Hello,
My mum has HER2 3+ highly aggressive cancer and completed 12 out of 18 chemos, after which they wanted to do the operation (mascectomy) and radiation.
Everything has been going really well so far with blood looking quite good and the tumor apparently shrinking.
Today we got the news that they are stopping the chemo and want to operate asap because now the tumor appears to be growing.
I am completely devastated and confused. I was at the sono appointment mid January when the radiologist said the tumor shrunk from 8cm to 2cm and is hardly detectable anymore and this is what they expect with the kind of chemo treatment she is getting and the worst would be if it was growing despite chemo. Last week mum had another sono with the same guy and he mentioned again it was shrinking and my mum should keep the positive attitude and not give up whatever happens. And now we are hit with this news from some assistant doctor. Although supposedly they had a tumor board (although this is more assumption than fact for me).
I am terrified that the cancer is so aggressive that the chemo has become useless. What chance do we even have then?
I feel like after all this progress we are back to square one and it is hard right now to stay positive.
In addition my mum lives in Germany and I am in the UK. I have spent a lot of time there and have a flight scheduled for early March already. And I was planning to be there for the OP prep meetings and of course the recovery time to look after her. That was all meant to be May/June. Now it might happen in the next two weeks. My parents say to just stick with my plan to come in 2 weeks as planned and not earlier.
I don’t know what to do or what to think. I just don’t understand how we got from “all good” to “all shit”. I even wonder if somehow somewhere we have received wrong information. It is hard to handle from abroad and I have been accused of being too “overbearing” before…
Not expecting any solutions here but I guess had to write this down somehow.
x