Trastuzumab only?

Hi all!

Has anyone decided to just have trastuzumab (Herceptin) after having a mastectomy for high grade dcis with idc around 5mm??

I’m in that situation - on the borderline for treatment. I don’t want to risk the side effects of chemo for a couple of Predict percentage points but I’m wondering whether it might be worth just having the targeted biological therapy as it seems to have negligible side effects :thinking:
What are the injections like? Are they pretty horrible?!

I’d appreciate your thoughts :smiling_face_with_three_hearts:

Hi I’m HER2+ which is what Trastuzumab/Herceptin is used to treat. My understanding in the U.K. is that it can’t be given without chemotherapy.

There is a thread called HER2+ and need some buddies, I believe there are a few people on there who didn’t have chemo/Herceptin(or Phesgo) as there cancer was caught early and the risks outweigh the benefits of the treatment.

From my experience, the injection can sting quite a bit, I had 18 cycles and after about 6/7 a nurse said she found injecting a little and the. leaving for a 30 seconds before continuing helped with the sting. It did. No lasting marks just a bit tender for a day or so at the injection site.

I would suggest calling the BCN helpline to chat this through with a nurse 0808 800 6000 m-f 9-4 sat 9-1

:smiling_face_with_three_hearts:

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Thanks for all the info :blush::heart:

I’m a craftsperson so the chemo for HER2+ is too risky for neuropathy and not worth the benefits for me. But doing nothing feels a bit risky so I’m just considering my options before my oncology appointment…

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Really good idea to get as much information before your appointment because then you will understand more about what they are suggesting.

They can adjust your dose or ‘type’ of chemotherapy to prevent neuropathy. I had existing health conditions and a family history of heart disease so started on a lower dose and had a couple of adjustments due to allergy. I still managed to finish all my treatment plan. I had Paclitaxel with Herceptin.

I hope your appointment is productive.

:smiling_face_with_three_hearts:

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