hey tina, am hoping so much that scans are good and you can take it from there hugs to you xxx
Ladies I have had some devastating news this morning. I’m so sad to tell u that our lovely friend claire passed away earlier this morning. I had a missed call off her dad + spoke to her mum when I called back. It all happened very quickly- her breathing was so bad but she also had developed pneumonia + just couldn’t fight it. I’m devastated we have become good friends + I can’t believe she’s gone. She was just 36.
RIP Claire xxx
Oh tina, that is so horrifoc. I met clare at an oldham meet up and she was lovely. I’ve had a dread in mytummy since reading she was in hospital as bc just seems to swoop in and pick us off. Rest in peace clare, you will be missed. Tina, thankyou for sharing. This must have been an incredibly hard post to write.
Vickie
I don’t even have the right words to talk at the moment I can’t belive this news so sad it’s a terrible thing to happen so quick only pm her last wk what the hell is going on with the hos do they not listen so sorry so angry xx
another beautiful person lost to this disease,my thoughts are with all of you who knew claire personally what a shock so so sad xxx
A bright star in the sky helping us all.
I’m in shock and it has renewed my determination to enjoy each day. With the same diagnosis as Claire, it has shaken me. But primarily, my thoughts are with her family.
Sadie Xx Xx
Too, too awful and sad. RIP Claire. Sincere condolences to her family and friends and particularly, on here, to Tina.
Sarah x
Hi All
I just came back from holiday to read about Claire and cannot believe it as she was taken so quickly. I pray for her family at this terrible time and for Tina on here who was her friend. She sounded a wonderful lady.
love jo x
Hi ladies
Just a quickie to say hello +see how everyone is doing? Hope evryone is as well as can be.
Such very sad news about Claire its just so unfair. I think I am still in shock- the emotion keeps hitting me in waves. Her dad called me again on saturday to tell me funeral arrangements (it is this thursday). I will obviously be going although I am dreading it as it is bound to be devstating + it will make ‘it’ all the more real. Goodness only knows how the family are coping.
Love to everyone on here xx
Tina xx
Hi Tina and all yes so sad about Claire will be thinking of you thurs I’m off tomorrow on me hols for a few days b4 I go up to see onc on the 7th hope everyone is ok tc Laura x
Hi ladies
I was told in June that my breast cancer had come back in my lymph nodes, I am currently having weekly chemo at the moment.
I had a mastectomy nov 09, with chemo n radiotherapy.
I would like to hear from other ladies who have had similar stories.
Sandra
Hi Sandra mines come back in pectoral muscle lymph nodes in chest wall. Having CT tomorrow to check any other spread. Dont have a treatment plan yet. Didn’t have any positive nodes with primary. Which was grade 3 so far this is grade 2 off biopsy result.
Told probably surgery and more rads and possibly Chemo but I think i should def have Chemo. Will find out next tues. Then need double mx too as a gene carrier.
Which Chemo are you on?
Lxxx
Hi Sunnyty,
Sorry to hear your cancer has come back. I’m not Triple Neg & my cancer has come back in my bones, but I’ve just started weekly chemo & wondered if you would be doing the same as me. Paclitaxel or Taxol.
Dugsy x
Hi Ladies
Sandra- welcome to the thread sorry to hear you are back on chemo so soon. Everyone here is dealing with triple neg secondaries or recurrences so we are in a similar boat. If you read back through some of this thread, you will see many of our stories. I was dx soon after you at the end of jan 2010 and sadly, had a recurrence in the skin and chest wall straight after chemo. I have been doing ok but have a scan next week and am convinced there will be organ involvement. Do keep in touch x
Lulu- best of luck with your ct today I will be keeping everything crossed 
Good that you will get results next week- a long wait is a nightmare. Thanks for the lovely pm I am going to reply now as I am on the laptop (Tried on my iphone and my iphone wouldnt submit the message). Hopefully the affected nodes can be removed and rads will be the option- but I can understand your desire for chemo. I was in a similar situation after my skin mets dx but they said rads only after surgery as they wanted to save chemo options for the future. I have my ct next tuesday and Im very nervous but it cant come soon enough. After claires quick decline, I am keen to get back on chemo asap. My onc is reluctant to treat anything unless it is in the organs but I want to try and nip things in the bud regardless of the whereabouts of the progression. Lets know how you get on today- hopefully you will hear before next week x
Hi to everyone else on here x
Its claires funeral tomorrow and I am so dreading it. My hubby is coming with me and I just hope its not too close to home. Its just so sad and I cant stop looking at my last text from her and her photos on facebook etc. It has really terrified me how quickly things happened and Im praying I have plenty of quality time left with my family. It just seems so wrong that in this day and age, there is so little treatment for us. It makes me very angry.
Speak soon
Tina xx
Hi ladies
Thanks so much for your replies, great to hear from you.
I’m on weekly chemo of avastin and paclitaxel, which I started on 21st July, every Thursday. Some side effects which I’ve had are, nosebleeds and constant bloody nose, sleeplessness, nerve damage on tips of fingers. Anti sickness tablets for 2/3 days after chemo.
Seen onc few weeks ago and the lump has shrunk, she’s happy. Having another CT scan in next few weeks to check on size.
When I was dx nov 09, I had chemo AC, then lymph node removal n mas, chemo dosetaxel, n radiotherapy.
Only ever met 1 other lady who had AC.
Hope you are feeling ok today.
Sandra
hi sandra am sorry to welcome you to our gang but we will support you all we can as tina says read through the posts on here we are all in similar places ,tina will be thinking of you tomorrow and of claires loved ones it is so wrong as you say this day and age that this disease is still taking us one by one i pray something is found soon hugs to you all awaiting scans etc have mine friday morning !!!xxx
great news girls CT showed no sign of mets!!!
i am over the moon.
especially as the biopsy has shown an area in the tumour that appears to have responded to previous treatment… 2 years ago!!! so feeling very very lucky there is no further spread than pec lymphs!
tina ill be think of you tomorrow i know how hard Hazels funeral was for me and im sure claires will be no easier for you… your in my thoughts and prayers.
love to all you ladies xxxx
thats brilliant news lulu and we need more of that at the moment hugs rachel xxx
Wow lulu that’s bloody fantastic news :)))) Onwards + upwards now! Great that u got results straight away too!
Tina xxx
Hi everyone
just a quick post tonight to check in + see how everyone is? And to wish rachel good luck for tomorrows scan. Hope the results are positive + u don’t have to wait too long for them x
I went to claires funeral this morning. It was a lovely service + a really good turn out as u would expect for such a lovely girl. It was very sad + probably a little ‘too close to home’ for me+ my hubby but claire meant alot to me + I wouldn’t have missed it for the world. Just so terribly sad 
speak soon ladies
tina xxx