tram nearly a year on, a few questions

Hi
havent posted for a long time I had my tram flap reconstruction in December and am now back in work full time and absolutly shattered! the cry of the tamoxifen taker!

just a couple of questions if anyone could help?

will my tummy ever feel back to normal, it sometimes feels like its contracting inside and goes as tight as a drum!
I worry that I am going to do myself some damage, stretching lying down etc, when I lie down or get up in the morning i am still rolling on to my side rather than just sitting up, I was warned about possible hernia if i lift anything heavy so i am worried about this.
also wanted to start doing some exercise, will probably just go on the running machine (walking only!) and maybe the cycle at the gym my doc has told me this would be ok, but I wanted to ask about the recon, when they take muscle to do the recon do they take all of it from one side? can you by stomach exercises increase it back to its previous size or is it the case of wants its gone its gone?? , wanted to ask my doc this but thought he would think i was really stoopid!!
thanks
Caz x x x x

Hello - I had a tram flap three years ago. I’m currently doing research to find out how many other people have had the same dillema as myself (that’s how I found this website) to determine where to go from here. I’m hoping mine is a ‘worst case’ scenario.

You see, at first my tummy was very tight on the lower abdomen, but slightly bulgey at the navel area. It looked like the abdomen of a very young child. I figured it would smooth out over time. Next thing I knew, I’d gotten a hernia in the area the doctor had removed the muscle for the tram. It wasn’t until that point that the plastic surgeon told me (as if I should instinctively know this) that I was never to pick up anything weighing more than 20 pounds (a bit under 10 kg)! No one had ever told me my entire lifestyle would have to change after the tram flap, nor had they warned me not to pick up things. Normal things (a bag of groceries, a basket of laundry, the vacuum cleaner, etc) weigh more than 20 pounds. So I had to have hernia surgery.

After that surgery I was very careful not to pick up anything of any weight, but it’s not just weight that’s a problem…even getting in and out of the car, walking up stairs carrying anything, certain movements, can still strain that area. Eventhough I was careful, one year later, another hernia developed and I had to have a second hernia repair. This time I insisted on having physical therapists work with me to strengthen what was left and to learn how to move/work more carefully to not put a strain on the muscle. That went well and my tummy actually flattened a bit for the first time. But even still, I’ve never had a ‘waist’ since the tram surgery…just an infantile shaped belly.

The physical therapy was a few months back, and I (stupidly) slacked off and haven’t kept up with the exercises (most were modified Pilates using a big ball). Now I seem to be developing a new problem. The upper abdomen (right where the ribs separate) sometimes feels like it’s tearing away. I’ve yet to see my surgeon to find out what’s going on.

Overally, I regret having had the tram flap. Not because the surgery itself is bad per se. And since mine was done at the same time as my masectomy, I felt ‘whole’ and all. (Though a bit like Frankenstein’s sister – the tram cut me from hip to hip.) I was always a large size and the idea of having a ‘tummy tuck’ sounded like the only bonus in the whole cancer/masectomy thing. Being large-breasted, lacking one would be pretty obvious. (A small-breasted friend had a masctomy just a few months prior to mine and she never had any reconstruction or prosthesis – and no one noticed.) It just was never well explained to me and no one ever took my lifestyle into consideration. I’m not a sit-on-the-sofa sort of person, I’m active and have always done heavy yard work and house work myself. Now I can’t even carry simple groceries in the house or take a roaster out of the oven or vacuum without asking for assistance. I’m not sure if the surgeon botched the job or if it’s my fault (for not knowing I wasn’t ever to lift things).

And…I’m sorry if this isn’t a positive answer to your post. I guess my answer would be to be sure to consult your physician/surgeon before exercising. Hopefully your case is nothing like mine, but be careful. I was glad to get some ‘safe’ exercises from the physical therapists, but now I’m beginning to wonder if even those were safe enough.

Never think the doctor will think you’re stupid. It’s ALWAYS best to get as much information as possible. They’ve heard those questions before anyway. :slight_smile:

Be well.

