hi tina, thankyou but am bricking it , really am , have thought about you all day take care hugs xxx
So sorry to hear the sad news about Claire, my thoughts have been with you all day. As you said it’s very close to home.
Have been in hospital all afternoon having my chemo, tired now , but probably won’t sleep for a few hours yet- steroids, ! but hopefully will get a few hours…
luv to you all Sandra. X
I have been thinking about you all day today, Tina, and salute you for going to pay tribute to Claire, and to your OH for supporting you there.
And Whoohoo, Lulu what fabulous news!
Fairyqueen, best of luck for tomorrow
Lavender
Tina sending hugs your way, as im sure they are much in need tonight following your extremely emotional day.
fairyqueen good luck with your scan.
im lucky that i work in oncology and breast services so know the staff and know who to phone to get my results and my consultant always says there are few enough perks for working in the NHS… im just so glad the scan had been reported so quickly or id have been waiting in turmoil… i think working in the NHS can be bad sometimes cos you know how the system works… at previous diagnosis i would never have thought to ask when they would report scans and when they would be available to my consultant.
Lulu xx
Hi all,
Just a short note to wish Rachel Good Luck with your scan. I, too, have been thinking of you, Tina, with your very difficult day yesterday. Big hugs to you. Sadie - you OK? Hope so. Love to all on here,
Sarah x
thankyou all for your wishes just have to wait now but see onc on wed anyway xxx
Hi All
I hope your scan is good tomorrow Rachel and that you are recovering from a very hard emotional day Tina, and your husband.
I saw Dr yesterday as a lot of pain again in liver out of blue since chemo on Tues. I cannnot do much or lift boys at all which they dont understand as before I was able to again. He says is probably a small bleed or tear from the previous scarring as the scan a month ago showed good results. I just panic now with pain as last time neck came out of blue and was a tumour when I thought I had crooked my neck. Welcome to the new ladies and sorry you have had to join us. I had forgotten what a depressant morphine is as have been on it again this week and feel very low with getting back from holiday too I think. I usually jsut go to weekly chemo but got very anxious last week, 13th paclitaxol. Sometimes just seems one hurdle after another.
love jo x
hi jo am so sorry you have this worry but surely if scan was good a month ago even if there was progression would it cause pain so soon ? it is just non stop sometimes i havent had a break since dx and prob wont get one then some people do so well just so frustrating,i hope your pain subsides and it is what the doc says take care hugs rachel xxx can i ask how often you are scanned ?x
Hi Everyone!!
Just back from a week in Devon - no phone signal or internet. Just buckets and spades, rockpools, ice cream, beach balls, body bording (kids not me!!) and chilling in the sun! It was lovely. We went the day after we found out my daughter’s GCSE results. She took 4 eaqrly and got 4 A*. We were both delighted. She worked very very hard and got the reward she deserves!
Now back to real life… Chemo 18 on Monday. Im pleased ive got the weekend to enjoy first. I am feeling good! Just FAT!! Put on sooooo much weight. I must do something.
Hi Jo / Hope15 - If it is any help my 11 - 13 weekly Taxol / Avastin was the worst! I thought it was would all be down hill from there, but it got better! Not sure how - it just did! So maybe you will follow the same pattern. But sory you are in pain. Im glad they are looking into it. Scans?? Take care Xx Xx
Hi FQ - Fingers and toes crossed for you. Hope the sun is taking your mind off ‘results’.
Sarah68 - Thanks for asking after me! Im good!! Hope you are too.
LuLu34 - Must be difficult to know how the ‘system’ works and then find yourself in the middle of it all yourself. Glad no mets though. FAB!!
Lavender Lassie and Sandra - I do have a bad memory, so I may be wrong, but I think you are new to the site? If so - ‘hi’, if not - sorry I have remembered your postings. Pls forgive me!!
Tina - hi, my goodness what a week you have had. I am delighted you were able to go to Claire’s funeral as you wished - but it must have been so hard. I was wondering how you were feeling as the new school term starts and your life is very different to other Septembers? I know what you mean about treading Mets aggresively (however you spell it!!). I was all for stopping at taxon / Avastin 18 (on Monday) but will really consider carrying on - eventhough it is HARD!!
Ive not heard from Linda999 for a while - anyone else? Just wondering how she is?
Hugs to EVERYONE here. Ive just registered with the TNBC foundation in USA and will do some surfing later. Should be interesting.
