Treatment starting August 2014

Hi All,

 

Bev -  i too have been re-reading the tax info, mine is looming next week and i can feel myself getting worked up already.  I can feel a panic attack coming on just thinking about it.

 

Seeing the oncologist this Thursday so will be asking lots of questions. 

 

I had a scary wendy wig moment today too, walking from my office to the car, i was scarred it was going to go, but like you Allijay, i did not want to be seen holding onto it.  Luckily i got to the car with Wendy still in place!!

 

Eileen you are doing fabulously, hope you feel good knowing you only have one of these left!

 

Bali - sending you lots of love and hugs, and wishing you a speedy trip home very soon.

 

I went to my energy boosting accupuncture this afternoon, and off to get my blingy nails done tomorrow afternoon, dark colours all the way!

 

Take care, sleep well xxxxx

 

 

 

 

Hi Ladies - how do y’all do this so well? - even just my low dose of 3 days steroids finishing have left me an Emotional Wreck for these subsequent 2 days, and anti-nauseas finishing today was just pants… luckily I have some anti-nauseas left from after my op (had almost continuous nausea for my 5 days I hospital so begged some to take home) - so have held together ok… desperately need to get back to work tomorrow for some serious Distraction Therapy!
I tell you - your Absolute Honesty And Truth re the multitude of feelings/reactions/ etc is just so helpful to me - somehow you are giving me the courage to admit what I am feeling and not to feel I should be trying to brush it under the carpet and pretend all/everything is hunky dory… So please don’t apologise if you Release A Rant - you may be reaching a helping hand out to someone even then…
… and now I must away to bed … sleep well … hugz… x x x

ps. Thanks for your post, Ann123 - good to hear you are in full sail and making such progress and headway in this mighty storm we find ourselves up against! Bon voyage! x

Hi kate just wanted to say hope is ok I am behind you in treatment but you have been so helpful to me answering questions I really have appreciated it over the last few days x

Morning everyone ? 

Hope you all managed a good night’s rest & are up for fighting through this another day.

Stay strong luvlies & hope SE’s are manageable.

Sending love n hugz to you all…will tune in later.

? B xx

Oh Bali - that’s terrible.  You’ve been through so much the last few days, we were worried about you.  I agree, when you are feeling stronger you do need to formally complain.  No one should be treated that way, it’s totally unacceptable.  Which hospital is it?

At least you are in the right place to be looked after now.  Lot and lots of love xx

Hope everyone else is ok and managed a good nights sleep.

Just waiting for a district nurse visit today for a line flush.  Let’s hope they don’t keep me waiting all day.

 

Love to all.  Andrea xx

Oh for goodness sake Bali - that is just not acceptable.  You may want to get hold of the Ombudsman for the hospital and put in a formal complaint ASAP to prevent this happening again.  I hope you start to pick up really soon and your treatment improves dramatically.

I got up today feeling better - still got indigestion.

This every three weeks for treatment keeps coming round before you realise.  It’s only a week to the vampires and chemo bar and it’s quite a thought!  I’m going onto FEC and the stories of nausea fill me with dread.  My ony saving grace is the reduced dose of steroids and my stomach has always been extremely reluctant to give up it’s contents!!!

I’ve probably asked this but…anyone else having problems with their eyes?  My vision quite often is not as sharp and find my reading glasses don’t seem to be strong enough even though they were tested this year.

Runny noses?

Ade xxx

 

Bali - don’t know what to say that hasn’t already been said :(. Stick at it girl. At least you’re being looked after properly now and you will get through this.

Yes. -runny nose and blurry eyes started for me in the last of couple of days.

Just come back from ONC visit prior to T tomorrow. He was so lovely about all my anxiety it made me cry even more! Tried to reassure me that not everybody gets ALL the side effects and said that as I haven’t had too many aches and pains from GCSF injections then I am quite likely to be the same with T. Really emphasised how tired / fatigued it makes most people so will line up plenty of DVDs to watch.

