Hi there, just wondering if anyone on here has been on Trodelvy longer than a year? I would be very grateful to hear from you.
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Hi lovely, I hope you are doing well. I am only starting cycle 3 on Thursday. So far, so good in side effects apart from the hair all going. I am stage 4 TNBC. Mets to bones, lungs, and liver.
I am sorry i can’t help with being on a year, but i am interested to see how you are going on Troveldy.
I haven’t had scans yet, but unfortunately, every treatment, which this is my 5th line in 17 months, i have had progression. I was first diagnosed er,pr positive her 2 negative. De-nova at 49.
But after 3 lines of treatments, i pushed for another biopsy, and my status had changed to TN. I have the mutations pik3ca and TP53. No particular genetic gene was found when i was doing my tests as a precaution of BC having it on both sides of my family.
I am on a trial list for Sydney phase one trials if this doesn’t work. I’m not sure if i will meet the criteria or if i will continue treatments as it’s a long way to travel from where i live in Australia. My oncologist has told me to get my affairs in order now, i have two teenagers that need me. So i am praying this troveldy is the one. Keep strong and i hope someone can give you an answer. Take care 
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I have been on Trodelvy for 16 cycles now and one year will be on April 12th. It’s my 5th line of treatment.
I was diagnosed de novo stage 4 breast cancer in 2020 with mets to lymphnodes, liver and bones. I was 24 about to be 25 and i was er/pr positive her2 negative. Last year-before switching from taxol to trodelvy the cancer mutated to tnbc.
Currently- I have a little spread to my liver- a lesion about 1.2 cm and im getting an ablation tomorrow.
I feel like this is the start to another mutation and I feel as though im at the tail end of this medication.
4+ years with a terminal disease is not bad!
We’ll see what happens next!
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