Hello,
I wanted to get an overall feel for what treatment regimen people were recommended or taken w/ similar traits as mine. Here’s my info:
*Stage 2A (grade 2) IDC w/ 2.1cm as largest tumor (there are 2 known so far) but no lymph node involvement.
*Grade 2 DCIS w/ necrosis & calcifications, + my breast is full of high risk pre-cancerous type of tissue (ie, dense breasts, sclerosing adenosis, atypical hyperplasia, complex sclerosing lesion, columnar-altered ducts etc).
*ER+, PgR+, HER2-,
My treatment so far: lumpectomy on 6/20 but margins were positive so re-excision lumpectomy scheduled for 7/7 (tomorrow, yikes!!). I don’t know what happens if the margins come back positive again (I might insist on a double masectomy rather than another lumpectomy). I haven’t received my oncodx results back yet (should this week) but I was told at this point it’s most likely radiation but no chemo.
I was curious, for those w/ similar presentations as mine-
*what are your details re stage, grade, journey of treatment so far, etc
*what was recommended for your treatment?
I wish everyone love & good wishes on here!!!
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So i was Stage 1 but grade 3, 18mm tumour, dense breasts (tumour not detected on mammogram).
Oncotype back at 10 so no chemo.
Just finished 16x radiotherapy
On tamoxifen (hormone blocker), zoladex (ovary suppression), calcichew (high strength calcium/vitD) & due to start zometa infusions in Sept for bone health.
Hopefully your oncotype results are back soon and ypu can get your treatment plan agreed.
Good luck! X
Hi. Best of luck for tomorrow.
I have invasive lobular bc. Stage 2b, Grade 2. HER2 negative and ER/PR positive. Lymph nodes clear so far but having a senitel node biopsy.
3 areas of cancer total area 5.8cm so having a mastectomy and DIEP reconstruction this Thursday. They said I would very likely need radiotherapy but chemo will depend on oncotype result.
I was wondering when I would get the oncotype results? So nearly 3 weeks for you? Also when do they tell you if the margins were clear? And would they be able to test lymph nodes during the op do you know? I’m in Bucks UK.
Thanks for anything you can share and hope my comparison was helpful as it sounds similar other than the cancer type.
I’ll be thinking of you tomorrow x
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Thank you, cujo! I hope your treatment goes smoothly!
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Hi TiaMaria-
First off, good luck tomorrow!! You will feel so much better once surgery is over than you do right now, I bet ! At least that’s the way it was for me. To answer your questions, I got my onco-DX and my score was 11. My surgery was 6/20/25, then they held onto the tumor for their in-house pathology testing and told me they sent it off for onco-DX testing on 6/24. It took 12 days after that to get the results back in my portal online. For the pathology results (and news on margins), for the first surgery, I got those results back on 6/24 (this was over a weekend). I just had my second surgery on 7/7, it is now 7/9 and haven’t received results yet but maybe tomorrow ?? Yes, for my first lumpectomy the first time, they did take out 2 lymph nodes at that time, which I think is pretty standard. You should definitely ask before surgery tomorrow if you don’t know! I will be thinking lots about you and holding your hand there in spirit. It will be over before you know it. Please let me know how you’re doing !!
3 areas of cancer total area 5.8cm so having a mastectomy and DIEP reconstruction this Thursday. They said I would very likely need radiotherapy but chemo will depend on oncotype result.
I was wondering when I would get the oncotype results? So nearly 3 weeks for you? Also when do they tell you if the margins were clear? And would they be able to test lymph nodes during the op do you know? I’m in Bucks UK.
Hi Coleitt
Thank you so much for your message and encouraging words. Leaving home in half an hour. I’m starving already haha. Feeling very nervous so need to just get going now.
Thanks again. Hope all went well with your second surgery on 7th. How are you feeling? xx
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You’re probably in surgery right now ! I’m doing well actually and am expecting to go back to work next Saturday as long as I continue to heal as expected. Still waiting for results on whether they got all the cancer this time. Once you’re settled and up to it, let us know how you are doing !
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