Triple negative secondaries/ recurrences

Living with secondary breast cancer Supporting each other and sharing experiences
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Tara good news things are stable hope they get the pain under control for you. We have a good Scottish word
‘keech’ it doesn’t sound like leech the ch are like in loch so for English peeps it’s nearer to keeck and means poo. I remember feeling keech on Chemo quite a lot.

FQ hoping that things aren’t progressing. Thinking of you and glad your enjoying you new granddaughter

Sadie glad you feel more reassured since talking to your onc and it’s hooks to hear you had such an improvement on the last treatment hope the next log is just as effective.

Jo hole you dong have any further problems with hour line and they can get it fixed for you. Not really eBay you need on top of everything else. Hope Chemo isn’t delayed too long.

Laura my GP signed me for two months Shen I was first diagnosed with the recurrence but when I go back she will prib just do six months to cover my Chemo time but when I first saw her we weren’t sure about Chemo. Linda maybe your GP only gives you a month at a tine so she can see you regularly. But I’m sure you could ask her to give you a longer one if you wanted. I did ask about working during treatment cos Iv read about people who maybe work two weeks out of three but not sure how that works. GP didn’t seem to know either. She just said she could sign me off but work may agree. To becoming in but origami something to say I’m not covered or they’re not cover if I’m signed off but still go to work. Getting a week long sick line every three weeks probably dint a particularly good way to go either. Or maybe should be resigned to having six months off.

Jill best wishes for the morning it must be such a nerve wracking time hope the biopsy goes well and isn’t too uncomfortable.

Well it’s almost 5.30 and Iv been awake a couple of hours. Sleeping just isn’t my forte right now. Debating whether to get up and paint but might give it another half hour to see if I can get back over. Not crying my eyes out tonight though feel quite happy so things are def improving.

Love to all you ladies
Lulubelle xxxx

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Lulu,
it really is amazing that you have been providing so much help and up to the minute info and advice while you have been feeling so bad that you have been crying your eyes out, while not quite telling us all that you felt that bad, you have always sounded so calm.
And thanks for reminding me about keech-I am so anglicised after living here for 25 plus years, I’m losing touch.
And it’s reminded me of something I was told when I was having a wee problem years ago after having my twins. “Dinna greet,hen, pee!”
So next time you feel like greetin, think of me telling you “Dinna greet, hen, sleep!”

743

Hi Ladies
Hope you are doing ok today? Any plans for the w/e?
Lulu- I too think you are amazing:) You have so much time for everyone else, are full of advice and you are dealing with so much yourself. I am keeping everything crossed that your path results are ok and this treatment kicks the b*stard bc into touch once and for all xx
Linda- thanks for the advice on insurance claims- think I owe you a BIG drink as simply health owe me about £700 and I think our private health owe me significantly more than that!! xx
Sadie- Ive sent you a pm. Sooo glad you are feeling more positive. Everything crossed that you tolerate the arbo as well as I did and you have as good a response :slight_smile: xx
Laura- good luck with the scans got everythin crossed xx
Rachel- keep enjoying that gorgeous grand daughter of yours and try and live for the day. Fingers are crossed that the capcetabine is working xx
Sarah how are you doing? Did you ever hear anything back about the cloudy area on the scan? Hope all is well xx
Wendy- hope the gemcarbo se’s are mild and the treatment is really effective. Its hard with little ones- hope you have plenty of support for your ‘rougher’ days? We get 2 days funded nursery place for my little man due to our circumstances. It really helps particularly when having chemo, and gives my mum a well earned break too xx
Jo (Hope)- how are things with you? Are you feeling any better? Have you looked into getting some support with childcare given your difficult circumstances? PM me if you want any advice xx
Jo (tara)- good to hear from you I often wonder how you are doing :slight_smile: Great to hear things are looking stable but sorry you are in pain. I too have serious concerns about my chest wall and my new onc has agreed we need to investigate further coz at present, its difficult to know how much is rads damage and how much is disease. I am taking milled linseeds coz as you said, they seem to go right through otherwise! Think my mum got it from the organic section in tesco- Im just sprinkling over my cereal. Please keep posting xx
Jo (and steve)- hope today is a better day for you after a gruelling day yesterday! xx
Jill- dont think we’ve ‘spoke’ before? Hope the lung biopsy wasnt too awful today and got everything crossed for the results xx
Hi to anyone else reading :slight_smile:
We are off to our caravan tonight- need to make the most of it coz the season is nearly over. Hubby’s birthday on weds so need to plan something for that. Feeling quite jittery and anxious the last few days- think its coz Im in limbo at the minute as the treatment plan is undecided etc. This anxiety is being heightened by the bloody horrible HUGE spiders that are around at the mo. I swear I am dreaming of the buggers, and am jumping out my skin every time I see something move! Just had a close range encounter with a spider so big he must have been on steroids!! Nearly had a heart attack and Ive been a nervous wreck ever since…
Right better get back to my ironing…
Love to all xxx

