife … I received my PET CT scan results today, all clear .. so, now I’m waiting for my oncology appointment … more waiting, but at least for the moment I know that the cancer is within my breast only … a positive out of a negative, and I’ll take that 
… keep in touch