Hi all was just wondering if anyone had any gd coments with lung spread on tn just been dx feeling v low at moe all the positive story’s don’t seem to be on tn many thanks tc x
Hi Laura. You are right, tn seems to be a law unto itself. I wish I could write a lovely post about great results , but I have only just started treatment nd am two months away from a scan to see if it is working. So, thank you for asking this question. I will be watching this thread nd hope, really hope for some positive experieces being postedy. Even with the same diagnosis, tn with lung mets, we all seem to be on different treatment, I don’t understand? I’m Im taxol with avastin. Sorry this is not the post you were hoping for, but you are not by yourself!!
Sadie Xx
Hopefully we might get a gd news post soon is very scary stuff more chemo not looking forward to that sadie I’ve heard the treatment your on is v gd so hope it works I can only have the same if I go in a trial and as we know there is no guarantee I’m going to get it tc x
Hi Laura
I’m sorry to hear that you are having a pretty tough time at the moment. I’m sure there will be more users along soon to share their experiences with you.
In the meantime maybe you would like to talk to a member of our helpline staff who are there to offer emotional support as well as practical information. The free phone number is 0808 800 600 and the lines are open Monday to Friday 9.00 to 5.00 and Saturday 9.00 to 2.00.
Best wishes Sam, BCC Facilitator
Bumping
Hi. Thought I would post again to bump this up! Laura, I know you are not supposed to do this , but you can pull out of a trial at any time. So if you enter and dont get what you want, you can pull out. I was thinking of this before I found I could get taxol and avastin from some government cancer pot. Just a thought!
Sadie Xx Xx