Good luck for today kate on the journey to beat this rubbish now. I am still waiting to hv scans got one Saturday and one next Wednesday and hv the date if 11th for start of some kind of treatment. Good to be at work and busy but sometimes at night hard with the mind demons ! Have strange sudden melt downs as well such strange weird emotions. All of a sudden as well seems so much about cancer on tv adverts program’s think just more aware no difference really lol I shouted at the tv the other night " ok I get it " lol going crazy already ha ha hv a good day and await to see how you get on x
Morning ladies.
Kate - thinking of you today. Hope it goes well, just think one more down.
LynnAnn - good luck too - getting another one done!
Bali - I’m so pleased you are home. I was telling my husband about you and we’re so shocked at how you have been treated. Enjoy home and get yourself better soon. xx
Nicki - hope your onc appointment goes well today. Take care.
Bev - hope your bloods are good today ready for tomorrow.
Sorbet - is your nausea any better? Take care and rest.
Fairy - rest when you can and hope you continue to improve this week,
Ali - is your chemo on Monday? Do you get your bloods done tomorrow?
I’m doing well and have loads more energy this week. Just got a sore throat though - hope it’s not a cold. I get paranoid at the smallest thing!
To everyone else, have a good dat and keep the SE’s at bay.
Love Andrea.xx
Morning ladies.
Kate & LynnAnn - Hope it goes well and no hitches. I love the steroid rush - you get loads done but no sleep and when sleep does come so do the weird dreams…enjoy!
Bali - Hope your feeling better now your home. Plenty of protein fruit and veg (which you probably can’t taste) and loads of loving to get your strength back.
Nicki - hope all goes well today with the onc.
Bev - good luck at the vampires den and fingers crossed for good bloods.
Sorbet & Fairy - R & R for you my dears. Couch potato time
Ali - Monday will soon come round. I’m next week too -1st FEC.
Andrea - I have the same sore throat - it comes and goes. Sometimes I think I have a cold starting but it’s just one of the joys of Tax.
SarahJane - I hate that advert with that woman sitting there and the sad music. I errupt everytime it comes on saying it is just not like that. Why don’t they film a chemo ward with the laughter and devotion fo the staff. Oh, it makes me mad.
I spoke to my friend this morning who is 2 years out the other side of this. Good to talk as she could relate to all my feelings esp the one about getting fed up with people saying you’re an inspiration, stay strong and be positive - what choice do you have you just have to get one with it. Know they are well meaning but man does it do my head in. Rant over.
Ade xxx
Not so much on here today. Have you had problems posting? I have tried twice already so hopefully third time lucky.
Kate - sorry you had a hard time today. But you’ve done it girl. Officially over half way now. Wishing you minimal side effects.
Bevster and Nicki - hope you’re appointments went ok today. Bevster Good luck for tomorrow.
First Tax done for me. All went ok. Stopped for cuppa and cake on the way home. Small walk after lunch and then soppy film.
All power to you ladies on the cold cap. I was so anxious on my first chemo I just wanted to escape from the hospital ASAP. Lady next to me today on her first chemo with cold cap, she was very stressed and I really admire her for persevering.
Positive but tiring day so Looking forward to a good night’s sleep, steroids permitting. Sleep well ladies, I know that’s difficult for a few of us at the moment.
Lynn x
Welll done LynnAnne and Kate for today, another one ticked off.
Bev, good luck for tomorrow
All ok with the Onc, except i have an infection in a vein in my arm, so i have to go and get some antibiotics tomorrow. It was very sore and i was finding it hard to change gear in the car!!! My lovely husband kept trying to get me to take his, as he has an automatic.
Bloods on Monday, ready for round 4 on Wednesday. Not looking forward to taking all those steroids, being hyper and then crashing!!!
Off for lunch with my friend tomorrow, she lives on a barge and they are moored up next to a good pub, result!!!
Have a good nights sleep all
lots of love
xxx
Hi luvlies ?
Thank you for your best wishes. Yep…happy to report that the vampires were duly quenched with my bloods today so it’s full throttle for my last chemo cocktail tomorrow. Yep…lucky for me it’s my last one!! Only had to have 4 FECs! Just hope I can get through it & endure the cold cap one last time!! ?
After this it’s herceptin for me…still on 3 weekly cycle so keeping a routine at least. More SE’s & heart scans etc to deal with next plus have my appointment with radiographer main man on 11th November. Yep… It’s all happening! Somewhere amongst all this I’ll be popping the old tamoxifen… Good lord I’ll need a separate diary to know what’s happening when! Still not complaining though…just want to keep the treatment wagon rolling…soonest on with it soonest done n dusted & homeward straight to champers at the Ritz!! ???
Hope everyone is doing ok & treatments etc have not been too hard on you. Wishing you a restful SE free sleep.
My eyes are sore & tired so please accept my apologies that I’m not responding individually this eve…sorry ladies ?
Nite nite all.
Love & hugz ? B xxxxx
Just a quick note before bed for Mel66. I guess SEs different for all of us. I Was told that any nausea should be minimal and that has proved to be the case for me despite having cake straight after treatment, sandwiches, crisps and more cake for lunch and hubby’s homemade curry, rice and lots of extras for dinner! So I probably deserved to fill slightly nauseas but actually feel pretty good and I still want to keep eating but must stop now!
