Thank you so much everyone who has contributed here, I can feel that it will be so helpful to me in a few weeks.
I’m off to see Professor Chemo tomorrow to learn what cocktail he plans for me … you have given me so much info … my list of questions is now twice as long!!!
Love and light to you all
Jan
x
Moving this to the top
A couple of things to add that are now the mainstays of me treatment in the later stages (last dose on Tuesday)
Bum bag, leaves your hands free and no restriction on your shoulders, good when you’re post surgery.
I recommend the snugpak response pack which you can buy online, it has a very accurate comment on it’s label… “Tested in war, never beaten”. it’s big enough to take a tool kit! Mine always has most of the things from this thread and 2 small bottles of lucozade.
And here’s the star prize for me that will never ever be without again… Aloe Dent lip balm with Lysine. I was getting over run with cold sores and ulcers. Lysine kills cold sores dead apparently, apparently this is true and makes for soft kissable lips again. I lost mine and within 3 days was cursing my cracked dry unhappy lips from the FEC again.
Same goes for Aloe vera based tooth paste, never going back to the old rubbish. OH prefers it too.
Bump
I had extremely bad reaction to first FEC - gastric bleeding which saw me ambulanced into hospital in the middle of the night. That was the start of 5 horrendous days.
Since then I have refused all steroids as they were deemed to be the problem.
And this time round it is much much better - no vomiting at all and manageable nausea.
I had Ondanastron IV with the chemo and then have managed it at home with a combination of Domperidone and Ondanastron tablets.
Other very useful anti-sickness meds are the Domperidone suppositories - when you can’t keep anything down shove one up! They have the added benefit of lubrication when you are constipated.
There is also Buccastem - a neat little pill you can tuck under your top lip to stop vomiting when nothing will stay down.
Just wanted to let people know there are options aside from steroids …BUT there are some chemo regimens that need steroid cover because of risk of anaphylactic shock etc SO IT IS ESSENTIAL TO CHECK WITH YOUR ONC to see if you can do without them.
In the US steroids are not used so habitually for the treatment of chemo-induced nausea.
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Another bump x
encore un boomp!
and again for Irina - starting FEC on 2nd Oct and would like to hear from anyone else - especially anyone starting round then
lolx
Hello all, I am going to be starting around that time Irina. I am deciding whether to take part in the Tact 2 trial, but otherwise it will be FEC.
Where do you buy the Aloe Dent lip balm with Lysine? I often get cold sores and ulcers - sounds brilliant.
Maggie xxxx.
Bumping this up for Cat.
Ann G.
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Another bump xxx
And another !
Bump for Cazzb - starting FEC on 14th oct
Bump again for anyone needing this info
up we go…
Bumped again for AnnieH
Bumping up this on right to the top xx
bumping
bump!