Morning @cass2
How are you doing? I’m not feeling too good today. Poorly tummy, not been sleeping since my chemo on Thursday and not really eaten. It’s really affected me. I’m in bed at the moment just relaxing.
I hope this afternoon goes okay, is everything okay? Is this just to check all is okay? Xxx
Hey @hopeful2025 so sorry I’m just replying. I have felt quite unwell since Thursday with lack of sleep, food and bad tummy, it’s all fun! I was the same as you, around 6-7 hours due to cold capping, however noticed a few strands yesterday and today come out 
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How are you doing xx
I promise this part will pass and you’ll feel more like yourself again. It probably doesn’t feel that way right now but your appetite and energy does come back. Are you keeping a note of all your side effects? It’s probably the last thing you want to do but it’ll help plan for your next rounds.
They’re investigating an aura I had a few weeks ago. I was admitted with neurtropenia (I’ve been admitted twice altogether). Unfortunately when I was admitted with the aura I had to have an MRI which has shown up a lesion in my skull. Now, I know I had the lesion before diagnosis as it sticks out of behind my ear but it’s something that has has to be ruled out. I won’t find out until Wednesday though.
How is your taste? I highly recommend ginger beer and gingerbread for when those pesky taste buds disappear.
@cass2 thanks for getting back to me. Thank you for your kind message 🩷. I am also worried I’ve read that people felt their lump already go smaller same day of chemo and mine still feels very much the same?
Please let me know how that goes, I’m thinking of you xxxx
Please be careful what you read. I’ve yet to meet anyone with such a quick response. Mine took about 2 cycles. Pretty sure if that was the norm we wouldn’t’ have to endure 6 infusions. From my own personal experience I felt it soften over a week after the first. The most notable difference was after the third. I know someone who didn’t feel a difference at all but when they took it out, it was all dead cells. Did you get a size yet for yours?
@cass2 you’re so right, I think you read one thing and get it in your head that everyone has had the same. I guess it’s only been 3 full days since Thursday!
It’s 3cm in size xx
Your size is similar to mine so maybe we’ll follow a similar course. 
They’ll do a scan at some point but very very early days to be noticing anything major. It’ll be doing it’s magic as we speak though. I think they class an early response as 6 weeks so you’ve got plenty of time. Just focus on getting through these next couple of days and figuring out what works for you. I have to have lots of baths. I can’t stand the smell of the chemo after. Oooh, I recommend biotene mouth spray too.
Thank you @cass2 it’s hard isn’t it at times when you read those stories and immediately go into panic mode.
I’ve got a scan on 4th November just to do a check as the hospital I’m at now use MRI rather than the contrast mammogram so my consultant can measure off his own images etc.
Mouth spray is a good idea, I haven’t noticed a smell yet! I have noticed a few hairs fall out already though 
That’s interesting. Mine wouldn’t give me a body MRI. I had an mammogram with contrast both times because of dense breast tissue.
I am doing alright. Definitely feeling the tiredness, caught myself yawning at 11.30 am! Went for a few short walks over the weekend which I think has helped although I am making sure not to over exert myself.
Totally understandable you feel like that after chemo. But so pleased for you its done! Hopefully everything will be alright with MRI, take care of yourself, I know its hard not to worry but I have fingers crossed for you everything is clear.
No need to say sorry bambi241, if you could not reply for a month, who cares. You got to take care of yourself first so totally understand. I hope things are better for you, maybe its a period of adjustment as body gets used to the treatment. You’ll get back to yourself.
I am ok, got out a little bit over the weekend, managing to eat, but I had half usual portion. My gums are already starting to feel tender so switched to a soft toothbrush. I saw a few strands as well but I still have my hair so that’s the positive I’m focusing on.
Take care of yourself, one down, a few more months to go but we will be done with this one day.
Hey @hopeful2025 just checking in, how are you doing x
Hi @cass2 jusr checking in to see how you’re doing x
Hello lovely - I am okay! I have had surgery and received the news that i achieved PCR for the invasive part of the tumour. - i had about 10mm of DCIS which they cut out. However, my margins were very small but I only just found out about them so i’m speaking to consultant tomorrow as it does concern me tbh. i basically went from high risk to low risk because of the response to chemo and it may have been the invasive part was smaller than first thought - The 24mm they measured at diagnosis most likely included the 10mm they found at surgery. So, its a bit of a weird space i’m in - all treatment has de-escalated. At the start they spoke about ovary suppression and years of hormone therapy but now i’m on minimum. Anyway enough about me - where are you on your own journey? x
Hey @cass2, let me know how you get on tomorrow! 
I’m struggling this cycle, on cycle 5 now and the fatigue is a lot. I have recently found out I have the chek2 gene and upon assessment come out as high risk so awaiting to understand what my surgery looks like (I believe it will be full mastectomy and reconstructive surgery at the same time). Trying to see the positives in this that it removes that ‘high’ risk element. I have my next MRI Monday xx
Hiya
Thanks so much for checking in. I’m still doing chemotherapy, lost count maybe cycle 5 or due to start 6 now. Finished monthly now it’s every 3 weeks, yay. I have mostly good days so I’m able to go for walks/runs, even managed a park run here and there but was very slow lol, some not so great days but I am managing. Some side effects come and go, had a strange rash on my arms for a week then just disappeared never to be seen again. However I am dealing with nausea and heart burn/acid reflux issues which haven’t been great. Also doctors quite worried about one of my blood tests so had to have a blood transfusion. Also finding I’m sleeping more. But I soldier on, chemotherapy till end of March and then I find out what is next and whether it’s an operation.
Feel for you about your news but their plan sounds like it is about the long term. All this now so never have to face this again in future. I don’t know if that helps but keep focusing on the positives. This is curable disease and some time this year all these hospital visits and side effects will be over.
All the best for MRI Monday.
How did you get on with your MRI? X
Hi. IM TNBC grade 3 stage 1. I’m at oncologist waiting room now. Waiting for plan @9:30 am today
How did you get on? X
Hiya survived first oncology appointment today Plan in place and it’s the first time I feel good. Everyone was lovely. I was a wreck Getting phone call Tomorrow for Feb start .. chemo. .doxorubicin plus Cyclophosphamide every 2 weeks x 4. Then paclitaxel every 2 weeks by 4 Total 16 weeks I had TNBC stage 1 grade 3. Surgery. Dec 19 th No spread clear margins no nymp nodes so I’m cancer free as surgery got everything. It was small but aggressive. I’m having preventative chemo plus radium. As reoccurrence is high. Today’s my first day I feel like a massive weight was lifted. Hope everyone waiting gets a plan soon It’s very reassuring Start date Feb 16 to hopefully May 25 th. How’re things with u. Take care x