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Hi ladies
Hope your all feeling ok today
I have had my CT scan weds and my 10th avastin/taxel yesterday. Taking my anti sickness tabs today.
I have been on soya milk and diary free diet for about a year, I took Essiac tea 2 years ago when first dianosed and have taken recently too, you can buy it ready made up and add to hot water . I do take linseeds sometimes may be 2/3 week, cos it can - go right thro you…! I avoid red meats, eat chicken mainly fish thou lots of pasta dishes too.
Will have ct scan results nxt weds.
Slept much better last night after taken a piriton, steroids keep me awake all night otherwise. So thanks for that tip, can’t remember whose blog that was now… Keep blaming chemo for lack of memory on every thing. Lol
((((((((xxx))))))). Hugs to you all
Sandra x

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Going to start my post asking all you positive lovely ladies to put a couple of lines on you About Me page - just your dx & treatment plan would be good TNS/R is the thread I read most of th time but there are at least 3 Jos for instance & I don’t know about anyone else but get lost with who has what, treatment they are having etc.

Sandra is on same as me - do you have ZA too Sandra, Sadie my “ladies in rugs do lunch” friend was on it and it looks now that it had positive results. Anyone else near Worcester want to koi the ladies rugs lunch? Pm me if you do.

I have come to the conclusion that the vast majority of you are in your 30 s & 40s and I so admire you coping with your children and carrying on, I know Tina and fairy queen believe in carrying on even if it does mean PLOD! PLOD PLOD. I’m a 50 s baby but forget that my mum wouldn dream of wearing leggings and uggs lol

Lulu belle love the name did you paint?

Jill hopefully the lung biopsy went ok when do you get your results?

Tina enjoy the caravan supposedly going to have a fab weekend!, bet I looked weird today, took Flo (wig) off too hot, had shades on, sun shining and uggs on feet!,

I’m not happy with work at moment, yes would go in part time but having chemo weekly and district nurse on Thursday, ill mon - wed not really any other time to go in, occupational health suppose to call, asked unison rep to call two weeks ago not heard a dicky bird and I work for council!,

Today turned out to be another rubbish day, sent to Cheltenham to sort out line & 24 hour care team managed to get blood so sent me home. Hooray things looking up but back to earth with bang Worcester called consultant not happy because line leaking could be a clot - nice (not) be v vigilant over next couple of days will call with appt for linergraph which I’ve tried to google without success - has to be done by specialist dr & xray of line.
About an hour ago had further call to say booked in 4.00 Tuesday!

Keep being positive ladies - if I haven’t mentioned you it’s because of lack of brain cells - disappointed not had chemo today - sitting on M5 on a Friday pm is up there with waiting for chemo!

Think I’d better change my name to Forever Waiting! Cos it seems to rule my life thank goodness for my BCC friends, family, hubby & friends for keeping a bit of sanity in my life.

Isn’t it a shame we

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Oops pressed submit in error

If we lived closer we could have like a school reunion a big meet up. It was so lovely seeing and meeting Sadie yesterday even if her memory is like mine ie she was expecting call from her onc so put mobile on table and walked out leaving it there bet we have all done something similar! She is a lovely, confident lady and outwardly there is no evidence of all she has and does endure and she had made an effort to put some slap on!! Next time I will Sadie remember to bring in out of the bedroom!

I really love my iPad but have to be aware of it making strange words forgive me if missed some
It comes everywhere these days even taken to playing games to keep brain ticking over

Love to all Wendy, Jill, Tina, Lulu, Linda, Laura, Sadie the 2 Jos, fairy queen, etc etc may be easier to say to all the 60s and 70s babies!!

Jo xxxxxxx

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Jo there’s nothing on your ‘about me’ page either :slight_smile:

i didnt get up and paint at 5.30 but got up at 9 and did some then… i was doing a watercolour as a prize for the BCC fashionshow im taking part in next week… so got it all finished and dropped off in glasgow.

thanks LL and Tina for your lovely comments.

take care one and all

from a 60s baby
Lxxx

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Lulu there is definitely on click on my name and it goes there! Unless it’s a fault with the site

You’ve made me smile Lulu, painting thought you meant painting as in decorating not an Artist! Good luck with the comp

Jo xx

Talking of comps you better win SCD fat chance of me looking like that when in my 60s perhaps I would if I made it and had her lifestyle

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Lulu

Your about me page is inspirational to all

Go to the top of the class!!!

750

still nothing showing under your name… wonder if there is a privacy setting… maybe we need to be friends to see the info… ill send a request.

thanks ;o)

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have sussed it… in your profile when you click edit profile it gives you options of public, private or friends only who can read certain parts of your profile… mine is all set to public so everybody cn read mine… your is maybe friends only or private.

Lx

752

Accepted you but can see yours
How bizarre!

