Today is Secondary Breast Cancer Awareness Day 2014

Morning All

Today is the day!!  I will be sharing with you through the day what is happening in the media, Twitter and on Facebook.

So far today we have an article in the Daily Mail

dailymail.co.uk/health/article-2790374/breast-cancer-victims-left-needless-pain-terminally-ill-failed-care-system.html

Also, Diana Jupp, Director of Services has given a radio interview on LBC this morning with Lisa Aziz, unfortunately a link is not available.

More to come soon

Anna

Forum Coordinator

Our petition has gone live

breastcancercare.org.uk/hiddeneffects/other/take-action-hiddeneffect-pain

Please sign this petition which is asking the UK Government to put secondary (metastatic) breast cancer high on their agenda.

Please share this link with family and friends and ask them to sign as well.

Anna

Thanks, BCC folks!  I like the infographic :slight_smile: and I’ve signed the petition.

 

Just a comment about “hidden effects”.  It might be just me (chemo brain), but it’s only today that I’ve realised it is specifically about “secondary” bc… (or is it??)  Last year’s “body image” topic was about both primary and secondary bc.

 

PS… don’t forget the BCC special live chat tonight, those who are eligible and able to join in.

Just to let everyone know that our Helpline will be open from 9am to 9pm today. 

QVC have their annual Be Aware, Show You Care programme tonight in aid of Breast Cancer Care, 6-9pm.  all profits are donated to Breast Cancer Care and everyone taking part are dontaing their time.  They will be including mentions and focus of secondary breast cancer as well as primary awareness. 

If you are looking for that bit of extra support, please do call the helpline and of course there is also our Special Live Chat tonight and our regular secondary live chat tomorrow night.

Take care

Anna

Another blog about living with secondary breast cancer and quotes

breastcancercare.org.uk/news/blog/majority-secondary-breast-cancer-patients-needlessly-suffering-pain

Anna

I’ve just signed and shared on my Facebook page. Thank you

We are now over 1,000 signatures!!!  Keep up the good work everyone and spread the word.

Anna

Our press team have been flat out busy arranging for all the following to be in both national and regional papers.

We arranged for audio clips from two of our case studies, Eleanor and Rowena, speaking about the impact of pain from secondary breast cancer on their quality of life and the importance of referrals to a palliative care team, to be featured along with the announcement of Breast Cancer Care’s new findings.  This has been shared by Sky News Radio.

The Sun: Plea over Big C hell is the headline in the Sun - Thousands of cancer patients are suffering with pain unnecessarily, a survey by Breast Cancer Care has found. Includes a quote from our Clinical Director Dr Emma Pennery.

In Various Regionally Printed Papers

The Scottish Daily Mail

The Scottish Sun

The Glasgow Herald

East Anglian Daily Times

In Various Regional online news coverage

Bournemouth Echo.co.uk

York Press.co.uk

Swindon Advertiser.co.uk

This is Local London.co.uk

Echo News.co.uk

Belfast Telegraph.co.uk

Bromsgrove Advertiser.co.uk

Dudley News.co.uk

Halesowen News.co.uk

Small Holder.co.uk

News Shopper.co.uk

And dont forget to sign the petition

breastcancercare.org.uk/hiddeneffects/other/take-action-hiddeneffect-pain

<iframe src=“//player.vimeo.com/video/108451759?byline=0” width=“500” height=“281” frameborder=“0”></iframe>

Secondary Breast Cancer Awareness Day Petition from Breast Cancer Care on Vimeo.

<iframe src=“//player.vimeo.com/video/108553915?byline=0” width=“500” height=“281” frameborder=“0”></iframe>

SBCAD – The pain management campaign from Breast Cancer Care on Vimeo.

Just a reminder that there is a special Secondary Live Chat tonight where anyone with secondaries can come and share their thoughts and feelings about living with a diagnosis of metastatic breast cancer.  We will be encouraging people to discuss how they manage their pain and to share their experiences of pain management; what was helpful and what wasnt.  This is a supportive session and I look forward to seeing you there.  It is on 7.30 - 8.30 via the usual Live Chat link breastcancercare.org.uk/community/chat .  If you are already a live chat registered user, no need to do anyting else, just join us as usual, if you are not a regular live chat user, please do register via the same link.  It is helpful if you use the same user name as the one you use on the forum, that way cyber friends can recognise each other.

Best wishes

Anna

15 mins to Special Live Chat, looking foward to seeing you there. 

Anna

Thank you to everyone who took part in tonights live chat.

I thought you may all like to read the latest as well.  A blog published on the Huffington Post by our own Head of Policy and Campaigns, Danni Manzi

Best wishes

Anna