Hi Ladies.
I’m copy and pasting this from another thread to see if anyone one else has had a similar experience with surgery and to see if anyone else has tubulo-lobular BC.
Diagnosed 28th June with Grade 1 BC, initially ductal with lobular characteristics. Tumour originally 1cm but then found to have a tendril/s coming out of it (on MRI and contrast mammo) so then thought to be 3cm. 1st op, 1st August for WLE and SNB, post op was told 70 grams of tissue taken (I’ve not been given measurements). No clear margins after 1st op and 2/3 sentinel nodes positive. 1 with just micromets and the other had extracapsular involvement. 2nd op 5th September for margin shave and ANC, 20 grams of tissue taken and 16 nodes. 15th of September got my good news, bad news results. All the lymphs clear, yay, still haven’t got a clear margin, boo. Apparently this is due to the tubulo aspect of my cancer. It is not visible to the eye, MRI or CT. So 3rd (and hopefully final) op 26th September for further margin shave and now a mammoplasty (from an F cup to a B/C cup). 40 grams of tissue taken from affected area and a stack more tissue taken from around the boob (some to be used to fill in the gaping hole where the cancer was and the rest in the bin), to make what will hopefully be a cancer free, pert, healthy looking boob with fingers crossed a healthy nipple. Am really hoping and praying that they got it all this time because if they didn’t the next step is a mastectomy and I lose the nipple (which for me is the worst part, I really like my nipples). Think I should be able to get frequent flyer miles for the amount of time I’ve spent in that hospital. When I went for admission this time all the nurses remembered me and couldn’t believe I was back again, asked me if I was after a job, lol.
Anyone else here have or had tubulo-lobular? Anyone else had trouble getting clear margins?
Love and healing wishes to all
Michele xxx