Can’t believe I’ve just owned up to being such a glutton and to think I’ve blamed the treatment for all the weight I’m putting on
Lx
Hi kate hope the hot water bottle is helping I find it is like a comfort blanket lol hope you feel ok tomorrow remember kick arse
Ali and ade yes those adverts driving me crazy and then tonight done insurance thing on doom gloom so turned tv off before i threw something at it!! I am pleased and relived to hear you guys say what I hv been thinking all people keep saying to me is stay positive you are strong you are brave it will be ok ! Well if they were to see me melt down in the dark nights not sure that’s what they would see at the moment I just what to scream at them “I have to be to beat this nobody else can do it for me” then I feel mean as they are only being nice and caring but is a bit wearing xx Rant over thanks girls nice to know people feel the same ah dare I say I feel normal lol
Wishing you all a restful sleep and I so look forward to those Christmas ads soon ha ha
As always thanks ladies x
Hi Ladies -
good to catch up with yous a little - working past 2 days has been great therapy but soooo tiring - hoped to have wig by now (ordered 6 Oct & still not in) so getting a little anxious it’ll not be in by shaving time on Monday… nausea creeping up on me again … had hoped to pull back on meds for that by now (Day 8)… giving thanks for my OH who has offered to learn to do weekly Hickmann Line care for me (and avoid needing a DN) - he coped really well with first training this morning too - love him to a High Heaven… AND the nurse taped the line up over my shoulder = so much less intrusive … maybe I’ll sleep better too … so tired … need to think harder about working first week…
Must go to bed … hope to catch up over the w/e … hugs n best wishes … x xx
Hello ladies - from a steroid induced sleepless night.
Bevster - so pleased for you to be having your last FEC, must feel like a real milestone. Hope all goes well and that you have minimal side effects.
For Mel66 and others due to start Tax - something I hadn’t quite realised: the low immunity week starts at day 5, so 2 days earlier than FEC, so I have been given GCSF injections to start from day 3. Hoping this means a longer period at the end of the cycle to get out and about, other side effects permitting.
Hope you are all still asleep. I’m off to try again! :).
L x
Morning luvlies ?
Early start for me as off for my cocktail this morning. OH has brought me a cuppa up to bed & its all systems go!
Wishing everyone a good day. Rest if you need to & keep those SE’s at bay. Take care all & I’ll tune in later.
Love n hugz ? B xx
Mel… I have got some onicolife drops for nails that someone recommended on here …, just rub into nails each day … I got them on line … Maybe worth a shot ? They’ve £15 … It might save some of your nails at least ?
Me reporting in again - didn’t manage to get back to sleep again but I’m sure the steroids will keep me going.
Some help please from EileenB, Ali & anybody else who has been through at least one round of Tax. I have been invited to a family birthday in Devon (I live in Leicestershire) which would mean travelling down on day 9 and a daytime get together on day 10. Oncologist has said yes with regard to immunity but has warned that the journey would be tiring (I won’t be driving) i know we are all affected differently but just wondered if any of you would have felt up to it or am I mad even considering it at that time? I really want to/feel obliged to go but also want to be sensible. Any comments appreciated.
Lx
Thanks Ali. I get the feelin it’s just a bit to early, but we have to pay for the hotel by day 6 so trying to find out how others felt. Only on day 2 at the moment and feel great but realise that may not last!
I know I have to make my own mind up and family are supportive of whatever I decide - just want to try and be normal (if I can remember what that is)!
Glad to hear that you are feeling good now.
Thanks again.
Lx
Hi Kate. Glad you are well enough to think about holidays - it’s good to have something to look forward to. But i too am a bit nervous of booking anything just yet. Hubby is keen to book something soon to make up for the summer holiday that we had to cancel. And I would also like to take my two sons and their families away before we have to start paying school holiday prices once the first grandchild starts school next September.
Trouble isn’t can’t get out of the habit of just taking one day at a time.
Have you got to have radiotherapy when chemo is finished? Oncologist has said that mine will be three weeks during January.
Enjoy your day (or more) of wellness!
Lynn
X
Thanks Eileen. Yes really helpful. Just confirming what I already know but I really struggle with not being in control - want to be more decisive but it helps talk it over and to know what others have been through. Guess I’ll make my mind up next Tuesday when we have to pay for the hotel.
Glad to hear that you feel better on the second round of Tax. I had heard that for some the effects are cumulative so that’s good news
Thanks for getting in touch.
Lx
Morning ladies,
Just catching up with posts.
Lynn - you know me by now , I say it as I see it…I am no wordsmith so don’t take offence plese. If I were you and having had 3 doses of Tax each one giving me different and rotten side effects, I wouldn’t risk it. I’m on day 14 from the last dose and still very tired and bit yucky. You’ll be right in the middle of your ‘low’ zone too. You are not losing control, you’re taking control and making an informed decision to look after yourself and put yourself first. Remember if you’re ill it can put your treatment back and none of us want that.
My husband has a sentry post at the bottom of the driveway to deter all visitors. I’m getting a bit stir crazy but heck it’s only another 9 weeks and I’m ready to enjoy Xmas and New Year. Once you’re through it you can go berserk and visit everyone and anyone with confidence.
Hope this helps.
Hi lady grey - no offence taken! I know it’s my decision and by coming on here I knew I would get differing views because we are all so different. It’s a party for one of my in-laws and they accepted me into their family last year at a time when I really needed it so want to do the right thing by them but They have also been very supportive since my diagnosis so I know they will understand if I can’t make it.
Thanks for your input, as you say, Xmas and New Year to look forward to.
Lx
Glad you didn’t take offence - my mouth runs away with me so often. Proud owner of four grown up sons who I brought up on my own after my 1st husband died at a young age made me a bit bossy…well not a bit more like very!!! LOL
Ade xx
Hi Bali
Already tried that and they need to know 48 hrs in advance as they have so few rooms. Almost decided not to go - just don’t like giving in. Like you have already had our big holiday cancelled (got most of the money back from that so look forward to spending it next year!)
Lots to look forward to - we will get there!
Lx