Triple positive hormone receptors

Newly diagnosed, yesterday, so processing it still.  Have first oncology appointment in a week.  I understand that it is aggressive chemo first, then surgery followed by radio?  Hair loss is my greatest worry which I know is silly but vanity does kick in!

I already have a type of blood cancer (MPN JAK2+) so on daily chemo tablets as well, dealt with that diagnosis 6yrs ago so looks like I’m clocking up another big “C” 

Any advice or thoughts would be lovely …


I’m sorry you haven’t had any response yet, I’m sure one of our Forum members will be in touch to share their experiences soon  :two_hearts:

Our Breast Care Nurses can offer you a friendly listening ear on our free Helpline 0808 800 6000, if you would like to speak to someone about this in the meantime. Alternatively, you can get in touch with our Nurses in the Ask Our Nurses area of the Forum and they can respond to you online.

Sending you my best wishes x

Hi Jane

I’m triple positive too, and have just had my third cycle of treatment (of 6).  Everyone will be slightly different, but yes, I’ve started with chemo first, then I’ll have a mastectomy, then radiotherapy and then, I believe, a little bit more chemo!  Plus herceptin injections (I think for a year) and some other delightful injections (I think for 5 years, but this seems like rather a lot to me) to bring on the menopause!  But I don’t know that this is standard - my tumour is quite large and aggressive, by all accounts…and my chemo regime is docetaxel and carboplatin throughout, as I’ve had leukaemia before, so the drugs were adjusted as a result.

Re. the hair loss, I found having nice scarves helps - I’m so used to them now that it will be weird to start showing my hair again (when it grows back).  I started to wear them partially covering my hair before it all fell out, so by the time I was forced to accept defeat and shave what remained off, I was completely used to wearing scarves. 

I wish you loads of luck.  I hope you don’t get too many treatment side-effects. 

Sophie :slightly_smiling_face:

I have just been diagnosed grade 2/3 

positive/neg but if I never squashed my left boob in the door I’d never have found the lump I was upset as biopsy results not given quick enough but after complaining to PALS appointment pushed forward , I am a very strong person normally but at the moment I’m hopeless