Aw tina, massive hugs going out to you. I can’t do anything to help except send you my love and prayers and good vibes. You don’t know the scan will be bad news, but i have no answers on how you are feeling, just try not to feel guilty and stop beating yourself up. Cancer is having enough of a “lets kick tina” time, so don’t help it along by kicking yourself too. If you weren’t such a great mum, wife and daughter you wouldnt be fighting so hard, and you are fighting and have done from the outset . Keep going tina, i’m in your corner thinking of you a lot. Big hugs
Morning ladies
linda + vickie thanks for your lovely posts I have pulled myself together a bit this morning but feel better for having a bit of a ‘release’ last night. It’s all a bit overwhelming at the mo + just so scary. I went the hospice yesterday for some reiki + couldn’t help looking across to the inpatients, wondering which room I would end my days in etc. Every funeral car that goes past makes me shudder, I’m obsessed with Reading the family notices in our local paper, to see how old the people who have died are, etc. Think I may need to ask for a higher dose of my happy pills…
We are going the caravan later + the weather is glorious so I’m hoping it’ll boost my mood + take my mind of the scan results til Monday.
Have a lovely weekend + thanks for your support
tina xx
Tina, I am sorry you are feeling so low, I really don’t know what to say but you have been such a great support to me and others on this site I just wanted to let you know I am thinking of you and wishing you the very best of luck for next week. Have a lovely weekend at the Caravan. Lynn x
hi tina, you have expressed exactly how i am feeling at the moment too,we try so hard to carry on and its so exhausting, i too am obsessed with this illness its my first thought of the morning and last at night it is so bloody cruel. i pray your scans are good, i felt so ill when i had last scans but they were ok so i hope the same goes for you and i know the anxiety can make you feel so ill, i am sending you a massive hug i too am waiting for results on the lumps they removed but am sure it wont be good but hey tina the sun is out and i am glad you feel a little better today take care love rachel x
I see quite a lot of information on another thread, suggesting that 5 years (or 8 depending what you read) without recurrence, might be considered by some oncologists as a cure.
I wondered if you ladies would mind saying how long after your primary diagnosis were you diagnosed with secondaries or a recurrence?
I would love to hear some real stories, not just the ‘stats’.
hi katie , i havent done so well but think thats just me! i had mx in sept then 3xfec and 3x tax but had skin recurrence in middle of chemo so then had rads x 15 but a week after rads felt several areas of small lumps outside rad field so have had them removed and await results but please dont let that worry you too much think i am an exception, many tnbc respond really well to chemo there are ladies who have posted who are 5 yrs + with no recurrence ,apparently with tnbc if you can keep it away for 2 yrs then the odds are in your favour for it having less chance to recurr . take care love rachel x
I had a regional recurrence of a grade 2 node-neg cancer after five and a half years.
However, I knew it was strongly hormone-positive yet after the primary I went on to have two pregnancies and breastfed baby 1 for a year, so I was asking for trouble.
I guess I’ve learned it’s in my body, I just have to keep on top of it. Still, if, after two years, you can put it out of your mind and live assuming all will be well, then go ahead and do so! It can’t do any harm to be positive and the stats are definitely in favour of remaining cancer-free after a certain period.
Just back from hols in Cornwall yesterday. Lovely weather second half of week, but first - well, we saw SNOW behind Pizza Express in Newquay last Monday! Bitterly cold as well, of course! Managed to do quite a bit, though I felt v.tired due to rubbish sleeping sometimes. Paignton zoo is well worth a visit! My arm is about the same swelling-wise, but now my hand has joined in and I have no discernable knuckles - lovely! Probably should have kept out of the hot tub, but it is so lovely and relaxing… Seeing onc. on Weds and he may order a scan if he’s concerned. Good luck to Tina and Sadie for scan results. Love to Linda and Neelima too.
So shocked to hear about Kaz on other thread…so awful.
Fairyqueen - I have PMed you and would love more info on the research article your local paper had. Can you let me know - would love to find out more! Sounds really positive for us TNBC.
Tina - Cyber hugs and positive everthing coming your way this week! Hope Dan enjoued the caravan and the rain did not spoil your weekend too much nd you are feeling ‘well’
Neelima - Hope you are doing OK and have some support to help you with everything! Pls let us know how you are doing! Xx Xx
Linda - It is so difficult to stay positive all the time. Sometimes I really feel positive, but at other times I put it on and HATE it. But it is so difficult to mop up others when you really let go! So, I just keep smiling!!! Fingers crossed for your scans - when do you have them? I get results tomorrow Xx Xx
Kate - I has 22 months between primary and secondary diagnosis - but symptoms started only 7 months after the finish of my primary diagnosis chemo (bad back - spinal tumor!). So, hope you follow a very very different path to mine.
Jane - what a difficuly decision you had - im sure you did not go ahead with pregnancies lightly and hope your little one/s are the light of your life and bring you smiles and joy!!
Sarah - SNOW!! Wow - but sounds like you had a good break! Good luck for wed! Thx for your Best Wishes! The support from here is FAB!