Hugs,
Sadie Xx Xx
sadie sounds like you had a well deserved holiday.
jo sorry to hear you are having pain and hope they get to the bottom of it
im out for lunch with the girls tomorrow and looking forward to it
Lulu x
Thank you for the welcome, Sadie, I am not sure if I have actually posted on this thread before, but I do regularly read it, being a Triple Negative lady, althouh older than most of you here.
Lavender
xx
Hi ladies
thanks for all the supportive messages 
sadie it’s good to have u back! So glad uv had a lovely break away. Congrats on ur daughters gcse results- what is her plan for the future? Alevels? I’m not too bothered about work- to be honest it’s the furthest thing from my mind. Just awaiting the final moneys in the bank now so I can clear my visa + health permitting, have another break away later this month for hubby’s birthday. Are u due another scan? x
lulu enjoy ur ladies lunch today- lots to celebrate x
Rachel hope the scanxiety isn’t too bad. I’m really anxious already, dreading the vein hunt for the contrast dye etc. Has the baby arrived yet? Sorry I’m a little confused with where everyone is upto given recent events x
jo- sorry you have new concerns + are in pain. I would contact ur onc asap to get checked out. It’s so hard with little ones isn’t it but I know mine keeps me going. Big ((hugs)) x
laura hope ur having a brill time x
Sarah hope ur well. I passed ur card onto claires mum on Thursday thanks x
linda- as sadie said, long time no hear please let us know how u are x
hi to Kelly too- how are things with you? Hope the capcetabine is having a positive impact x
hi to everyone else
I’m feeling increasingly anxious about Tuesdays scan. My whole left side is really painful, hard + lumpy. I’ve also noticed a slight wheeze on my chest which is naturally stressing me out. Various other worrying pains too. Hope the results are ready asap I don’t think I can face a really long wait+ if things are as bad as I fear, then time is of the essence. I’m praying for lots more quality time with my family, with Xmas obviously being an important goal. I
can’t help wondering what I’ve done to deserve the shi**y had I’ve been dealt…?
Just a bit fed up I guess but I think we are entitled to a bit of self pity from time to time given our difficult
circumstances!
Love to all
tina xx
Oh Tina I just wanna give you a great bug hug. I dont think your feeling sorry for yourself its natural to be worried and especially losing Claire so recently it heightens the anxiety to yet another level.
I think you are perfectly entitled to ask when the scan will be reported and when will it be available to you consultant. Then just badger him or his secretary to give you an appointment for that day so you can discuss your concerns. I’m really hoping and praying that there’s not progression.
Love and hugs xxx
Hi all
I don’t know if I’m triple neg - do know I’m oestrogen rec neg & HER2 neg - guess it’s a question to ask consultant next Fri. When I was originally diagnosed in 2004 at the age of 49 I buried my head in the sand didn’t ask any questions just got on with the mx, chemo & rads. Thrilled when given the all clear in 2010 - July.
I then found out the cancer had returned I was tod 3 days before going on hol to Zante & came back to ct scan, bone scan etc then told on 12th July got local rec & there is a large mass infiltrating the chest wall. The consultant asked brum QE to operate but the cardio-thoracic & plastic surgeons said no so I’m having chemo which is being changed on 9/9 to avastin + ZA + Docetaxel & getting this every week for 3 weeks then a week off.
Had one dose of tax on 19th august & was really quite poorly from day 6 - yesterday. I’m goodman today & making the most of it & going to see son, d.I.l & Lilly later who live nr Loughborough & ma & pa tomorrow need to make the most of these few days as the thought of having chemo every week bar 1 in 4 fills me with dread.
I’m going to use this site regularly & have already found some really lovely people especially Sadie who lives about a mile from me & whom I hope to meet for a coffee soon! So many of you are so positive!
I’m getting a list of questions for my oncologist so any suggestions would be gratefully received.
Hi Joe.
Sorry to hear your back on the Chemo treadmill again. Hope you don’t feel too poorly on it and they can get they side effects under control. And hope the new regime isn’t too harsh on you.
You said you were unsure if you were triple neg. Well it sounds like it. If you didnt need hormone treatment like tamoxifen and you didn’t need a drug called perception then this usually means you were triple negative. The 3rd thing they measure is progesterone receptors but these are frequently negative anyway. My hosp only tests PR if you are ER neg otherwise PR status. Is unknown.
In 2004 Herceptin wasn’t readily available and wasn’t tested for however often when somebody has a recurrence they can go back and look at the tumour again and analyse the her2 status or take biopsy from the new area to check it’s receptors.
Enjoy your weekend visiting your family.
Love lulu xx
Evening All!!
