Hi all!
BRILLIANT news - Sadie and Tina!!! I am so so pleased for you!
Hope all goes well with your scan, Neelima.
Love, Sarahx
Hi all(again)!
A little bit of news from me - decided not to see onc on Weds re: worsening arm/hand as have had date through for next ct - 4th July - so will wait till after then to see him. Instead, going ahead with bandaging of arm on Fri. morning as this is a priority at mo., I feel, and prob. wouldn’t get scan for a week or 2 anyway. Not looking forward to this as someone on here said they couldn’t move their arm as so tight and restictive - the Mummy Returns! Still, has to be done as my compression sleeves are quite old and a bit saggy on hand and I’m hoping that is the reason for the hand puffing up, not anything else. Better go and get my son to do his homework now!
Love to all - I am really pleased about the good news!
Sarah x
Hi -
Sarah - Ive just replied to you on the lungs thread - we will have to stop meeting like this!! Your arm sounds sore - I hope the bandaging goes OK - It does not have to be the same for you as the other person you heard about.
Just realising I have entered Race for Life this weekend (…called the ‘slow walk for life’ in our household!!) At the time it sounded like a good idea…but now im not sure!! However, have a whole bunch of people doing it with me who said they will get me round - a shopping trolley and a wheelie bin have been discussed as methods of transport!! Anyway - Im sure it will be fine and a yearly tribute to my Best Friend, Maxine who died of BC almost a year to the day before I was diagnosed! I miss her - it would almost have been ‘fun’ to do BC together.
Hugs to all…best get in training and walk from the desk to the couch now - but still have to hold on as fog making walls move today! The dogs keep looking at me in a ‘scared’ way as I wobble past them!
Sadie Xx Xx
Sadie Xx Xx
Hi Sadie and all,
Best of Luck on the Race for Life - Well done for not cancelling it due to chemo. I’m sure you’ll be fine! Lovely tribute to Maxine and to all brave women ( is there any other kind?!) everywhere. Hope the weather is kind to you!
Love, Sarah x
Hi,
Sorry to hop on this thread, just found something of interest for y’all.
manchester.ac.uk/aboutus/news/display/?id=7070
Annie x
Sounds v gd maybe tn ladies should put it forward can u put link on tn thread pls laura
Soz didn’t realises was on this thread
Hi all
Very interesting link. Especially since I have discovered that my chemo (finished in May) has not had much effect. All a bit disappointing, but at least I am reassured by my onc that I won’t have to go though EC again. Re-scan in August and then further discussion re options. Main problem at the moment is my chest. Bones and bronchus. Get short of breath when I walk at my normal pace, so have slowed down. Hoping to see a physio soon. Has anyone found physio helpful in this sort of situation?
Love to you all
Jo xx
Hi All,
Jo. I’m so sorry the chemo did not have an effect. I really feel for you and send you a massive cyber hug!! I’ve no idea if it will help you but maybe it will let you know you have support and friendship.
I had physio for my back (spinal met, massive surgery) and it was great. But I do know you have to get the right physio. I saw an nhs physio and after two hours of questions (no physical exam) he told me to remember to walk normaly and rest!!! I saw a different one the same week (private) and it was a totally different experience, exercises massage, ultrasound etc. So, hope you find a good one!
Really Interesting article! So glad tnbc being focused on nd who knows what will be on offer to us wonderful ladies just round the corner!
Hugs to all - just dusted trainers for race for life in the morning, but I think goggles will be needed as weather looks lousy!!
Sadie Xx Xx
Hi to all!
Really sorry about the chemo thing, Jo, hope the physio does some good - sending you good wishes - will you be trying something else? Sadie - hope the Race for Life went ahead - it’s piddling down here in S.Wales ( whereabouts are you?)- Good Luck to you, Sadie! Love to Linda, Neelima and all on here too.