753

Typed at same time as you

754

Clever thing! Was going to put s*d but it will
Get deleted but you will have read it by then
Have a good night

755

Hi all will write more tomorrow worn out want my bed lol hope u have all had a gd day looks like the weather is gona be great next wk woo some sun I’ve had a bad toenail for ages and tonight half of it fell off yuk now it’s sore I’ve coverd now I’m walking about with one sock on I look a right weird o waiting for chirop appt scan tue can’t wait for it to be over love to all my lovely ladies post more tomorrow night night hugs xxx

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Hi all!

Gosh, this thread is getting busy - I too can’t keep up! Just a short note at the mo. Been feeling a bit blaaaa…can’t be bothered feeling, which I get sometimes, so haven’t posted much - you ladies are so lovely though and (to coin a well-worn phrase!) an inspiration to write something (sorry for that - too corny!). Actually feeling less fluey now after nearly 2 months of it so making the effort to go out on weekends - went swimming last week, going to Cardiff for a day out tomorrow and (hopefully) seeing the BBC Live and Deadly show next week which is coming to our area. Hope we can get "hands on " with the animals, but I suspect we won’t be allowed to, just seeing Steve Backshall do his thing would be enough for lots of the mothers there, I suspect! Not my type! I still have a big crush on Robert Downey jr, which I’ve had since the 80s. Embarrassing confession time! I don’t think he’ll come a-calling any time soon.!

Tina - thanks for asking about the x-ray thing - still in limbo re: GP/onc. I started chasing it up today, so should hear next week, but onc. is off ill. My cough is possibly a bit better, but still getting pain when I cough, prob. muscular, hospital Dr said. I’m not too worried as damage did show up on the scan in July, so hoping that’s what everyone’s seeing. But, of course, there is always uncertainty with bc. I agree about the spiders - saw one last night jump on top of a daddy-long-legs and kill it, rather than use a web - they are vile creatures, aren’t they? I’m no fan of daddy lls either, they are everywhere too! Sorry about not writing personal notes - I do think of you all on here and how you are all coping.

All the best, Sarah xx

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Hi ladies
hope u are all doing ok + enjoyed the lovely weekend over the w/e :slight_smile:
we went our caravan + had a good weekend. We went to Llandudno yesterday, which was lovely + had a good shop today at Cheshire oaks, which was great too! Actually bought mself a few things- usually 100% focused on buying for dan but decided to treat myself today too! Get my settlement off work this week, got afew bob coming through insurance policies (thanks to lovely linda!) so thought sod it!! Looking forward to the nice weather this week mght even head back the xaravan 4a few days!
Love to everyone on here, hope treatments are being kind + scans/ results go well this week. Special shout out to sadie for her 1st chemo tomorrow :slight_smile: You will be fine xx
tina xx

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Lol that should say lovely ‘weather’ at the w/e…! X

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Hi Ladies!
What a busy thread!!

So - Hi to everyone and hope the people on chemo / radio / break from treatment / waiting for results are all ok (I think that is everyone!!)

Tina - Glad you are fitting in lots of stuff!! How was Disney? Dan love it?? Thanks for PM - really helped!!

Sarah68 - Your confession made me smile!! Hope you get your hands on something!! (…and it is not a spider!!).

Laura64 - Hope your super sore toe is ok! Sounds horrid. Hugs.

Jo (and Steve) - what a week of trials and tribulations for you!! I bet you do not want your chemo delayed again so I hope they can sort your line out by Friday. Fingers crossed. I promise I will update my profile soon!

LuLu - Wish I lived closer to Glasgow to come and cheer you on at the fashion show! We used to live in Stirling adn pop to Glasgow shopping - fab shops!!

Linda - My son not selected for rugby match this week - he was DELIGHTED!!

Jill - Hope biopsy was OK. I asked my ONC about biopsy on lung mets nd she said no! All so different! I wanted to see if status changed -(small chance) so no longer TNBC - but maybe the chance too small for the ‘trauma’??

LLassie - I have certainly been sleeping today not ‘greeting’!! Nice saying!! Hugs.

I had first Carboplatin today. Saw the most useless Reg first who was not able to answer a simple question!! AAAAGGGHHHHHH. Thank goodness my ONC is good and I can see her for the important meetings. I was home by 2 (good for Worcester!!) and slept!! So - just wait and see what the SE are now… 25th chemo in total today, feel like i should be cellebrating!!!

Hugs and Smiles to all,

Sadie Xx Xx
(Another 60s baby - 1967!!)

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hi all well done sadie on first chemo hope se are not to bad. im having a bit of a down day got my scan tomorrow ive convinced myself they have grown stupid i know not been on chemo for 8 wks and we all know how we worry been on my own today so mind be doing overtime thinking of the future wishing we all wasnt in the plc we are in xmas soon i love xmas but at back of my mind know and hope it wont be my last my hair as just started growing will i have a full head of hair again sorry dont wanna make you all down just so not with it today tc all hugs laura