Positive mode! Had a lovely busy day yesterday and felt quite “normal” for the first time in ages. Trying to do the same today so off food shopping at Lidl - can’t get more normal than that :slight_smile:

Chins up ladies - we’re getting through it.
Lx

Lynn, it’s so good that you’ve said about the fatique on Tax.  I only really got floored on this 3rd dose.  

I’m spending a fortune on line and thank goodness Ken was out this morning when the post arrived…new dog lead, new jumpers x 2 and Jamie Olivers 15 minute meals book.  All wrapping suitable disposed of and items no where to be seen!!!  Managed to cancel the order for a new kettle…what do I want with another kettle???  Gotta stop this.

Ade xx

Hi Ade - yes I’ve had blurred vision too.  Mine has mainly been switching from reading to looking up.  It seems to take an age for my eyes to adjust.  I thought it was just my prescription not being quite right.  I never thought it was an SE.  Good idea to mention it.  I will next week when I go for the next chemo.

 

Take care. Andrea x

Andrea - that’s made me feel better.  Glad it’s not just me.  xx

 

Hi Kate
Sorry you are not having a good final day before chemo. I seem to be the complete opposite to you (apart from my meltdown with the oncologist). Only two hours sleep last night and exhausted first thing bit now all the steroids have kicked in I’m full of energy. Exercising / cooking , etc. Let’s see what tonight brings in the sleep department. 11 hrs - wow I have sleep envy- I’ve always tried to steer of sleeping tablets but am very tempted.

Will be thinking of you tomorrow. I’m due at 9.00 am so a very early start from home for me but at least I should get a space in the hospital car park.

Lx

I am free ??:heart:

Hi All,

 

Bali so pleased you are out, what a flipping nightmare, take it easy and enjoy your own bed, sending you a massive hug.

 

Eileen, so pleased you are doing ok, i look to you to see how you are doing, hopefully tax will be bearable, you only have 1 left, well done you.

 

Good luck Kate and Lynnann for tomorrow, will be thinking of you

 

Think i have done too much today, went to work, met a friend for lunch, had my nails done (blingy electric blue, they are lush), went for a dentist check up, i have run out of steam now, early night for me.

 

Work and oncologist tomorrow. 

 

Lots of love and hugs all

 

xxx

Hi gorgeous girlies? 

 

Just caught up on all your posts… Wow another busy day on here.

 

Bal - you’ve broken out again…yippppeeee!!! Need to ask…were you in your cow pj’s again ? Seriously chick hope you’re OK & can get your strength back up in home comforts. Sending hugz ? 

 

Kate & LynnAnn - Hope all goes well for you luvlies tomorrow. Will be thinking of you!! Stay positive &  strong. Loadsa love ? 

 

Nicki - Good luck for Onc appointment tomorrow. I have mine at 3.30pm…lots of questions at the ready!

 

All - re the sore eyes…me too!!! Thought I’d just got a bit wind blasted over the last couple of days & that maybe had got a bit of cold but reading your posts it sounds like yet another SE ? & the runny nose!! ? I’m so tired again too…fingers crossed the vampires will be happy with my bloods tomorrow so I can get Fridays cocktail ticked off!!

 

Going to rest up now luvlies…sorry I’ve not replied individually to you all but you are always in my thoughts & I send you loadsa love & huge hugz ? B xx

Hi all I’m feeling much better a week in but I must say generally feeling more tired. I have a really sore tongue though it feels like sandpaper and eating is painful
Apart from that had to go to my nans funeral today and saw family I’d not seen for ages they all said I looked well! !!! So ill take that!! Thanks vm I did do my hair and make up first time in a week!!!
Best wishes to you all xx

Good luck kate with T and the cold cap. I know half how you feel with the cap!!
I am dreading my last 2 but the cap has been worth it xx

Actually I know how it is with the kids my youngest been restless in the night recently I am normally jumping out of bed at the sound of her feet on the stairs but lately I can’t even get myself out the bed xx

Morning all you luvlies ?

Hope this finds everyone in good spirits & with minimal SE’s.

Off to the vampire’s den shortly then fingers crossed will get the go ahead for tomorrow’s cocktail from Onc this afternoon.

For everyone with treatment/hospital visits etc today …good luck! 

Love n hugz to one & all ? B xx