As for me - I had my bandaging done on Fri. and all seemed OK. Noticed later when I went for a nap that my heart rate was up and I had a headache - rang hospital - blood pressure and HR up when I saw Dr. Upshot was we had to cut the whole thing off and I felt a lot better - what a nuisance! Been in out-of hours clinic 2x last week with pesky arm - fingers crossed we don’t visit it again for a while! I was told the hot-tub caused the worsening of hand by the Lymph. nurse - I feel very silly and cross with myself! Once more, hope you don’t mind me posting on this thread…
All the best, Sarah x
hi all just did an update on a new thread instead of here if anyone wants to read it starts crap appointment … meant to tag it onto here but had a funny odd day love to you all rachel x
Sarah - I didn’t want you to think I was being ignorant and not replying to your PM but my email has decided to go walkabouts - where its gone is anyones guess!
Hope all triple neg ladies are coping. I’m in plodding mode at the moment (messy house, messy me - just haven’t got the energy to do anything - my god, I’ve turned into my husband)
Linda
x
Hi all!
Don’t worry about it, Linda! Just look after yourself/get someone to look after you, if you can! Sorry about your crap app., Fairyqueen, I did read it yesterday, honest, but I can’t recall all the details - I’ll have another look.
All the best, Sarah x
Hi All
Fairyqueen - I do really hope you have some answers now! Your BC nurse got back to you? Have you seen your consultant after the meeting? Hugs Xx Xx
Linda - Messy is good!! I have a fridge magnet that says ‘dull women live in immaculate houses!!’ so I am with you! Plodding is good too!
Sarah - Hope your arm has eased now the bandaging is off? Thx for your good wishes for the race for life - it was more like a ‘swim for life’ as the weather was so bad! But I DID IT!! It was very emotional holding hands with friends and family as we crossed the line.
Im having an extra week off chemo this week as I want to enjoy my son in the school play tonight and tomorrow. However, I have been feeling fairly soggy! Manage to potter a bit in the morning, but have to stop in the afternoon and rest! Im cutting down my morphene tablets for my back and only now take 5mg twice a day (I was up to 40mg twice a day a few months ago), so maybe this is having an effect? Need to ask next week in hospital!
Hugs to all TNBC ladies!
Sadie Xx Xx
Hello again
Thanks for the cyber wishes and support. I have now heard that I am being referred by my Macmillan nurse to a physio who has a special interest in breathing and energy. So hoping for some good ideas. Will pass them on to you all in case they are useful.
Linda - I sympathise with the messy environment. Had a cleaner while I was having chemo, but had to stop that now as can’t afford for any longer. But I am trying to be positive about the mess. There is something comforting about it! Once the washing up is done I can generally overlook most things.
I am now going to head up to town for a coffee and take with me the “Grace and Favour” books that I am writing in for my boys. My mother did one for me and it is a lovely thing to have. For anyone who hasn’t come across the idea, all it is is a note book with favourite poems and wisdom written in. I use a nice pen which makes it all feel personal and special.
Keep as well as you all can.
Jo xx
hi sadie ,spoke to my bcn she said my onc will see me monday i asked if she knew what they had planned but she said she didnt know as my notes werent taken into meeting!!!but i asked her if they are going to do something for me (as i didnt like the way this is panning out) and she said of course they will so i am praying they have something planned for monday just so scary lumps popping up all over just dont know how they will get it under control .love to everyone on here x
Hi ladies
Just been to see my Onc following my Ct scan yesterday.The good news is that it hasn’t spread anywhere else, the bad news is that the tumours in my neck look like they’re growing again!
Not the news I wanted.
I’ve had 9 lots of taxol and avastin and everything seemed to be going well ie lump in breast reducing and main lump on neck (which was so obvious) was reducing nicely.
I’ve been told to go back next week and they will decide on either more chemo or try radiotherapy. I never had surgery on my breast and now they tell me I’m unlikely to have it - as it is unlikely to serve any purpose. they won’t operate on my neck as they say its too dangerous.
Not really sure what I’m meant to be thinking or asking at this stage. I went into the meeting with my Onc so positive - he just didn’t come out with the words I wanted.
Sorry to twitter
Linda
x
Sorry - just posted the above and never even asked how you were all doing - hopefully less self centred tomorrow!!
Take care
Linda
x
Jo can you give me some more info on the Grace and Favour book you mention in your last post. I tried to google it but got the American version of Are You Being Served and that not what you were talking about . Thank you, cyber hugs to all BD xxx
hi linda , am so sorry you didnt get the news you wanted it really knocks you back doesnt it ,hope they soon decide what to do for you take care love rachel x you are not self centred bless you !!