Triple negative breast cancer

Diagnosed with breast cancer Triple negative and inflammatory breast cancer
1

Just been diagnosed with triple negative breast cancer. 

Did what I was told not to do and googled it! Now I feel like Iv been handed a death sentence. I’m playing it down to family and friends but all I’m reading is negative things about it.

Had zero sleep last night worrying about it, I’m not ready to leave my kids yet I’m only 39!

I literally feel sick all the time and can’t stop thinking I’m going to die.

 

positive comments only please. I need some positivity. 

 

Lisa xxxx

2

Dear Lisa,

 

I am sorry to hear you have TN. I was diagnosed with TN last May, at 34 years old and started chemo in June. I am on my second EC chemo cycle and the tumor is responding - my latest ultrasound showed it has shrunk.

 

I also checked online about TN but just to check the treatment I was offered is the standard one for this type of BC. Statistics are results of research done to a small group of people, who knows from which country, and probably some time ago. Every day there are new developments and findings. Each individual reacts differently .

 

Your medical team wants the best for you, listen to them and ask them questions. Food and nutrition is really important for your physical and mental health, so do your best on that area. There are many, many women who survive TN for many years or never see it appearing in  their lives again. There are women who get other primary BC down in the future and survive that , too. I will focus on the worst case scenario only if  it happens.

 

You are not alone on this xxx Big hugs

 

Felicidad

3

Hi Lisa,

 

its so scarey when we get our results ??

i am also Triple Negative,  you will find lots of us on here who have been exactly where you are.

once it sinks in then the panic/worry/what if kicks in.

i felt more positive once a treatment plan was in place because then you know what you’re facing.

take one step and one day at a time ?

studies/treatments are progressing all the time so be strong for your family.

let us know what comes next for you .  BIG HUGS…  mini mad xx ??

4

Dear Lisa,

Please try not to over think the TN status - I was diagnosed grade 3 TNBC over 6 years ago and after a lumpectomy , FEC-T chemo and rads I am living life now without giving too much thought to BC (apart from the usual worries at each annual mammogram !)

Rachel xx