RobinM

Hi RobinM
thanks for responding, I was told about the hernia prob before I had the op, my surgeon told me that a mesh was put in where the muscle was taken out to try and prevent hernias (but this could also lead to an infection) but I am doubly aware of not lifting anything heavy because i have had all my nodes removed so have the fear of getting lymphodeama as well! so I tend not to lift “heavy” things or do anything too repetative with my right arm ie painting, ironing etc! as you say it does tend to change your whole lifestyle.
I have an appointment with my surgeon in Dec i will ask him my “stoopid” question, I know they have probably heard it all before so I shouldn’t be bothered.
once again thanks
x

Hi CurlyC

They put a mesh in during the initial surgery. Another with the first hernia repair. And another in hernia repair #2. The mesh is held on with little metal clips and the first mesh broke loose for whatever reason.

I’m glad your doctor did tell you about lifting. I’ve had some lymph nodes removed and no one ever mentioned that would be affected my lifting. (Then again, you said you had ALL your lymph removed…maybe because i’ve still got some it’s different?) And no one ever mentioned repetitive use of my arm being a problem. Interesting what docs think we need to know about our own bodies, isn’t it?

Do you know of any other ladies who have had the tram flap surgery? I’ve never met anyone else who has had it and I’d really like to talk to other ladies to see how things have worked out for them. Not the ones who JUST had the surgery, but like you and I who are a year or more down the road.

Thanks for your quick reply. Best wishes to you and yours (make that doctor appointment soon and get your questions off your mind).

RobinM

I am posting this on behalf of new user Siobhan

Kind regards
Lucy
Moderator
Breast Cancer Care

Hi I had masectomy and tram flat recon in July 2006 following two unsuccessful lumpectomy’s. Whilst I still expereince strange feelings in my stomach at times generally I feel really good. I started doing gentle Yoga within weeks of the operation and was back at work within 6 weeks. I play tennis, swim go to the gym/classes etc but just take a little caution with some exercises. From time to time (usually when I havent exercised a feel a little uncomfortable in my tummy area). When I feel really uncomfortable I find that swimming really helps to stretch out the tummy area. I was told to be careful immediately after the operation but have not been given any restrictions since and it has not stopped me doing anything I have wanted to…

I am actually very pleased with the result of both ops and have just had some revision work on the flat to make it more of a match to the reduction I had in Jan 07. Next stop to fill a bit of a dip in the top of the flat, a nipple and then a tattoo - I feel very lucky to have been referred to East Grinstead Hospital and cant thank them enough for what they have achieved. Brilliant staff.

S

Siobhan -

It’s beginning to sound like my doctor might have been a bit overzealous and removed too much muscle. Glad yours went so well.

I opted not to have the aereola/nipple/tattoo done. Later, I heard from one of my doctors (whose wife had BC 12 years earlier and who’d gone through all this) that the tatoo fades and needs to be redone a few years later. Actually, this part seems to be what my plastic surgeon was expert at – when I chose not to go this route, she never treated me like a patient again after that.

Glad to hear this went better for others.

Hi
am going to start doing some gentle exercise I think its time! I am not an excercise person really but have put on weight with the tamoxifen and the zoladex injections so i feel its a necesarry evil!!

Not sure if i am pleased with my recon at the end of all this, feel a bit like a patchwork quilt, huge scar hip to hip, my recon broke down and i have a big hole in the cleavage area and the rest is just covered in scar tissue, big red patch on my leg where i had to have a skin graft, I am always worried about the hernia thing and doing some damage to myself! when i mention it to anyone they seem to think having a tummy tuck is just brill! … if only if was just that!
thanks for your responses
ttfn
x
x

Sorry, I just want to understand better… Your reconstruction broke down? It just didn’t attach properly or did you have an infection? Sorry…but i’m trying to visualize how there’d be a ‘hole’ in the cleavage area. My incision was hip to hip, new belly button and all, but the breast incision was on the outside (armpit to t*t, for lack of better way to explain that).

My breast incision took 13 months, hundreds of visits to the wound clinic, lots of odd meds (silver, blood-based ointment), POTENT antibiotics (that made me much sicker than chemo ever did), and I forget what all else. ((It seems when they took my belly fat, they took a bit of some sort of ‘gut bacteria’ with it…and only afer a couple months did anyone test to see WHY it wasn’t healing and found the whateveritis-occoccus in there.)) The surgeon wanted to cut it out and trim the reconstuction down (to a size not worth having had all that surgery for). I’d had enough surgery and my oncologist stood by me when I opted to go to the wound clinic. Of all my choices in this whole mess, the wound clinic was the best choice. Saved the reconstruction…took a while, but it worked.

But what shape is your stomach, Curly? and have you had any issues with the abdomin at all? Did you ever get your waist back?