Oh Tina what a difficult time you are having. I do hope you are finding some smiles somewhere? Still thinking of Disneyland Paris? Did I tell you about the fast pass tickets? Thx for congrats to my daughter - she is just about to start her GCSE year THIS year. These 4 GCSEs were taken early and she got A* for them all!! She has started to think about being a Dr!! I cant believe it! Take care - nd keep finding the smiles!
Hi Jo144 - Im glad you have improved. The weekly chemo is hard but not the lows are not as low. But it is every week - and that takes a bit of getting your head arround. Coffee sounds great! I cant believe we are so close! Enjoy your family trips. Just another thought - have you considered a second opinion re surgery? I went to the Marsden. My Onc was more than happy and I was reassured that Worcs was treating me as they would (sort of!). Anyway - just athought!!
LuLu - Hi! Hope you are having a nice weekend! Ladies Lunch sounds fab!
Lavender lassie - I love the name! Where did you get the inspiration.
Hugs and smiles to everyone,
Sadie Xx Xx
Hallo Sadie,
That is a good dose of warmth and sunny smiles for us all.
I have a gorgeous rose called Lavender Lassie which I would walk out to sniff every day post op and into chemo, and the Lassie bit fits with me being a Scot even though I live in the deep south!
Hi ladies
Hope your having a good day
Tina good luck for your scan tomorrow, and hope you get results quickly. I’ve got a scan in a few weeks time.
Sadie thanks for your welcome to the page, I’m on weekly avastin n paclitaxel, just had 7th, your on 18th? So how many more are you having? I’ve been told I’m having 18 weeks, but not sure what I go onto after that.
Hi to all, are you all living in England? I’m in west Wales.
Weekly chemo is hard, but you do get a couple of days of feeling a bit better.
Luvly to check on this message board every day,for support , and chat to other ladies going through the same .
Luv n hugs to you all
Sandra xx
Hi All - Anyone else have a nightmare with the site over the weekend? I could not get on the Forums at all? Anyway…
Hi Tina - Hope the ‘hunt a vein’ is not too bad and think good thoughts as you lie there tomorrow!! Easy to say not to worry - but worrying will not change the results so treat yourself to something nice and enjoy it.
Hi Lavender lassie - A rose! Lovely!! Does it smell of Lavender?? Odd if it does!! My daughter is Scottish nd very proud of it - born in Stirling! Beautiful place.
Hi Sandra - You are very Welcome! See below for my ‘what is happening’ plan (basically - I dont know!!!)
Jo144 - Thx for your PM. We have treatment at the same hospital and they were soooo slowwwwww today. 8 hours! I left at 3.30 and there were still people what had not started treatment. The nurses were already tired! So, take a good book on Friday - they said the whole week is busy and still short staffed! I hope it goes OK and - let me know!! Take Care. Have you def got the Avastin funding? Xx Xx
I have just had Taxol / Avastin Number 18!! WOWOWOWOW!! Feeling very proud of myself. Im not sure ‘what next’. I was initially told I would only have 18 but my ONC started talking about carring on… Ive got scans on Monday and results the following monday to plan. The nurses today said some ladies are on Taxol ongoing but at a very different dose to mine (im on 90mg per kg and the ongoing is 25mg per kg). So maybe that is an option - it would be a ‘walk in the park’ nearly 1/4 of the dose AS LONG AS IT KEEPS DOING THE JOB!! I do not want to risk anything! I know it all depends on the scan results but I like to be aware of options before hand as there is so much to take in and ask about it is hard to think on the spot. I know you know what I mean!!
Hugs and Smiles to everyone,
Sadie Xx Xx
Hi all!
Good luck to Tina for scan tomorrow and Sadie for next week.Also to anyone else on here awaiting scans. Hi, Sandra, I’m from Wales too - South West, though, near Swansea. I actually live in Neath. There is a meet-up in Cardiff for S.Wales people on the 14th Sept. (see Anne S’s thread) - I haven’t been yet, but hoping to go. I guess it may be a bit far for you? I’m not TN but have had similar dx to many on this thread and have been on it since it started last year. Had to have a chest x-ray last week because of cough and ongoing pain in arm/chest. Dr thinks it’s a stubborn infection and it does seem better now. I’ve been ill for nearly the whole 6 weeks of the summer - big bummer! Hope everyone’s kids have a good first week back in school. Thanks, Tina, for passing card on to Claire’s mum and big hugs to you at this difficult time. Hope you’re OK, Linda, and rads went fine. Love to all,
Sarah x