Hi, just been diagnosed with bone mets following triple negative diagnosis 2 years ago. Chemo & immunotherapy have been mentioned. Where can I find more info ? Also being fitted with a back brace & not clear what this will do.
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I do believe there is a Facebook group for people with secondaries i am sorry cant remember the name. Some of these Facebook groups if they are run by good administrators are so good as ypu can talk to others about their experiences. Mostly they are xlosed geoups as well. I have lobular and have got so muxh info from the lobular bc group xz
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Very sorry to hear of your progress.
I’d suggest to call the helpline of breast cancer now. They are very good and calming too and can point you in the direction of some leaflets with info for tbnc secondaries and treatment.
Possible options could be capecitabine (tablets) or weekly taxol chemo by IV. Alternatively there are some very new tbnc drugs for secondary BC like Trodelvy.
Avoid Google as there is a lot of misleading and outdated ‘info’ around that’s unnecessarily unhelpful.
Not sure what the Back brace will be for.
Breast cancer now helpline will be helpful.
Do you have access to a good nurse specialist in your team? Also if there is a cancer information centre or Maggies centre in your hospital they are useful.
The immunotherapy could be Pembrolizumab (brand name Keytruda). A significant proportion of TNBC tumours test positive for something called PD-L1, which is part of the body’s way of creating an immune privileged zone around critical organs. If your tumours have this, it means the immune system can’t see them to clear them up. The immunotherapy drug Pembrolizumab is designed to take the brakes off this process for people who are eligible. It’s usually initially served up with Paclitaxel or NAB-Paclitaxel. It does also expose your critical organs to the immune system so you can also experience some organ damage as an unwanted side effect.