Hello,
My first post.
I was diagnosed in January with triple negative breast cancer and had 6 cycles of immunotherapy and chemo. First 4 cycles were not too bad but last 2 cycles of Ec were brutal. Shortly after EC stopped I developed shaking/ tremors (internal, not visible externally). They wake me up at night every 2 hours or so so I am getting no deep sleep. I’ve started getting hot flushes and tingling particularly in hands too. I am exhausted too (17 weeks post treatment ) and even moving around a little can bring the shakes on. I was on apixaban for a while because of blood clots on picc line and that definitely made it worse, but it hasn’t gone away more than a month after stopping that medication. I’m not on anything at the moment
Oncology team are at a loss it seems to diagnose. Has anyone experienced similar and if so what was it? I’m about to start radiotherapy and I’m fearful things will get even worse.
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@cinnamon1 Hi,I too have been diagnosed with TNBC on March this year.I am 2 cycles into EC with 2 left.I have dizziness qnd the shakes with the EC.I did not have this with my previous Chemotherapy cycles of Abraxane. Its horrible,I dont know whether you would class it as the same as yours.Sorry to hear you are going through a tough time.I also have had to stop the immunotherapy due to it giving me excruciating stomach and back pain.Good luck with your radiotherapy.I hope you are feeling better swn xx
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