Well - Im off to bed. Onc at 9am so will get a good parking spot!! Will have chemo as long as scan results are good - so planning the have Taxol number 10 tomorrow! Had a quiet word with both children so they know it is ‘results day’ but trying to play it down as daughter has gcses on Tuesday! She has worked so hard - I dont want to put a spanner in the works! I will let you all know. I feel well and so …all will be as I want it to be!! GOOD!!
Hi ladies
hope you are all doing ok. I had a lovely weekend in Wales at our caravan. Lots of sun + beer yesterday + the welsh mountain zoo today Just what I needed to boost my mood + take my mind of results a little. My nurse has just texted + has promised to let me know 1st thing if my ct report is on the system. I have Valium at the ready- I’m sure I’ll be in bits tmoro. Hubby is just double checking availability for our little hol to Spain. Hoping to go late next week…
Sarah- goodto have u back I’ve missed you So glad u enjoyed ur break + finally got some good weather too. Hope the swelling comes down + turns out to be nothing sinister. You are doing great! I too was shocked to hear about karen it’s so sad. She was posting back in march, still working etc. Just shows how unpredictable bc can be. X
sadie thanks for the lovely pm Have tried to reply on my iPhone but having no joy but let me know if u hav recieved the same message 10 times as I kept trying to resend!! I wish you the best of luck for tomorrows results + chemo. I’m sure u must be anxious+ I hope the results are ready + are GOOD news only!! Let us know + I’ll do the same X
nelima, how are you feeling? X
Rachel- thanks for ur support last week after my major wobble How are u doing? When will u get the results of the lumps they removed? It’s relentless isn’t it X
Claire hope the rads going well, looking forward to meeting up in the next week or so X
how’s everyone else doing? Hope, Kelly, jo, laura, margaret, debs?? Please let us know how u are X
katie, in response to your question, my recurrence was immediate. I noticed skin changes within 4wks of last chemo + skin mets were finally confirmed several weeks later. My dx was grade 3 tnbc, clear margins after mx, no vascular invasion + just one affected node. Just very unlucky. Have a look on tnbc foundation website it’s a US site devoted to tnbc + there’s lots of info + expertise on there and posters are hugely knowledgeable + at various stages. Good luck, sounds like you are doing great
love to everyone
tina xx
Hi all Tina hope y news is gd I’m ok just took me 14 days to get over chemo was really sick and bad had to have doc out second lot on wed not looking forward to it it’s pouring down here ugh had a barbie yesterday for my son birthday next sun cos I’m not going to be up to it glad u had gd weekend gd luck to everyone else having scans hope y all doing ok pop on later see if any results on here tc Laura
Hi everyone,
Goodluck to you Sadie.I am going for the scan tomorrow after 2 months of parp.my shoulder is hurting,that’s worrying me. Are anyone of yup in pain while on chemo?
Love to you all xxx
Hi All - The chemo is working!! All lung mets either reduced in size or gone!!! And no new areas of concern! I can stay on the Avastin / Taxol until either there is significant progression of the disease or the SE get too much!! So, I am delighted about this too. So had treatment number 10 today with the knowledge that the various things I am doing are WORKING!! I am very pleased!!
I do hope evewryone else who is waiting for results is coping OK. I get my next ones in three months to check! Hugs to you all and hope to hear how you are getting on soon!
Thanks so much for all your cyber support and smiles!
Woop woop sadie :)))) Such great news!! Must be a day for it coz my bcn phoned earlier with brill scan news for me too! Nodes (superclav) are static from last scan in march (that scan showed 70% reduction so wasn’t expecting further shrinkage coz so small now). No new nodes anywhere + my organs are still clear :))) Im so relieved I can’t tell u! Goin out with hubby later for a meal + sum champers then to watch the hangover 2. Booking our hols too now we know there’s no really bad news round the corner…Still gota see onc to discuss what’s next hoping to see her weds…
Neelima good luck for tmoro here’s hoping good luck comes in threes x
love to everyone else
tina xx
What a day
Tina -I’ve just replied to Sadie on the other thread and now read yours - great great news! I think you certainly deserve the meal out with hubby. I bet when you go to the pictures and sit in the dark, regardless of the film, you’ll be sat there with a big smile on your face!
Neelima - please update us with your scan - lets have a third lot of good news
As I said in the other thread, I’m a week behind you guys - one more taxol this wednesday and scan planned for week after - fingers crossed
Tina - SOOOOO pleased for you. That was such good news!! I know exactly how you feel!! How clever are we!! Your holiday will give you a real boost and you can have some time without chemo!! I am definatley taking a few weeks off so I can keep going as long as possible on the Taxol / Avastin. I think a few weeks off here and there will help without having an effect.
Thank you to everyone who has sent good wishes - I love this site!!
I have pulled myself together a bit this morning but feel better for having a bit of a ‘release’ last night. It’s all a bit overwhelming at the mo + just so scary. I went the hospice yesterday for some reiki + couldn’t help looking across to the inpatients, wondering which room I would end my days in etc. Every funeral car that goes past makes me shudder, I’m obsessed with Reading the family notices in our local paper, to see how old the people who have died are, etc. Think I may need to ask for a higher dose of my happy pills…